Remicade and headaches

Hi! I am new to this forum, but not to Crohn's disease. I have had Crohn's for 40 years. I had a double-resection two years ago. I just started Remicade for the first time and am experiences incredibly bad headaches. Has anyone else experienced throbbing, pounding, migraines that feel like your brain is going to burst? I have had migraines before, but never with this intensity of pain. I took a maxalt and vicodin and neither one touched the pain. Please respond if you have some info! Thanks!

Hi Phoebe - Thanks so much for your reply. You are giving me the courage to try again!! I appreciate your comment very much!

hey gail, I'm on my 5th infusion, what i have learned is you go thru stages of wierdness, is a good word, headachy, flu like, itchy, but you body adjusts to the wierdness, and if you recieve help from rem it is worth it, as long as the side effects arn't disabiling, I've had cd for 40 years as well and am new to biologic's, i went for years with surgically induced remission, the last surgery I had was at ilieum resecxted site, I had narrowing now i just have inflammation no narrowing or sign of obstruction, just inflammation, accompanied with pain

I had another strange side dealy, it was on my first and second infusion, I would get what i thought was a insect or something crawling on my leg around my ankles, at first I pulled up pant leg to see what it was, nothing, finally when it happened I sat down looked at my ankle to see if it was spider  ,bug something, and it was nothing just like a fluttering under skin, it has gone away so far not to return, I know it was rem thing because it wa in exact spot everytime, be intune with your body but don't worry about little things that might seem unusual, but if they persist tell your gi, ask your questions, but you will learn alot on this forum, learn in this forum and then write down concerns and questions to ask your dr. folks here arn't dr's and every case is alittle different, so whats good for the goose might not be good for the gander, if you know what I mean

Thanks everyone for the great advice. I will definitely try to log my symptoms for the GI Doc. I didn't get headaches on Humira, only Remicade. I do feel off, like it is hard to concentrate, no matter how hard I try. I REALLY appreciate all your comments.

I've been having ongoing migraines and headaches since March. At first, they would only occur after the Remicade infusions. However, for the past few months, they're pretty much ongoing, regardless of Remicade. A neurologist gave me a prescription for it, but I'm so sick of drugs.