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Son had an accident at school

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Crohn's Disease
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Posted 1/6/2011 2:58 PM (GMT 0)
Why does a 5 year old have to go through this?  This disease just baffles me... 2 weeks ago he had SOLID STOOL... and, now, the school nurse calls and said he had blood on his underwear and a very loose bowel movement.  She said he's acting fine but he wants to come home.  I am @ work at now I am sick to my stomach.  My father is going to go pick him up.

I started him on the VSL again- do you think this may be doing this to him?  I am wondering if I should stop it, or if this is just a flare.

Again, a nervous wreck and sick to my stomach that putting him on this MXT is going to be a reality.

Maria

Posted 1/6/2011 3:26 PM (GMT 0)
{{{{HUGS}}}}}
Posted 1/6/2011 3:52 PM (GMT 0)
This disease is not fair, but it's especially unfair for a child to have to deal with it. I can't imagine seeing my babies go through what I go through.
Posted 1/6/2011 4:02 PM (GMT 0)
awww the poor little guy. i have boold in my stool alot..mostly when i flare up. just keep an eye on things
hugs to you and the little guy
Posted 1/6/2011 4:04 PM (GMT 0)
Thanks for listening.
Has anyone here started VSL and had this happen to them?
Posted 1/6/2011 4:25 PM (GMT 0)
Hi Maria,
My daughter's been on very high doses of VSL in the past with no effect (postive or negative) but recently we suspect she's reacting to only one pack a day! Who knows, but I've taken her off of all probiotics except florastor for the moment. I'm sorry to hear about your little guy, but he's tough, he will get through this (though it's a nightmare for the parents). I hope he's better very soon.
sherry
Posted 1/6/2011 5:17 PM (GMT 0)
VSL didn't help me at all when I was flaring up. I stopped all probiotics and I am feeling better than I have in months. I don't think it has anything to do with stopping the probiotics, I think it's just timing.

I am so sorry to hear about your sons accident. I can't imagine how painful it is to watch a child go through this. i hope he finds a treatment that puts him in a long remission.
Posted 1/6/2011 7:01 PM (GMT 0)

 So sorry to hear about your little guy Maria. It does seem so unfair that our precious children should have to endure this.... hang in there, kids are resilient and bounce back, it's us parents that need the support and TLC!!!

 

Posted 1/6/2011 7:19 PM (GMT 0)
VSL has been proven to help CD and UC, but sometimes I wonder too.
Maybe you should switch to a children's multi probiotic like Udos? Another idea is to find a good digestive enzyme blend for kids.

Hope your little guy gets better soon. Sorry for you both.
Posted 1/6/2011 7:55 PM (GMT 0)
Oh that sucks.  Kids can be so cruel about this stuff.   Sorry I don't know about the VSL.
Posted 1/6/2011 11:28 PM (GMT 0)
I know that I tried a bunch of different probiotics and they all made me worse, increase in D, gassy, cramps..... Finally I gave up on all of them until my doctor convinced me to try another brand. That one did help, but it took a few weeks. Lesson: Not all probiotics are for all of us. We each need to find the ONE that works for us and it will take a few weeks for it to reach its full potential and in the mean time there will be die off of the bad bacteria and some increase of symptoms.
Posted 1/7/2011 2:40 AM (GMT 0)
I'm sooooo sorry he's having a rough time...

jmho.....give him lactobacillus acidophilus for a while. I would not start out with VSL#3. VSL contains several strains of Bifido bacterium which Gottschall concluded after extensive research was NOT GOOD for Crohn's and UC.

BUT MOST IMPORTANT: The "sachets" or packets of VSL#3 have CORNSTARCH as a filler!!! This is NOT good for anyone with Crohn's. Here is a link that lists cornstarch as a filler in VSL. Scroll down to "Product Specifications":

http://www.vsl3.com/healthcare.asp

When I used VSL#3 for my son, I only purchased the capsules, which do NOT have cornstarch. We had very good results with the product, but we ONLY used the capsules. Cornstarch is evil. devil

Also, immediately after his diagnosis we started him on a different brand of probiotic. He did not take VSL until at least a year later--maybe 2 yrs later, I can't remember.

Remember, if you want to purchase lactobacillus acidophilus capsules for your son and he cannot yet swallow capsules, you can always break them open and stir them into yogurt or something else.

Oh, and I think Roni's suggestion of a probiotic especially made for children--like Udo's--is a GREAT suggestion!
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