HealingWell
Search Close Search
☰

What do you want your life to be?

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/8/2010 2:18 AM (GMT 0)
I'm after realistic visions here. No miracle cures for the Crohn's or other diseases we and our loved ones are afflicted with; no incredible surges of energy; just wondering if people have visions for their life & lifestyle that I can use for inspiration.

Looking forward to hearing ideas,

Ivy.
Posted 12/8/2010 2:27 AM (GMT 0)
Hoping someday to be ME again! Loving life, work, family and friends. Doing what I want when I want and not being held back from what I want to do just because I have Crohn's Disease. End up getting married and having kids, a good job and living life to the fullest again.
Posted 12/8/2010 3:45 AM (GMT 0)
Just normalcy and to be happy!!!!
Posted 12/8/2010 4:07 AM (GMT 0)
-To be able to sit long enough without having to go to the bathroom so I am able to go to college.

-Stop isolating myself from people because I'm afraid of getting sick in public or being in a situation that I don't have much control in.

-To be intimate with my boyfriend and not have to worry in the back of my mind the entire time, hoping I don't get sick.

-To wake up in the morning not feeling like hell, or maybe even wake up because I WANT to not because I HAVE to go to the bathroom.

 

Just a list I could think of off the top of my head, I'm sure I could think of a million more.

Posted 12/8/2010 5:03 AM (GMT 0)
Here's what I'd like for my vision of the future for my husband and me:
- Manageable disease - without complications, and without surgeries. Just take your meds, and deal with some discomfort, but nothing too serious or too painful
- Continue working, and finish paying off our house and put money away for retirement
- No autoimmune cascase - like MS or RA. Don't need another one to watch out for.
- My husband's family is prone to heart disease - it would be nice if he could avoid that
- Be able to enjoy the weather outside when it is nice, maybe take short hikes in the spring and fall
- Not have to wake up at night to go potty, or have to wear diapers
- Spend time with our nieces and enjoy family visits
- Enjoy time together - pick up some restful hobbies - like painting (which my husband does really well at), and other things we can enjoy without expending too much energy
- Make enough money that the tough chores around the house (all the maintenance stuff), can be contracted to a handy man. :-)

I hope that isn't too much to ask for. I don't have any great ambitions - just want to live life without too much pain. That's what I'd like for the future.

PV
Posted 12/8/2010 6:14 AM (GMT 0)
to be at peace with crohn's and to hold myself up to only my standards and be able to gently let go of what I worry others are thinking...
to lean into joy and embrace contentment
to start a new medication and end up having manageable side effects!
Posted 12/8/2010 11:09 AM (GMT 0)
To be able to enjoy life more, and not worry about insurance, disability, SSD process
To spend more time with my grandchildren
To just be able to let go of my illnesses and let God handle them!

Diana
Posted 12/8/2010 11:39 AM (GMT 0)
i'd like to have enough money coming in each week so i could keep myself and a horse without penny pinching.
Posted 12/8/2010 1:32 PM (GMT 0)
I believe that there is no such thing as a normal life, there is just life. I wish only for the strength to handle it until it is over. I already do what I can to make the best of what is . I could use a bit more tolerance and perhaps more patients . I suppose my true answer to your question can be posed in one word. What do I want my life to be,,,Over,,,that is the true answer. Over, by no fault of my own. In other words, to have run its course to fruition. I could rest peacefully knowing that I ran the race, I did my best ,no matter how I finished. As the Japanese say, "I seek oblivion."
Posted 12/8/2010 2:34 PM (GMT 0)
My current goal is to get to retirement! I look forward to the day I don't have to get up to go to work. That I can slow down some, and stop and smell the flowers a little more. I want to volunteer somewhere (maybe nursing homes). How nice it would be to get up in the mornings and do as I would like. Visit friends, take a walk whenever, and spend my last days with my wonderful hubby, just enjoying life.
Posted 12/8/2010 4:12 PM (GMT 0)
1) have a job (i haven't because of crohn's)
2) consequently have a home of mine (or a rent, at least, don't live with my parents)
3) have one to love (but this is not necessary, it would be nice, though)

all those three can't be accomplished if you always have urgency in my opinion.
and the third, sorry to be rude, can't be accomplished, at least if you are a man (always my opinion not necessarily right).
Posted 12/8/2010 5:38 PM (GMT 0)
to get a house! we are tired of renting tiny apartments with no space and little freedom and no access to a yard etc. A house is our current dream :)

B
Posted 12/8/2010 6:36 PM (GMT 0)

To go back to the way I used to be physically: 1) be able to walk without a cane, 2) exercise at the gym again, 3) be able to sit at my desk all day without extreme pain and without having to use the heating pad, 4) not be worried that my new house may not work out because it has stairs

If Enbrel works for the arthritis, I think I will take a nice vacation and go somewhere I've always wanted to go while I can do it, since I never know when that will change.

Posted 12/8/2010 6:44 PM (GMT 0)
To eat anything I want, anytime.
To move around freely, run, jump, & play with my kids.
To not have any more diarrhea ever again.
To travel.
To have a lifelong remission.
To not have to have surgery for this stricture.
Posted 12/8/2010 11:40 PM (GMT 0)
I can't be optimistic here because all the things I would like are not exactly on the cards. I'm so far away from the sort of person I would like to be, or the life I would have liked to have had, that I might just as well wish to go to Pluto instead.

I genuinely don't want happiness: I just want the absence of depression and irritability. I wish I could become entirely absorbed in whatever I am doing, instead of struggling to focus. And I wish there were a solid basis on which to have hope for the future: both my own and the world at large.
Posted 12/9/2010 12:42 AM (GMT 0)
Thanks for that, everyone.

I'm asking because my psych etc are pushing me to have expectations that I think are unrealistic, and it makes me feel a lot better to know that my fellow IBDers have similar ambitions to mine.

What I'd like my life to be:

* I'd like to be less tired
* I'd like to be able to walk further, and swim more easily than I can now
* I'd like at least one more special friend
* I'd like to be emotionally ready for a relationship
* I'd like to have a healthy relationship with someone, when I'm ready. And I'd love to have children.
* I'd like to be less fearful of social situations, and of eating
* I'd like to be more able to travel
* I'd like to have my house, garden, life, paperwork more sorted than it is now, so I have more time to pursue other activities, or to rest
* I'd like to have more control over my life
* If I could have a job, that'd be lovely, even if it were only casual or part time.
* I'd like to be able to resurrect some of the hobbies, interests and volunteer activities I've lost because of being ill and tired all the time.
* I'd like to be able to write without pain, because I miss it
* I'd like to be able to think more clearly


Thanks again.

Ivy.
Posted 12/9/2010 7:20 AM (GMT 0)
no more sharts!
everything else is relatively normal. i'm a fortunate one. my flareups are not nearly as bad as the stuff i've read on here from some of these poor people, I feel for them tremendously. i get bad flareups but not as bad as I've read and not as often as a lot on here. but the main thing i want is 100% control of bowel movements, eat the food i want because i like the taste, not because i want to be healthy or avoid problems, and i'm tired of sharts.
good luck
✚ New Topic ✚ Reply