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Really, this DD knows NOOOOOO bounds!

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Crohn's Disease
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Posted 2/20/2011 3:53 AM (GMT 0)
I have been having a lot of hip problems since getting the DX that brought me here. 

A bit o' time travel now, to the movie theater last year.  I took my 20 year old son to see Iron Man 2.  Pretty good movie we enjoyed, but as we were leaving my son saw me stumble and catch some wall.  I had to stand there a minute to regain my composure/balance.  My wife and I have noticing my hip acting up (hitch in my giddyup as we have come to call it) where my hip joint just seems to lock up.  My son flipped out.  Not so much to me, but telling people behind my back to keep an eye on me.  No son should have to see his father stumble, not at our ages (any for that matter) and on having a good day. 

Flash forward to last night.......I went down when trying to hurry back into the house.  Tried to take a couple quick steps, the hip said "I Don't think so" and next thing I know I am down on my knees with the wife right there.  *** is what I am saying.  Wife says don't worry about it.  I feel a tad embarassed, but more WEAK, less than, no longer a strong person.  And it seems as if it has to happen where and when it is most damaging.  Maybe the only damage is the pysche, but having potty problems and tummy troubles already sure isn't helping my state of mind. 

This kind of crap is rediculous, it feels like this DD is taking my diginity and starting to define me more and more. 

Know what I mean(if this makes any sense)?

Posted 2/20/2011 3:58 AM (GMT 0)
(((mdf)))

Yes, I do know what you mean. Crohn's is the bad friend that just keeps on taking, isn't it?
Posted 2/20/2011 4:25 AM (GMT 0)
Sorry to hear of your troubles. You are absolutely right about the lousy effects that go along with this disease. Everyone has different symptoms or collection of symptoms which make it hard to manage. You just have to keep your chin up and don't let the disease win!!!! Stay strong!
Posted 2/20/2011 4:43 AM (GMT 0)
yes the DD can be a nightmare- you really said something that rang true for me at the end there "This kind of crap is rediculous, it feels like this DD is taking my diginity and starting to define me more and more."

Thats how I feel lately. I am 33 and feel like I am crippled... hips and other joints are killing me! Drs say it is side effects of coming off steroids and should get better. That doesn't help me when my daughter who is 6 is mimicking me lately by limping around the house with a grumpy look at her face. UGH

But chin up I guess... take one day at a time....

B
Posted 2/20/2011 5:36 AM (GMT 0)
I just needed to grumble a bit.  Falling in front of my wife really bothered me.  I can play off most of the rest some of the time.  Bathrooms are kind of private you know.
Posted 2/20/2011 2:40 PM (GMT 0)
I call it my ball and chain, where i go, so goes my ball and chain. I'm sick,no question. but it has me totally psychted me out. can't believe it has gotten this bad. bad enough to be on ssdi. i was really adamant about this disease when i applied for ssdi, I really wanted the government to realize what cd and ibd issues are diasbiling. when they denied my first app. in there words, because I can walk and move my arms freely, I can work, my gi got so pissed, his narrative report that went to ssd. when the dr read that, iwas approved in 3 days after he read it.

AG

Posted 2/22/2011 10:58 AM (GMT 0)
Not everyone is blessed with physical prowess, and some are robbed of it. But physical prowess is not strength. Strength is having the will to seize what the universe throws at you and make yourself a better person with it.

A couple years ago my dad slipped on a patch of ice at the end of our driveway and tore his knee apart. He was stuck outside for almost a half hour because my mom and I didn't hear him. It's the scariest thing I've ever experienced. Even now, speculating about what might have happened terrifies me.

You may not need the extra eye on you, but your son does. Besides, what can it hurt?
Posted 2/22/2011 9:59 PM (GMT 0)
You didn't say if you have had this hip checked out by a doctor. If not perhaps you should but I don't know what if anything they can offer. I believe I am about your age because my kids are about the same age. I also am feeling fettered. I am trying to paint a room and my shoulder won't work right and my neck has been hurting for 5 weeks for some unknown reason but I suspect CD. That and the constant fatigue is making this small project a big pain.

I tried to share with two co-workers what I was feeling as in no strength and tired and they act like I'm crazy. "we're all getting older" type comments. Thankful for this forum where folks understand.
Posted 2/23/2011 1:08 AM (GMT 0)
Thank You FG! 

I hear that crap all the time.  I try to keep complaining to a minimum, but it is hard when someone sees me stumble cuz of my hip.  I automatically get the "OLD" comment as if I didn't know my age of 44 and realize that could be a possibility.  NO really.

Posted 2/23/2011 3:52 PM (GMT 0)
agree..this DD does seem to rob us. I am 41 and used to be so active. Now I use a cane and need my teen son and husband to help me get around. It is humbling.
Posted 2/23/2011 8:51 PM (GMT 0)

yes, I agree with everyone else. Aug of 09 I was competative mountain biker, then had heat stroke on biking trip, and all hell broke loose. now on ssdi. I still work a little from home(artist) thank god I have that skill, or we would be up ****s creek without paddle.

AG

Posted 2/23/2011 11:11 PM (GMT 0)
Being on SSDI really shocks a person...I would have never thought this would happen...
Posted 2/24/2011 8:15 PM (GMT 0)
I had a tough time with realizing people could be out on disability from this DD.  I do find it shocking myself.
Posted 2/28/2011 11:39 AM (GMT 0)
Um, I need to apologize for whining here.  Sorry.  I know some people have had to deal with way more humiliating and undignifying stuff than what I listed.  I know it's not a contest about who has it how bad.  Just wanted to say, I know this and thanks for listening in the first place.
Posted 2/28/2011 2:49 PM (GMT 0)
Vent away mdf34, thats what we are here for. Gentle hugs!
Posted 3/1/2011 1:16 AM (GMT 0)
mdf...really I get it...and I don't have kids...but I'm amazed that there are a lot of us at similar ages...not really that old, and probably our parents are more active than we are...BTW, deep dark secret...please don't tell, but I turned 40 myself in July...

I used to run marathons, ride my bike, walk for hours anywhere...now walking from bed to couch is a struggle...oh, and I haven't applied for SSDI yet because I can't really get over the mental block (even though I've been out of work since middle of 2007(when I joined HW)...so I really understand...and I really need to apply...just have to talk myself into it (the same way I talk myself into drinking the prep)

yes, and Ivy had it right...this disease robs you of so much...and alas, it hits so many of us in our youth/prime...((((((((((((((((((((mdf)))))))))))))))))))))))))))))))
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