Nervous

Take a breath. You haven't even been diagnosed and you have already given up hope and decided that all the medications out there will not work for you! Good Lordy! Calm down!!!! All of us have been there. The time before and just after diagnosis is the absolute hardest, by far. It takes time to find the right medication, or combination of medication to get things under control. And to undue any damage that has been done. But I promise you that it is a very miniscule minority who are not able to be helped. Just relax a bit. The stress is probably doing more damage to you than anything else.

You know Daunting I am with Zanne here, chill out!!! You don't even know if you have the disease, haven't even tried one of the meds, and you are already thinking you are at the end stage.

You really need to chill out and quit worrying about the what if's that more than likely will never occur. Relax!! I think you are going to end up making yourself even sicker just because you are fretting so much. If you do have Crohns, you should know stress is not our friend.

As I have told you many times before, I have had this darn disease for nearly 36 yrs and I am here and living. When first diagnosed I lost 18lbs in 3 weeks, couldn't even take a sip of water without runny to the bathroom to pass only bloody mucous 20x a day. I was a pure skeleton.

Once I got my diagnosis they put me on Prednisone and Azulphadine (a 5asa med, the mildest CD meds) and within no time I was feeling better and enjoying life again. You will too, if you just chill out and relax some.

I will be starting to see a councillor really soon on May 24. She is a phycologist at our local hospital.

I'm sorry for the venting all the time. But this is taking a big toll on my mental and physical health. Today alone must of been the worse day I have had since all this began.

I think stopping the prednisone did something. Over the last 5 days on prednisone I felt as if I was getting blocked and nothing was passing properly, but I still ate because the prednisone was making me hungry.. now two days after stopping the prednisone it all wanted to come out of me. Now it feels like the intestinal spasms won't quit.
I had to leave work after only being there for 2 hours.

I know you all say once your on the right meds things will look up, I've always been a realist and not a very positive person when it comes to things. And I'm scared to lie to myself by saying things will get better when honestly I don't know.

I'm just scared, I've never been through anything like this before.
I see all of you being so strong during this disease, and I keep asking myself can I do the same.

Maybe once I get some answers and some type of treatment regiment things will look up.

I'll post again on Thursday with the results.

Please wish me luck.

Well said Justanother.

Wishing you all the best on Thursday Daunting!!!!! (((((HUGS)))))

Sorry again for all the Venting

I think as I mentioned before today was my worse day that I can remember so far. I actually saw blood in my last BM and I'm sorta freaked out. This is definitely something I will mention to my Gi doctor on Thursday.

Right now I am trying my best to relax and not fret too too much about what he can possibly tell me but it is really hard.

I really hope that you guys are right and that I will have some good times a head of me.
From all the posts I've read so far, I've realized that each individual's disease ranges from one extreme to another. But you have to admit there are some that are having it really tough and those are the posts I keep reading and are making me extremely nervous.

Thanks again guys, I will keep you posted on my results when I get them.

First if your belly is gurgling so and you are in so much pain, please don't eat. You can live for weeks, if not months on liquids alone. Your belly is sending you a message, listen.

Second, you are putting an awful lot of weight on this one appointment. I know you are expecting the results of you tests, but the expectation that after this one appointment you will know everything and either know that you will live or die (which is the tone of your posts) is a bit high of an expectation. There may still be things the doctor might want to rule out, or answers they don't have. Please, you are only setting yourself up for disappointment, unless things go exactly the way you expect. And then the stress will only make things worse.

If you can tolerate Ensure then yes, it's good stuff. I have no issues with it and with my weight loss problems have been drinking 3 per day in between meals. The additional calories have helped me stop losing any more weight, but holy cow am I sick of these things.

Listen to Zanne, stick with liquids. If you run out of ideas just google liquid diet. You may still experience pain with it, but it will be much less than if you go hit Taco Bell.

Also, and it may not work for you, have you tried a heating pad? When mine was really hitting hard it did help a bit.

Thanks


It has been such a rollercoaster for me this past year. I felt as if everything I have worked so hard for is slipping away from me.

I know I probably will never get back to feeling 100% better but honestly I'd like to see some improvement even if it takes time.

I know that the more severe cases are not the norm as you have mentioned but more and more people I meet with crohn's have the severe cases. I've actually stopped reading information on crohn's over the internet, all i find is severe cases. I'm just going to have to play it out day by day.

I am just hoping that this doctor will want to put me on some type of treatment plan and that it works, I know most times things do not work immediately because of the loading doses but some improvement would be nice.

I just want to say that I too have been reading some of your posts and I think your anxiety is worse than what may be wrong with you. I say this because I know a few people that have IBS that have worse symptoms that I do most of the time.. diarrhea, pain, bloating, reflux, sensitivity to all sorts of foods... etc. If I didn't see the long narrow stricture myself at my small bowels series (both of them) I still wouldn't believe I have Crohn's... My Crohn's DX has been backed up by biopsies. 2 small bowel series, blood tests, sed rates and crp, etc etc.. I was misdiagnosed for 3 years and it took 2 different all nighters at the ER to finally get DX with IBD and get admitted

I think you should think about it all this way.. you may or may not find out what is wrong with you.. be prepared for this
If you do get a definitive DX then you can go on a one or two of the large myriad of drugs available and find the one(s) best for you
you can do your research and find the best diet plan..
and then you have to get the right attitude.. you have to take control of your stress and anxiety.. take a xanax.. I'm serious
consider this this whole thing lucky.. if it turns out you have Crohn's you will be treating it early and probably have better results if you are vigilant with taking your meds, eating well, and getting enough rest

There is always something that life throws at us that really sucks.. This is just one of those things.. Maybe there's another bullet you are dodging like a car wreck.. that's the way I look at it..

remember.. stress makes all things worse.. I got several different auto-immune diseases out of the blue in the last year and a half. Prednisone is my friend when I have to take it for a week or two.. You must not let all the horror stories in here make you think that they are all going to happen to you!!!

I don't really know what remission is because my stricture is the boss in my life until I can get it cut out.. there may be other inflammations going on and I am so used to a certain level of pain that I just dismiss them

BTW.. IF I had done the pill cam I would have had to undergo surgery to get it out.. not even a kernel of white rice could get through my TI lumen... had I not changed GIs.. I don't even want to speculate.. the first one was saying that the pill cam was next... shheess.. good thing I was admitted from the ER
NY Veggie