Becoming undone said...
and like NCOT, I was in denial too...I had forgotten about the 2 years of pain and bleeding, thinking it was "gone"...no one really ever came out and said it was a lifelong disease, even my then GP wanted to get me off he pentasa
I don't think I was in denial so much as completely ignorant. Short of being symptomless, I really had the most mild start to Crohn's disease possible. No pain, no bleeding: just very mild diarrhoea which wouldn't clear up. (It started between Christmas Day and New Year's Eve, so naturally I attributed it to Christmas excess for a while.) At the urging of my mum, I went to my doctor about
it. I never even considered Crohn's disease. The stupid thing was my brother had been diagnosed with Crohn's a year or two earlier, but that just made it seem like an incredibly unlikely coincidence! I had no idea that Crohn's could run in families. At the time I didn't know anybody else in my family with Crohn's, but have since learnt that a cousin of mine had it. (Past tense is there for a reason...)
The doctor at the time didn't explain
anything and I did not ask any questions in those days. So I had barely any idea what Crohn's was, let alone anything about
it. Yes, my brother had been diagnosed, but we weren't close so never talked about
it. Nowadays, if somebody on HW says they doubt their new Crohn's diagnosis, I tell them to just believe it. What I know now that I didn't back then is that a Crohn's label isn't handed out lightly: if a doctor diagnoses it, you've almost certainly got it.
hldwodrgs said...
My gastro said he believes that the disease has "burnt out." Has anyone else heard that?
Yes, I have, for some people who have had Crohn's for a very long time (a few decades). But I would not rely upon it, especially as you are not even that old yet. I would certainly continue getting tested often. I'm sorry about
your abdominal adhesions, btw. Sounds unpleasant :-/