HealingWell
Search Close Search
☰

do you work?

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
1 2
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/15/2011 4:20 AM (GMT 0)
we havn't gotten any details yet. soon to come I guess. I can't get too freaked out because i don't have an option so whatever the case may be i'll have to make the best of it. i always wonder about other people in the office...you start to see the same people in the bathroom (recognize shoes etc...) darn we crohnies are weird! haha...and there's always the same mysterious sports section folded the exact same way in the same stall...
Posted 9/15/2011 6:38 AM (GMT 0)
I have been on permanent disability for over two years. I worked the first 12 years I had UC as my disease was fairly mild, just needed a handful of sick days a year to get by. All things changed in 2006 when my disease when up down and sideways, and I've been on and off work since. Ironically, when I started what was my final leave it was because my HR rep called me to ask (in a way that was telling me) "you really shouldn't be at work, should you?" During my on/off work phase over a two-year period I was able to collect full pay from my employer through our short term disability. That converted to long term after 16 weeks of continual time off, and eventually I had to apply to the federal gov't for disability through CPP (Canada Pension Plan) also.
Posted 9/15/2011 12:16 PM (GMT 0)
I work 40 hrs a week as well, in the insurance field.  Have been working for the same company 18 years.  I have missed work 3 times (3 hospital stays), and occasionally 1-2 days when I'm not feeling well.

Lately it is starting to get harder and harder to sit in an office for so many hours, and I would be really grateful if I didn't work.  But, I need my insurance, plus I want to pay off a loan I have, so I'm being patient....

I like working, but at this point, the ideal would be 4 hrs a day, and then go home and have a nap....

I wish I was healthy and could work for 20 hrs.....

Christina

Posted 9/15/2011 9:51 PM (GMT 0)
I have had crohn's since I was 25 and working since I was 16. I work 40 hours a week with no real problem. Every so often I have to call off for my crohn's but my crohn's (knock on wood) is pretty stable. I have been on Cimzia for 2 years now and no major issues. Hopefull I can continue to work for many more years down the road.
Posted 9/16/2011 4:19 AM (GMT 0)
my body has been so run down- tired lately in the afternoons i'm finding it very hard to stay awake. i literally ave to fight to stay awake in my office. sometimes i wish the window in my office had a shade so i could close it and the door and go to sleep for a while.
Posted 9/16/2011 4:25 AM (GMT 0)
I retired because I had stress from taking three buses to work. This affected my health in relation to the Crohns.
Posted 9/16/2011 5:44 AM (GMT 0)
i'd love to be able to retire!
Posted 9/16/2011 9:42 AM (GMT 0)
I stopped working about 5 years ago but it was due to my arthritis...i do miss it at times espeically the craic(banter) i had with my colleagues...i don't think my Crohn's as it is at the moment would prevent me from working.
Posted 9/16/2011 3:41 PM (GMT 0)
I work a little still, but I'm on ssdi, more from what surgery has done to me, short bowel syndrome, no Co. would or could hire me for all the things I would request. we have art biz that we work out of our home, we do art shows and have website. But I'm home, and if I don't feel like doing anything I won't, or if I'm to fatigued feeling, I'll work for a couple of hours and then quit, close up shop, come in, take shower, pain med if needed and watch a darn movie. As long as we make all of our monthly expenses, I'm good. I've had cd for going on 41 yr's. I was horse jockey as well for 18 yr's with this DD, but I had to keep it in the closet the whole time I rode, evan with a resection. closeted that as well. I was more or less in remission, until last 2 yr's of riding career. that job, there doesn't get a job with more stress than that one. One yr. I kept a calender and wrote down everyday, including morning workouts and racing, I put on 35,000 miles on top of a horse in one season in canada, and that is 8 1/2 months.

AG
Posted 9/16/2011 8:13 PM (GMT 0)
I work 40+ hours per week and travel all over. I have little choice. My wife has never worked and with 3 kids who I want to give a better life than I had to, I need to work and I need to make pretty good cash.

However, in 3 years the baby will have her under grad degree and then my monetary responsibilities to children pretty much comes to a close. Then I really might seriously slow down. It has been a long grind.

Dave

Posted 9/16/2011 8:46 PM (GMT 0)
Haven't worked in 5 years. Ever since I had that major bleed and flare in 2006. The stress from working alone seems to always throw me in to a flare. So does having crazy hours, and getting up too early. I just don't do well with my Crohn's. I believe I "could" work, but I'd be a lot more sicker, and probably would have moved on to strong treatments by now. I'm lucky my husband can support our family without my working. I'm able to focus on my family, and myself. Which helps. I learned this all hasn't changed much last month when I had jury duty. It's sad for me though, I always thought I'd work through out my life. Maybe again someday.
✚ New Topic ✚ Reply
12