Crohns, tiredness and bones

Hi Everyone,

I have had crohns for 12 years not and for the past year having been suffering more than usual. I have been getting very tired and a flare up. Prednisolone was prescribed but I could not take as it just made me really ill.

I have also been put on citolapram (an anti depressant) for tiredness as I could have literally got on the floor at work and gone to sleep. It seems to be helping and have not been any where near as tired during the day. I have been on this for around 4 months now.

I also suffer with joint problems and taken cod liver oil as I cannot tolerate glucosmaine. I have recently been for a bone scan too and have been request to go back to the doctors tomorrow as I believe something has shown up. A calcium test I recenlty had showed a deficancy. Has anyone else suffered with joint problems, mainly in thier hands? I have been tested for osteoprosis.

Also I suffered with getting really hot very easily, when not even doing any exercise, does anyone else get this?

I currently take 4grams of pentasa a day, 20mg citolapram and various vitamins including calcium.

Post Edited By Moderator (Nanners) : 5/8/2011 8:36:27 AM (GMT-6)

I once had a rheumatologist tell me that joint pain is often a precursor to a flare. I know when we are flaring there is inflammation rampant all thru out our bodies and that will affect your joints also.

I have what they call osteopenia. Its the precurson to osteoporosis. I also suffer with osteoarthritis and fibromyalgia. So although I am in remission, my joints are always giving me grief.

I agree with Kazbern about the sulfasalazine, it is a good med for both Crohns and the joint pain we suffer with. I am allergic to sulfa meds so can't take that one:( Hope you and your doc can get things figured out and get you feeling better.

As for the fatigue, that is always with me too. I think its just part of having this disease. Gentle hugs!

Hi Darren,

I have been suffering from the same since I was your age. I am 40 now. Very difficult for me since I was always a carpenter and now a woodworker. I get hurt all the time from the smallest things. Swinging a hamer for just a few minuites can cause all my fingers, wrist and elbow to hurt for days. Other times it doesn't bother me at all

People don't understand that you are sick. Since they cant see it. They think you are faking or exaggerating. It will make you wonder if it is all in your head. But I know it is not. These autoimmune diseases are multifaceted to say the least.

Basically chronic fatigue with joint and muscle pain. Overheat from mild physical activity. I also sweat allot. Every year the joint pain, fatigue and muscle pain get just a bit worse. I have persued treatment for lyme at least three times with no change in the fatigue and pain department. But is does affect my chrons. Better when on antibiotics then worse once off the antibiotics.

Hang in there you are not alone. So far I have refused to go on biologics (Humera).

I would like if others with these same symptoms would post. Because I would like to rule out. Fibromyalgia and MS (my Mom has MS).

Edit:
I have always taken Asacol. Have also been on Canasa for the past few months. I am just starting a coarse of oral prednisone. Since I have been in a mild rectal flair for the pasts few months that is now getting worse despite the Cansa. Urgency accomponied by mucus and some blood.

James

Post Edited (James04) : 5/9/2011 3:04:18 PM (GMT-6)