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REMISSION Finally after six miserable years....

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Crohn's Disease
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Posted 9/5/2011 9:55 PM (GMT 0)
30 days of 100% health. I forgot how it felt to be normal.

I was at the end of my rope Failed EVERY drug under the sun and just quit! I said screw it. My MD wanted to increase my Imuran again to 300 mg and I wasnt going there.

Im not 100% sure what the right combination is but it does not include gluten. I started a new job which was very stressful. During the first week  of training I did not have time for lunch breaks. The guy training me said you better pack some Protien bars with you. I only had very small breaks between meetings. Maybe 5 mintues each. So I packed these bars called LARAR bars and canned fruit these were the only "bars" without granola, oats, etc. They were also the cheapest.  Thats literly all I ate for 7 days! plus some egges here and there in the morning.

After a week I noticed I was only having 2-3 BM's a day........I continued on this crapy food till now and now I feel like I never had CD..........Kinda weird but sticking with it!!

Im strickly Gluten free and I can eat RAW veggies, soda, salad, everything!!! oh excepy milk still upsets my stomach.

I have been tested for Celiac in the past and was negative. I also tried the makers diet and SCD diet with poor results. I dont know why GF is working for me this time.

Please wish me luck.

 

Posted 9/5/2011 10:02 PM (GMT 0)
Great news! i gave my GI the finger after every medication combo backfired on me! i've been med-free for 1.5 years now and in full remission! ps: just keep a food journal just in case your soda or something might mess with you.

good luck!
Posted 9/5/2011 10:16 PM (GMT 0)

noories said...
Great news! i gave my GI the finger after every medication combo backfired on me! i've been med-free for 1.5 years now and in full remission! ps: just keep a food journal just in case your soda or something might mess with you.

good luck!

 

 

What are you doing to remain in remission?

Thanks

 

Posted 9/5/2011 10:36 PM (GMT 0)
Im not doing anything special and not following a specific diet. the only thing is that i dont overdo it. so i dont eat fast food, soda, creamy sauces, cheesy pizzas and i cook mostly at home. i take probiotics, aloe vera gel that i add in the morning to my juice or smooth, l-glutamine to help restore gut flora and every i have omega 3s. (check out my first post and comments. i have more details on it if you can get to it).

but seriously, nothing routine. i have no stresses other than school and im really lucky to have a good support system.

my naturopathic doctors have always told me to have a food journal as well as a poo journal to know exactly what's youre ingesting and at what time. that was the best thing i've done because it really makes your conscious of your eating habits. 1 word of advice: remember, you're not a healthy person so dont go nuts over cravings and junk, they do eventually bite back :P
Posted 9/6/2011 1:33 AM (GMT 0)
Congrats on feeling better.

My brother loves Lara bars and actually has mentioned a couple times he thought they would be something good for me to take to work or travel with. I haven't tried them yet.

I noticed they have a lot of flavors. Any recommendations on flavors you really liked?
Posted 9/6/2011 2:08 AM (GMT 0)
To be honest none of them are great. It def. takes a while to get used to the taste. I think they are all mostly Dates........I like them all except the cherry pie flavored.
Posted 9/6/2011 9:55 AM (GMT 0)
Fantastic! There is noting better than finding out what your guts need to stay healthy and in remission
YEA!!
David
Posted 9/6/2011 6:39 PM (GMT 0)
I am actually on day 11 of the GF diet plan and looked over SCD which looked even more restrictive. I still am battling more IBS symtoms without an inflammation outburst and am on predisone. I have noticed on gluten free so far the bloating, gas, and oily floating stuff is gone. What are you noticing the differences between SCD and gluten free are for you?
Cindy
Posted 9/19/2011 8:48 PM (GMT 0)
Cindy. I'm sorry I just realize you posted. I will answer your questions in a few hrs. I just came to update. Had a colonoscopy today.

No active disease! The terminal ileum is as narrow as a pencil due to scar tissue. Doc says he can dilate with a scope or leave it if it's not problematic. I have had pain when i eat red meat. I will stick with chicken and rice an be fine!!!!
Posted 9/19/2011 10:48 PM (GMT 0)
I tried SCD while flaring. I think that was the biggest issue. It was possibly years ago but all I remember is the food I was allowed to eat was very hard on my inflamed bowel ie. Almond flour, butter, raw almonds, etc. It was hard to make the transition but maybe I took the wrong approach. I really can't remember ....sorry
Posted 9/19/2011 11:10 PM (GMT 0)
noories have you had surgery before, regarding your cd? alot of times without surgery, means cd isn't as bad as people who have had surgery, because maybe diet alone isn't enough to control the disease. redspot just to let you know I had that one year, due to what they said was scar tissue, but I think it was disease, that got to inflammed and it made my TI so swollen, I wasn't on any med's except pain med's, this was 1989 in canada, they didn't offer me any med's, and I had not been on med's. I had cd since 1970, but anyway I was lucky I didn't perferforate, because it was so narrow, and I kept on having mini blockages, that were so painful, I went go thru those every night, so I ate pain med's like candy, I would never do that again, because mine was like pencil head opening as well. But my business was horse racing(horse jockey), and I kept it closeted for 16 years, I didn't let anybody know, fear i wouldn't be hired, who wants to hire maybe sick jockey, when there is 20 other jocks that weren't sick, but I was in remission for many of those years.

AG
Posted 9/19/2011 11:51 PM (GMT 0)
Congrats on your remission!!! I've already been told I would likely never reach full remission, here I am 20 yrs later and still no full remission but I'll never forget what normal felt like.
Posted 9/20/2011 2:07 AM (GMT 0)
I will live off ensure the rest of my life before I let them cut on me again. My CD became 90% worse after my resection.
Posted 5/11/2012 2:30 AM (GMT 0)
Hey All,

Still in remission!! I am back to normal, bm's once a day sometimes I even go a day without one.

Anyone else tried gluten free or Larabars? I cant believe this was the magic bullet for me. After being on every drug under the sun and posioning my body.
GLUTEN STINKS!!!!!!!
Posted 5/12/2012 4:01 PM (GMT 0)
IMO I believe that everyone who is diagnosed with gastro problems whether Crohn's, UC, IBS, or whatever, should try to eat gluten-free for 2-3 weeks. I bet many would find that their symptoms lessen and less medication is necessary.
Posted 5/12/2012 10:15 PM (GMT 0)
Great news! I hope you will continue to have success. I'll look into those protein bars. I find I do better with less gluten. I should try 100% GF again, see if it helps more this time. Thanks for sharing.
Posted 5/13/2012 7:35 PM (GMT 0)
redspot I've been gluten-free for almost a year and I agree with you, it has helped a lot. I like KIND bars. The mushiness of larabars doesn't suit me, but I'm glad you like them!
Posted 5/13/2012 10:24 PM (GMT 0)
Were you ever screened for Coeliac Disease? It's certainly not impossible to have both that and Crohn's. At any rate, congratulations on a year's remission!
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