I hope someone will see my reply since it looks like the last post was 2 years ago :(
I am a 29 year old female and have been on Remicade since October 2010 for ulcerative colitis after trying pretty much every other medication possible, including Humira, with no success. The Remicade seemed to work immediately for my colitis...I felt wonderful! It wasn't long before the joint pain started. My doc referred me to a Rheumatologist thinking it could be RA. They tested me for pretty much everything and just said it was associated with IBD. They increased my dosage to the max and increased infusions to every 4 weeks instead of the normal every 8 weeks. Like a lot of you, my pain would go away immediately after an infusion and come back with a vengeance right about the time I was due for another.
This has been a battle for the last 8 months and has basically crippled me. I am currently on a short-term medical leave from work (I am an esthetician and work with my hands all day). I finally saw a senior Rheumy who finally agreed with me that this is definitely drug-induced from the Remicade. He prescribed Prednisone to jump start the process, but now I am terrified that this is here to stay.
I would love to hear from some of you now and see how things have come along. I hope to hear good news!
*I made you a new post as you are more likely to get more responses by starting a new post vs posting on an old post*