ts been 4ever in a dogs age since I wrote last it is one year since my last and finally surgery on March.17th the GI surgeon wanted me to be on TPN and Potassium and Magnesium 4 the rest of my days,,the problem well I had repeated bowel obstructions 4 a number of years than basically it was surgery after surgery it was terrible,,then the scopes with the painful dilatation's which never works than more surgery to remove buckets of adhesion's and more bowel till I was left with next to nothing,,not enough to make a pouch for a colostomy bag period I never got the chance,,so my local hospital every time I landed in with another bowel obstruction they did the same things gave me lots of pain meds which didn't even dull the pain ran IV fluids,,steroids,,NG tube and@ this time since the last 7 years they could never get a vein for anything not even blood work so I always had a pic line or central and finally a port which I loved but there was a young man in training and I'm all for that after all they gotta learn somewhere right except when he pulled the blue pack
open I noticed that it was the wrong gripper,,he instantly said sorry miss I run 4 the proper one right away u would know better than I cause u r the patient and get these on a regular basis and the RN that was on whispered its fine,,the port didn't even lay flat to my chest and 25 minutes later I started getting extreme chest pain and tightening going down my arm,,she checked it said I'm fine U will live go to sleep,,I didn't want to ring again and bother anyone but my face had swollen so bad it meet my top of my shoulder and I couldn't move my head or neck,,after some rage they took in a city doc whom was wonderful by the way and says tomorrow is Saturday we r going to give u a ct scan but tonight u r going to the operating room cause I believe u have what is known as the flesh eating disease and u may wake up with a huge hole in your neck and face,,to say the least I was terrified,,I woke in ICU hooked up to the life saver not knowing if I was already gone or not I could hear people speaking but I couldn't respond at all,,,That evening I remember going to the CT some what and the doctors whispering she got a blood clot in her jugular vein she has to go back to surgery tonight to get ride of the foreign antibody in me my life saving port Whom I Have Grown Very Attached To Lol...ICU again in the local hospital going down hill fast,,my disease was never really in remission,,I tried Remicade,,Humira,Methotrexate u name it,,I'm now down to an astonishing 71 pounds and I'm 5/7 no family doctor for 8 months no GI since the surgery last year,,so now I have to go to my local outdoor to get all my regular meds filled and they treat me like a drug addict I have been on short and long term pain meds for 25 years now I also suffer from fibromyalgia,,arthritis plus the everyday pain of CD and numerous other meds for the fibro which causes spasms and insomnia well let me put it this way I take 28 different kinds of meds and I had to get in contact with out local minister health,,thereviewboard of the doctors,,the local MLAS the CEO of our local hospital about
them not filling my meds and I would come in and the last time our docs do 12 hour shifts I was there for 29 hours every single person came in after me all got treated and a prescript
ion and sent home not me,,there is a few good doctors that will always help me,,some called my a loser drug seeker he no longer works there,,I went to pain clinics and yes for all of u who choose to read this 2 long post I am in pain and stopping all meds in very dangerous and scary and I did call the local rehab and told them my symptoms cause I was so sick throwing up,,sweating like buckets,,in severe pain every place in my body she said its with drawl get my meds filled right away,,@ that point of complete exhaustion I thought no I can do this,,Once a doctor told me Jennifer u can not become an addict from living in pain everyday and requiring them just for that,,I lasted 4 almost 6 days I never slept once or ate cause I threw up steady but the pain was the worst and finally I got my meds after my 2 day wait at the outdoor and started to feel like a normal person in about
3 days,,,Sorry 4 the long post just another Crohn's patient in everyday pain and sitting on the back burner cause I'm young and labeled as an addict,,DID THIS EVER HAPPEN TO U AND WHAT DID U DO WERE DO I TURN IF THE GOVERMENT WON'T HELP THAN WHAT NEXT REALLY I'M GOING INSANE LOL...Sorry Again 4 The Long Ass Post..I Hope This Note Finds U All Well Buddies...
Post Edited By Moderator (Nanners) : 3/23/2011 7:43:59 AM (GMT-6)