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Crohn's Disease
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Posted 6/8/2011 5:02 PM (GMT 0)
can anyone tell me has this ever happened anyone very bad pins and needles

down both of my legs ever since i got sick during the wk at times they can be bad

any tips or it may have happened someone else thanks any help would be

appreciated

                            mull

Posted 6/8/2011 8:46 PM (GMT 0)
Have you had your B12 levels checked lately? Typically pins & needles are an indicator for lack of B12 and crohnies are especially susceptible for low B12 since it's absorbed in the intestines.
Posted 6/9/2011 3:24 PM (GMT 0)
Are you on Remicade?

Julia
Posted 6/9/2011 10:37 PM (GMT 0)
hi no not on that i am on pentassa and puri nethol  god the pains i have in my legs are

bad just wish it would go going to doc tomorrow so see what they say had been sick all wk with the flu

            thanks guys

Posted 6/10/2011 4:43 PM (GMT 0)
I have the same problems...I am currently "questionably diagnosed" with Crohn's Disease, and for a while they thought I had Lupus...I'm still undergoing all kinds of doctors visits. I take Pentasa as well.

I too have a pins and needles feeling in my legs, but I also have it in my fingers, palms, toes and my feet, rarely my arms.

It scares me a little because sometimes my toes and fingers turn a light purple color, and i have no idea if that is related to Crohn's or not.
Posted 6/10/2011 7:11 PM (GMT 0)
hi guys im a cronhes patient too. and have been for 30 years or so. I have tried everything even surguary, i have now stopped my pantasa and all meds for cronhes as i now suffer more with contispation lately. i also suffer with major leg pain special muscel at back of legs and keeps me from sleeping and my right foot. Not sure if its anything to do with cronhes. My b12 levels are ok as i get my b12 injection every 3 weeks or so. if you find a cure please post it
gino
Posted 6/11/2011 3:47 PM (GMT 0)
Hey geniegino and welcome to the forum. I too suffer with more constipation than diarrhea with my Crohns. I take stool softners nightly in order to keep things softer and easier to pass. I do not think it is wise to stop your meds. Your disease is just going to get out of control and even harder to get back under control. I learned that one the hard way, and ended up with multiple surgeries in just a couple of years. I too have had this darn disease for nearly 36 yrs. Hugs!
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