Posted 2/23/2011 10:48 PM (GMT 0)
Hi, I am not very good at discussing personal habits. But I have been reading some of the posts. They are helpful. And make me grateful for the things I can do. I am a very active person. It's just that I am not willing to give up the freedom of activity. And I am a terrible speller.
I load up on lomotil & slippery elm before trying to go anywhere and now that does not seem to work well. I travel with a personal kit for changes. The doctors put me on a very low residue diet. I found that to be the worse thing in the world for me. Jordan Rubin turned his life around with diet. Following Gods plan. I know what foods are the best for all of us, I just need to find a way to incorporate them in my life again. I have started, and so far I am faring well without the lomotil and other stuff that hurts my stomach. I am not in pain unless "things" get so out of control that I have to stay home. Then it is not internal pain.
In 1995 I had emergency surgery. one thrid of my colon removed, terminal elium, gaulbladder and appendix. Mostly because of scar tissue were some things removed. I had a perforated area. for 4 months I had "the bag" then they did a take down. I was not healing so a third time they went in and repaired a lot of hernas and removed a couple non dissolving stitches. scar tissue is a severe problem for me. I was told then that that was the last surgery for me. It was hard on the doctor and on me. He did not elibrate and I did not need more information.
Right now I am on 6mp, and mesalamine ememas at night. I take B-12 shots, calcium, thyroid (hypo), mirapex for RLS, klonopin and gabapentin for RLS. I have Fibromyalgia, osteoarthritis, neuroopthy, asthema, iron, theraputic essential oils, flax seed, and cut out the junk. I am lactose intolerant. I am undergoing a battery of test for Remicade. I was told I needed to be on it 5 years ago, but my doctor did not agree. I have moved - new doctors and beginning new. Remicade may not be the answer, but I would like to find out.
I am going to be a great grandmother this summer. I intend to be a viable part of this childs life. I am truly blessed and in good shape from some of the things I have been reading. I ride (motorcycles, horses) also drive a wagon on trail rides. I am at home in the ballet and theatre, but would rather be outside. I love to shoot and I do not want to give it up. Slow down. Yes. I need to. Rest more. Yes, I need to. I want to walk across the pasture without having to find a bush and carry a roll of toilet paper with me or worse embarrass myself or one of my children somewhere.
I have not been on pain medication for the disease. for surgery, but not the disease.
I also own a manufacturing company, struggeling, but still going. My granddaughter works with me. She keeps me going. She rides like the wind. I have 8 grandchildren. so much to be grateful for -
thank you for listening. I guess I had to speak. I seldom talk to my family about this.