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Crohn's Disease
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Posted 10/23/2010 11:21 PM (GMT 0)
Hi everyone

I was just wondering if there was anyone out there that is currently on Modulen. I've been on it for 4 weeks and have 4 more to go and was just wondering if it has worked for anyone and how long you stayed on it for. I am starting to feel a bit better and I'm planning to go back to work on Monday. Also how did the food reintroduction go as I'm worried about how long it takes to introduce food again as the not eating is getting harder for me.

Thanks to anyone that can help :-)
Posted 10/23/2010 11:57 PM (GMT 0)
I am not currently on modulen but I was on it for 4 weeks before my resection. Whilst I was taking the modulen I was allowed to have clear boiled sweets, which I think actually helped me to get back to eating, but check with your doctor first before having anything. When you do go back to eating it might be an idea to start small with easily digestible foods such as soups, yoghurts (if you can have them, some people cant) and small amounts of chicken and fish as protein, and maybe a small amount of mash potatoe. I was also told to stick to anything that can be mashed easily with a fork, as generally these foods are easy to digest. It probably took me a couple of weeks before i started eating a so called 'normal' crohns diet. I am on a low fibre diet as i find too much fibre and I am constantly on the loo with diarrhoea.
Hope this helps a little.
Good luck!
Posted 10/24/2010 2:00 AM (GMT 0)
I'm not on Modulen but I would like to go on it. The last doctor I mentioned it to wasn't keen, but he's not the one who's suffering from eating. However, I'm having an MRI scan done on Monday, so I suppose it makes sense to see what that shows first.

If you do a search for Modulen on this site, past threads will come up. Somebody called Colin84 posted about it and was very positive about the experience. He got used to not eating solids, though, which I don't think everybody does. Anyway, you should find a few tips for reintroducing foods.
Posted 10/24/2010 4:57 AM (GMT 0)
Modulen isn't used in the U.S anymore. They discontinued it. It is only used in the UK and other european countries. Good luck getting your insurance companies to cover something like this, because I worked my butt off to get it covered and couldn't even make a dent.
Posted 10/24/2010 8:06 AM (GMT 0)
Son was on a similar product(fresubin) over xmas period last year. He was on solely that for approx 7 1/2 weeks and he continues to have just one a day now.
After the 7 1/2 weeks 'real' food was re-introduced over a period of approx 3 weeks(at this time he was also put on entecort) and this was done by adding a food group over a few days and then progressing to the next food group. He had no problems with re-introducing foods although what I found difficult was trying to make a meal from one food group as typically most meals have something from at least two groups.
Did it work? That is quite a difficult one to answer really. It certainly gave his digestive system a rest and he even manged to gain 2lb(lol just 2lb) He has had to move up the drug chain though so it didn't put him into remission as consultant was hoping.
Posted 10/24/2010 12:30 PM (GMT 0)
Thanks Ashworthml it's good to hear from other people ow they reintroduced food as there is a PDF file on the Nestle website and it seems to be suggesting that it'll take 5 weeks if you do it the way they suggest. I'm just hoping when I see my dietician that she has a faster plan for me.

NiceCupOfTea I had never been on this before and I was really surprised when they mentioned t to me as I didn't think I was sick enough for it but my Doc at the hospital put me on so I'm happy to give it a go and see if it helps rather than go back to having injections and other pills, which is probably the plan if this doesn't work so fingers crossed it does. I hope everything goes well for you on Monday and I'll have a look and see if I can find Colin84's posts to get some more detail.

Poppysocks I'm luckily from the UK so I can get it fine and it's covered through my prepaid prescription so it barely costs me anything. It's a real shame it's not available in the US and that the insurance companies don't cover these types of products as I think it is helping me. I read somewhere that some insurance compaines do cover it but it was when their doctor said they had to have it and it was all they could eat and if they didn't take that they couldn't eat anything else.

Vixen sorry to hear it didn't help put your son in remission but at least he's managed to put a couple of lbs on even though it's not a lot at least it's something. I don't have a problem with the weight loss as ever since I was diagnosed and put on steroids I've been overweight and I never was before. While I did lose some weight during this flare it's not been too much and it seems to have settled now which I think is due to the Modulen as I would never normall consume that many calories in a day.
Posted 10/24/2010 2:25 PM (GMT 0)
I do hope it works for you, must add though that these past few months with medication, solid food and liquid food supplements he has continued to gain weight and is now in the healthy range(prev was severly underweight)
Posted 10/24/2010 4:03 PM (GMT 0)
That's good news vixen long may it continue :-)
Posted 10/24/2010 9:04 PM (GMT 0)
I reintroduced foods slowly.

At first I was allowed a cup of tea or an ice block. That stage lasted a few days. Then I did clear fluids for a few days (as well as continuing on the enteral feeding). Then I did mushier things, like baked custard and pureed apple and mashed, peeled, root veg. That stage continued for a while for at least a week, if not longer, from memory, with more solid low residue foods (e.g. white bread) being introduced as I was ready.

Ivy.
Posted 10/24/2010 9:21 PM (GMT 0)
Thanks Ivy I'm hoping it won't take forever as I really want to eat again. I'm sure I'll keep everyone posted once I've been back to see the dietician. I just hope it doesn't interfere too much with my Christmas dinner :-)
Posted 10/24/2010 10:08 PM (GMT 0)
I'd be surprised if you weren't eating solids by then :-)
Posted 10/25/2010 8:19 AM (GMT 0)
Lol son was on them last xmas and to make it a bit different for him I decided to freeze them into 'shape' only I left it too late getting them out of freezer!! Poor boy!!
Posted 10/25/2010 8:34 AM (GMT 0)
Oh, Vixen! That's the saddest thing I've heard today!!!
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