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Newbie with joint pain question

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Posted 3/7/2011 8:55 AM (GMT 0)
Hi,
This is my first time posting. I was diagnosed with Crohn's in 2005, had a bowel resection which put me into remission in 2007, and it just came back in full force a few weeks ago.
I'm used to the stomach pain, diarrhea, constipation and all of those lovely symptoms ;-). However, this time I'm having very painful joint pains. All of my joints hurt and are swollen. I've heard this happens with crohn's and my GI doctor assured me that the Remicade I just started should help with it. I have just never experienced it and don't know what to do for it.
For anyone who has this problem what's the best way to deal with it? Tylenol does absolutely nothing. When I asked my GI about it she said that the remicade will help, but I know that takes time and it's so bad now that I can barely walk. I was discharged from the hospital with some Percocet and that helps for awhile but I'm now all out. Would I be out of line asking my doctor for some pain medication to take while waiting for the Remicade to work? My wedding's in two months and not being able to walk around is definitely hampering my ability to plan.
Thank you so much for any advice you can give me
Posted 3/7/2011 1:44 PM (GMT 0)
No, you most definitely would not be out of line asking for some help with pain management.  It's just a fine line between that and managing your gut.
Posted 3/7/2011 2:00 PM (GMT 0)
I find that meds and the heating pad together are pretty well all I could do for it. I have a similar experience as yours. Now mostly left with some inconvenient achey joints... but I don't need pain meds anymore... the Humira is hopefully working for me. I feel like I came off my pred. too soon. Talk to your doc and see what you can take to help. I took T3s.

Hope u feel better soon, it really is horrible

B
Posted 3/7/2011 2:03 PM (GMT 0)

hey, no you would absolutely not be out of line. rem has made my joints hurt, my gi said he thinks it's cd, but I'm not sure, I've never had arthrits. I've been taking vicodin and nsaid for muscle and joint pain, but it hurts my gut, so I'm sort of in your boat, I'm going thru my pain med's faster than what my gi wants. I'm going to call my gp today and try to get into pain management clinic. my problem is I don't want to start onto perc's, i want to keep it at vic's.

AG

Posted 3/7/2011 2:04 PM (GMT 0)
Gaius

Hello and welcome.  The title of your post caught my eye.  My hubby has Crohn's with Crohn's Arthritis.  After 34 years of addressing only his intestine he has finally been sent to see a Rheumologist.  He was started on MTH which should cover his Crohn' and arthritis.

You are not alone with this problem.  I will be looking for your posts on how you are doing.

Kindly,

Kitt

Posted 3/7/2011 3:30 PM (GMT 0)
Have you and your GI talked about using pred as a short term solution to the joint pain while the remicade kicks in? I had one flare a few years ago with all over joint pain and it totally sucked, I know how you are feeling. Plus the pre-wedding stress is not helping I am sure!

I hope you feel better soon, and welcome to the forum!
Posted 3/7/2011 4:05 PM (GMT 0)
Yes do ask for pain meds, but I suggest you see your family doc for them as GI's are notorious for not prescribing pain meds. I get mine from my family doc. Just explain like you did to us, and I think all will be fine. Hugs!
Posted 3/7/2011 6:51 PM (GMT 0)
Thanks for all the advice! I called my primary care doctor this morning, hopefully she'll be able to help with this.
Posted 3/7/2011 10:48 PM (GMT 0)
I just talked to my primary care doc and she's going to write a prescription for pain meds for me to pick up tomorrow and then I have a follow up appointment sometime in the next week. I always feel weird about asking for pain meds, thank you so much for the encouragement.
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