Small fiber neuropathy and CD

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poobah

Regular Member

Joined : Dec 2006

Posts : 136

Posted 7/2/2011 4:27 PM (GMT 0)

Anyone have this?

If you have it, did it respond to Anti-TNF alpha medications?

thanks!

antsawol

Regular Member

Joined : Nov 2008

Posts : 20

Posted 9/9/2011 1:30 AM (GMT 0)

I have had UC since about 1995 and Humira in 2008 caused me to have SFN a few drs say, or full body CRPS a few other Drs say. My UC did get better for almost a year. I'll take any UC flair up compared to the way my body constantly feels now. I'm disabled now because of it, it ruined my life.

stripey

Veteran Member

Joined : Feb 2011

Posts : 1059

Posted 9/9/2011 6:24 PM (GMT 0)

I have CD and for a bad flare end of last year I was advised to start Humira. I stopped it 6 months later as it has given me horrendous nerve/joint/muscle pain that I now have to take ammitriptalyne and codeine and also now on fentanyl patches just so I can get to work - even this doesn't get rid of pain but allows me to move. If symptoms haven't gone by end of this month, which will have been 5 months since they started and 2 1/2 months since I stopped Humira then they are most likely permanent and will have tests for Lupus and something else that I can't remember name of.

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