Could u share which drug/diet/method helped you get into remission?

check out my signature below...

I take Asacol as my maintenance med, its one of the mildest meds out there. I also follow a modified low residue diet and it works well for me. I do not believe anyone should be med free with this disease at anytime. I had a doc tell me I no longer needed meds after my first resection, and ended up having another resection only 3 years later. This is a chronic and incurable bowel disease that really should be treated at all times. The inflammation and damage can occur on a microscopic level without you even knowing it, that happened to me and many others on this forum. Good luck!

Thanks, all of you.

I'm starting to think that the new air freshener that I've started using 3 days ago might be the cause because I also have a low grade fever/headache. Usually, I get slightly nauseated from smelling strong perfumes/colognes. Have bad reactions to synthetically created scents.

Cfs,

I hope your son stays well on the low doses.

In the past, I couldn't tolerate Azathioprine due to severe nausea. Wasn't able to eat anything while on it. And vomited a handful of times on it.

I really like my new GI. I only met him 3 months ago. Unfortunately, he doesn't accept my insurance so I pay out of my pocket but he's really open minded and gave me the script for LDN during the second appointment.

It's funny how very trivial things can affect my body and I'm amazed at how sensitive my body is. Adjusting is still pretty hard and sometimes I wonder whether it'd better living in some Amish town with no electricity.

Prior to being diagnosed with CD, I thought I had developed food allergies. Sometimes I felt completely fine after eating and sometimes I would be in the bathroom for hours and hours and hours. I started keeping a food journal to document each time I had an "episode" and to record what I had eaten leading up to it. The picture became so clear for me.....there are just certain things I absolutely cannot eat, ever, even if I'm feeling fabulous. The silliest of things too.......whoda thunk something like a tiny piece of sugarless gum could wreak such havoc on one's bowel? For me, it does! Along with a huge laundry list of other things, such as:

MSG along with any other type of additive/preservative (Doritos, for example, are loaded with them. They used to be my fav! Oh the cravings I have......but I just can't eat them anymore)

Artificial sweeteners (particularly the one in the yellow packet)

Soy (in any way, shape or form)

High Fructose Corn Syrup

Caramel Coloring

Arugula (salad green)

Nuts (particularly peanuts)

I now find myself scrutinizing the labels on everything I buy at the grocery store. One tiny ingredient can send me into a huge intestinal episode immediately upon consuming it. This makes it very difficult to eat out.....and I have barely escaped some extremely embarrassing moments.

A food journal may help you pinpoint what, if anything, is irritating your bowel. Also, Probies rock! They are a staple in my daily routine, along with a multi-vitamin, Calcium +D and Iron.

Good luck and I hope you feel better really soon!

Post Edited (PinkFlipFlops) : 9/1/2011 12:46:15 PM (GMT-6)

Thank you for all your inputs. ;]

I cannot agree more with all the things that you guys have said. As you can see in my signature, I have a really strict diet usually and it's like a must thing to keep up to do what I want to do.

I eat Subway sandwiches occasionally like once every two weeks, because Subway states that all of their meats do not contain MSG, as their website has stated. However, some contain some flavorings but if it does, it says right on the menu.

Unlike Taco bells and other fast food chains, I've been alright with subway sandwiches and ofc, I get no sauce/dressings.

Pb4,
I have severe adverse reactions to Asacol, too. The symptoms are high fever, liquidy D with excruciating gut ripping pain.

PinkFlipFlops,
I, too, cannot have any of those artificial ingredients. I couldn't gain a single POUND from drinking Ensure. It contains a lot of rubbish stuff like HFS and maltodextrin. And it caused indigestion and bloating for me.

I've gained about 20 lbs from just eating 4-5 meals a day, mostly composed of boiled meat + rice + rice pasta + avocados. And this worked even though I was running close to 4 miles a day too lol.

Noories,
I'll stick with my self cooked meals until things calm down. You might be right. Perhaps got the MSG containing meat. Who knows.


Until I was hit hard with CD, my belief was that what traps and hinders people is nothing other than the thoughts they give rise to. But the reality is that preservative/additive contain food bother me.

My uncle once said, if you take your meds thinking that it will cure you then it will do the trick. Wanting this placebo effect to take place, I took the Asacol again but guess what, I nearly died lol.

Anyways, we're all different.

Hi there, May god give all members with crohns a healthy life that they can enjoy.
I have been on Azathioprine since may started of from 25mg, 50mg,75mg and now on 100mg I am doing well no side affects the only 1 is hair loss but that can even be due to iron defiecency, otherwise i feel good.
Wish all goes well for you.