Thank you all for your support! The details of my journey are below. I have been tested for lupus and RA and I am looking into lyme disease as well. The reason I strongly believe its chrons is because a lot of my symptoms match up. I have been doing a lot of research and I have come to this conclusion. I am super hypervigilant about
my body and understand that this may be the reason that I notice absolutley everything. BUT iam also a very reasonable and realistic person and know that my symptoms are due to an illness of some sort. I am really reaching my limits as this has all affected my life in a very dramatic way I can only imagine what the future will bring. Your right I should not self diagnose (learned that at 17 when i thought i had HIV for a year) but this is much different and I am officially having a mental breakdown. I am so scared and I dont think I can survive any of this. I am in deep depression which I am taking meds for but I have had very deep and disturbing thoughts. My family is at a loss and at times I dont even want to wake up. I know that this is all very dramatic and it may sound totally crazy but this is the way I feel and I figure if I cant get support it will be here because I honestly have nowhere else to go. Thank you all for listening and offering much needed advice and support!
My symptoms:
- In April I started to have D sometimes explosive (I got really concerned)
-D settled and I went back to normal
- Mid May had 2 days of horrinble stomach cramping that led me to the emergency room I recieved morphine and was sent home
- Stomach pain dissapeared
A couple of days after I had this pressure feeling in my bottom that made me run to the bathroom only to find that I didnt have to go. It was then that I got really concerned.
-Memorial day weekend I saw blood in my stool it was a streak of blood
-next day there was blood mixed with the stool with a lot of mucus
-too scared to look in the toilet for blood but can feel all the mucus when I wipe
- A couple of days later I get intense joint pain in every joint in my body (This is when I become depressed)
- The pain had gotten so bad i was convinved I had RA
-eye pain that sent me to the eye doctor it was at the back of my eyes and it was intense. This lasted for about
two weeks ( normal test) It was so bad I couldnt even look at the sun
-facial pain and ear pain- having it at the moment
-When I go the bathroom I feel like I have not completly emptied my bowels
-Fatigue that is absolutley insane- I have never felt so tired
- I had tests done for every auto immune disease RA, lupus, and chrons.
-My doctor told me it was all in my head as he did all tests including mulitple blood tests to check for inflamation which have come back negative
-Colonoscopy and endoscopy normal
-I was in so much pain from my joints I begged my GP to put me on a trial of steroids
- Stomach cramping returns this week and it is really affecting me
-I watch everything that I eat and I am on a strict diet since the D started.
-The last two days since taking the steroids my stomach and joint pain have settled but my butt oh how I hate my butt right now. I feel that same pressure but now with a lil but of pain, it feels like it is on fire! the pain has even spread to my pelvic area. My butt also feels like it spasms and I also feel pain in my tailbone When I go the bathroom it feels like its inflamed and it hurts to go. I called my doc (for the 113th time this month) and she told me to stop googling and perscribed a steroid suppository. I read that that can only make a fistula worst and so I did not take it. I want to try anything and everything to alleviate this but i dont want to excacerbate the issue. My doc is so nice and so understanding and I know how hard it must be to have someone like me and not know whats wrong after every possible test. I have read that it can take years to get a diagnosis of chrons and have also read that people develop fistulas very early on in the disease. My doctor i even willing to put me on sulpha meds after the steroids because she feels something autoimmune is going on. My other doctors including GI think Iam a total nut case because all tests come back normal. That felt good to get that off my chest! That is my story and chrons is my theory. I hope someone could offer some advice or some kind of guidance because right now I am at the edge of losing it.
Post Edited (Dazey88) : 6/24/2011 11:34:02 PM (GMT-6)