HealingWell
Search Close Search
☰

The three types of Crohn's.

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 8/10/2011 3:43 PM (GMT 0)
While doing my reading in the past few weeks I ran across something that catagorized Crohn's into three types, Inflammatory, Fistulizing, and Stricturing. It got me a bit curious and was wondering what peoples experiences are. My GI hasn't really defined my Crohns other than Illeocolitis. I have narrowing near the TI but it isn't problematic for me at the time.

Would that make you more prone to certain complications and less likely to have others?

Posted 8/10/2011 3:55 PM (GMT 0)
Mine has never been labeled, but I've never had a fistula or stricture.

Posted 8/10/2011 4:07 PM (GMT 0)
I've never had a fistula or stricture either bu when my GI dx me she said it was inflammatory..probarbly caused by bacteria and maybe genetic factor also
Posted 8/10/2011 4:20 PM (GMT 0)
I was diagnosed with stricturing when I first got sick. Had a nice stricture in June of last year that caused me a ton of trouble. Then I developed an enterocutaneous fistula. So now I have fistulazing. Just had surgery to remove the fistula/stricture. Hopefully next time it comes back, it'll pick one and stay with it. eyes
Posted 8/10/2011 5:34 PM (GMT 0)
I have read about the 3 types of Crohn's for years. I don't think I have ever been told what "type" mine is either. I have had fistulas and fissures, strictures and inflammation over the course of my 23 years with this DD so do I have all 3 types, or does it change? I think it is just one more thing they really don't understand about Crohn's.
Posted 8/10/2011 5:43 PM (GMT 0)
Mine is inflammatory, due to the fact that I thankfully have never had a fistula or a stricture....keep in mind though, that doesn't mean I never will cuz with CD anything is possible.


There are also 5 sub-types of CD which explains the different areas CD affects in the GI tract and what they are called generally by docs to differentiate between the different areas CD can affect....crohn's colitis for example is when CD mainly affects the colon, skin issues are more common with crohn's colitis and proctitis (rectal inflammation) as well as perianal crohn's skin tags are also more common with crohn's colitis....you can google "5 sub-typed of crohn's disease to get the list and the common issues that generally occur (fistula, obstruction/stricture ect).
Posted 8/10/2011 6:01 PM (GMT 0)
I developed a fistula before I was even diagnosed with Crohn's.  My doc has never really labeled mine, but I think I have fistulizating Crohn's based on my symptoms.  So far I only have it in my descending colon and my fistula is a vaginal-rectal fistula.
Posted 8/10/2011 6:28 PM (GMT 0)
Mine is inflammatory and stricturing, oh jpy to have two but luckily (fingers crossed and not tempting fate) not had a fistula.
Posted 8/10/2011 8:56 PM (GMT 0)
haha, I would say mine is all three
Posted 8/10/2011 9:46 PM (GMT 0)
PB4 is correct there are 5 types of Crohns, see below:

The five types of Crohn's disease with their symptoms are:

Ileocolitis: Ileocolitis is the most common type of Crohn's disease. It affects the small intestine, known as the ileum, and the colon. People who have ileocolitis experience considerable weight loss, diarrhea, and cramping or pain in the middle or lower right part of the abdomen.

Ileitis: This type of Crohn's disease affects the ileum. Symptoms are the same as those for ileocolitis. In addition, fistulas, or inflammatory abscesses, may form in the lower right section of the abdomen.

Gastroduodenal Crohn's disease: This form of Crohn's disease involves the stomach and duodenum, which is the first part of the small intestine. People with this type of Crohn's disease suffer nausea, weight loss, and loss of appetite. In addition, if the narrow segments of bowel are obstructed, they experience vomiting.

Jejunoileitis: This form of the disease affects the jejunum, which is the upper half of the small intestine. It causes areas of inflammation. Symptoms include cramps after meals, the formation of fistulas, diarrhea, and abdominal pain that can become intense.

Crohn's (granulomatous) colitis: This form of Crohn's disease involves only the colon. Symptoms include skin lesions, joint pains, diarrhea, rectal bleeding, and the formation of ulcers, fistulas, and abscesses around the anus.
There can be overlap between these types of Crohn's disease. Some people have more than one area of the digestive tract affected.

I was diagnosed with Ileocolitis. But mine is the stricturing type. I have had to have 2 resections due to obstructions. God willing won't have to have any more repeats.

Hugs
Gail*Nanners*
Posted 8/11/2011 11:37 AM (GMT 0)
Hi! I was labeled as ileitis from the start, but I did not have a fistula until over 10 years past dx. Unfortunately, I think some docs pick ileocolitis or ileitis interchangeably. I also noticed that the dx does not always match the location of the fistula. I think the fistulas have minds of their own personally----yes, I have made them their own life form as that was what I thought when i had mine.
Posted 8/11/2011 12:57 PM (GMT 0)
The next time your GI scripts a procedure or lab work for Crohn's take a good look at the script for the Dx code number, then look it up on the web.

Search ICD-10 Codes

http://apps.who.int/classifications/apps/icd/icd10online/?gi30.htm+i471

Search ICD-9 Codes

http://www.icd9data.com/2010/Volume1/390-459/420-429/427/427.89.htm

Sometimes they can get away w/o indicating the code and let the performing facililty list the code on the results report. There has to be a code listed in order to get insurance reimbursement.

IF I remember correctly all Crohn's Dx's begin w/559.

Posted 8/11/2011 1:35 PM (GMT 0)
My GI told me that crohns is such a strange illness that they are not sure that it is not several different diseases all placed in the same category . Like Fibromialgia , the ruling out of other known illnesses is just as important to a DX. There are still many things about the human body they just dont know .
Posted 8/11/2011 3:47 PM (GMT 0)
I have all three things you mention. ha
✚ New Topic ✚ Reply