Please help figure this out!

Let me start by saying I'm glad I found this site!  I have yet to introduce myself, which I will do shortly in the appropriate forum.  I haven't had time to look around the site in depth yet.

I'm hopeful that someone here has had experience with Pico Salax. 

My just turned 5 year old has huge bowel problems, and is still in the diagosis stage.  All that's been ruled out is celiac's disease.  Again, my story will be in the right forum later on!  My question is this though.  We see a pediatric GI Dr in a different province than where we live, as we just don't have one here.  We were told by our GI to give him Pico Salax to clean him out (not as a prep for anything but becuase he is severely constipated all of the time which is leading to bigger problems) both today and tomorrow, and to repeat next weekend both days.  That I am to mix the PS with 5oz of water and give him half of that, so 2.5 oz.  Which I did, almost 7 hours ago.  He's been drinking a ton of liquid, water, diluted juice, gatorade (our pharmacist said it was okay).  Yet, nothing has been produced.  Nothing at all, except for two teeny tiny smears in his pull up (which is very normal for him) followed by two very tiny BM's in the toilet (again, his normal-nothing that would indicate what the PS should do).  I called our pharmacist and he said certainly by now, for sure by now, he should have gone, and gone alot. 

Now, what do I do?  I'll give him his second dose tomorrow as instructed, but why isn't it working?  I'm very frustrated with it, becuase no one has been able to help us and we've been dealing with constipation since infancy..........

Do I call the GI on call in Toronto?  (where our GI is, not where we live), or do I just wait until Monday and whether or not it works tomorrow, call on Monday?

Again, thanks for any replies............this is new to me (the pico salax) and it's not working, and he's just a little boy.........a hungry little boy at that!

E

Don't wait til monday, and I wouldn't give him more...with that amount he should've gone alot, and with nothing happening I'd take him to your nearest hospital as a precaution...they can contact your guy in Toronto and he can advise them from there.

Doctors have a nasty habit of 'lets wait and see" at least here in the States, and well, sometimes that leads to alot of un-necessary suffering for the ones waiting.

warm thoughts from here to your boy and you

Thank you all for the replies. He fell asleep last night after no more "toilet time". I did call the GI on call in Toronto this morning and he told me (keeping in mind he knows nothing about my son's case) that based on age and weight, the proper dose was given (which I knew) but it's likely that my kiddo is so backed up that it's just not working. Obviously, I knew this already. He confirmed that yes, he's drinking a sufficient amount of fluids. He said to go ahead with the second dose today and to call our GI and the GI nurse tomorrow morning. Which I will. He also said that "other measures might be needed" to clean him out. I am going to insist though if that's the case, that we fly to Toronto to have it done where his GI Dr is, not here where all they can do is talk on the phone between each other. I've been fighting this battle for over 4 years now and am tired of the way things are done.
1.5 years ago my son had a bowel cleanout done via NG tube using GoLytely over two days and it didn't work either. It did however, make him violently ill, but we were sent home and here we (still) are.

I really appreciate your replies and the support! I know it's not the right forum, as he doesn't have Crohn's, or at least not diagnosed Crohn's (but you never know, aparently my estranged mother has it)but as I'm seeing now, some of you have experience with what we're currently dealing with!


Take care everyone
E

dragonfly8~so sorry to hear about your little one

You may want to check out the Total Colectomy threads on the Ostomy Forum...many there have dealt with the same issues for a very long time and might be able to give you some suggestions.

I am glad you found the forum!

My 8 year old is having similar problems.  Back in Feb., we did a clean out with Miralax.  An xray confirmed that she was full of poop.  Constipation has always been a problem since she was a baby, and she also has reflux.   It took probably about 4 doses of the miralax to start things moving.  Since then, they have recommended that I give her one dose a day to keep things moving, and it has helped.  She is going to be scoped on Friday, as she is still having trememdous belly pain at times, and vomiting.  So we will see. 

Wow, and he is still constipated?! That is frustrating! I'm so sorry!