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Crohn's Disease
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Posted 10/8/2011 11:36 PM (GMT 0)
My goodness this stuff gets really old sometimes doesn't it? I've felt yucky all day, pain, fevers, joint pain, I'm
beginning to wonder why I even bothered with surgery. It's been 3 months and I still feel the same as I did
before it was done.
I sit here racking my brain as to whether my symptoms could be due to my pancreas problems and not CD,
but the pain is in the wrong place... Oh well there's always tomorrow. Sorry, but I'm having a pity party!!
Posted 10/9/2011 1:33 AM (GMT 0)
Just want to give you a cyber hug. (((((((Vicky)))))))
Posted 10/9/2011 1:44 AM (GMT 0)
Awww thanks Roni.
Posted 10/9/2011 1:08 PM (GMT 0)
Hope you wake up this morning and feel bit better. (((((HUGS)))))
Posted 10/9/2011 2:17 PM (GMT 0)
Hoping today is a better day. I am so sorry they can't find any answers for you. Hugs!
Posted 10/9/2011 3:40 PM (GMT 0)
Thanks guys, but so far today, I'm feeling much the same as yesterday :(
Posted 10/9/2011 4:49 PM (GMT 0)
Sometime life sucks!
Has been there rolleyes done the pity party and sometimes it helps, at least a litle while, just getting it of the chest.
Then just for a second someting happens and you feel in some way a little bit better again.
Hope you´ll soon be there.

Big hug!
Posted 10/9/2011 9:04 PM (GMT 0)
Sorry you are having such a rough time, Vicky. Have you had a medicine review done lately? Maybe there's something they're missing that at least would make you more comfortable. Hope things improve for you.
Posted 10/9/2011 9:50 PM (GMT 0)
((((Vicky))))
Posted 10/9/2011 9:54 PM (GMT 0)
OTD, I have to see the GI next Thursday. Last time I saw her she ordered an MRI enterography, but I asked
to pass on that because it involves drinking quite a lot of barium, and I just knew I would throw it up back
at them, she agreed, but I don't think I'll be allowed to get away with much this time:(
Posted 10/9/2011 10:12 PM (GMT 0)
Sorry you are feeling so awful. It's depressing to finally give in to a surgery (and hope you will get some relief) only to get right back to where you started in a short time.

Wonder if you could ask your doc about the Metamucil prep for the MRI? That's all I did, then they injected me with contrast through an IV. They got great pictures.

Good luck to you, and hang in there.
Posted 10/9/2011 10:32 PM (GMT 0)
Juliet, they didn't ask me to do a prep, but the 2 times I've had the MRE they make me drink 4 bottles of
diluted barium, it's not that bad tasting it's the quantity, especially when you don't feel good to start with.
After drinking that, they put glucagon in my IV, then contrast, all in all the test is not bad but long, and even
after having this supposed fail safe test, the results came back with partial obstruction due to a stricture. So,
they decided to have me in a week later to do a balloon endoscopy to dilate the stricture. While doing that,
they found it wasn't a stricture but severe inflammation:( Sooooo a week following that was booked in for
my third resection. After all that I'm a little skeptical with these very expensive tests!!

Sorry about that vent, but I'm feeling a little ticked off right now, because everyone was so sure that this surgery
would work :(
Posted 10/10/2011 12:47 AM (GMT 0)
Vicky,
If they had to follow the MRE last time with a scope, why not just do a scope this time and save you from drinking the MRE barium? Or do they not feel you're up to doing a colonoscopy prep?

I also wonder if you've developed adhesions after surgery that are adding to your symptoms. I had surgery in July and exactly a month after surgery already had an obstruction due to adhesions. It's frustrating...because there's nothing they can do about scar tissue.

What meds are you on, btw?

Juliet-The barium for MRE has stuff in it (methylcellulose) that expands your intestines so it is easier to see more detail of the intestines on the MRI images. If you don't drink the barium, it's technically not an MRE, it would just be an MRI of your abdomen. As with any imaging test, having barium and/or IV contrast enhances the images and makes it easier to see abnormalities.
Posted 10/10/2011 1:05 AM (GMT 0)
Becky, the doc said I would need a colonoscopy within 6 months, so I'm gonna ask for it early, it will
also help to get it done before next years ins. deductible cuts in.

I'm taking 5 mgs of pred as a maintenance dose, asacol, and pain meds. I can't have anything else due
to severe reactions. So I'm darned it I do and darned if I don't.
Posted 10/10/2011 2:58 AM (GMT 0)
Ugh I completely understand, but for a different reason. I've been seeing my GI and GYN lately because of painful periods and because I can't take hormones I pretty much can only treat the symptoms, not prevent them. I also have a lot of problems with scar tissue causing obstructions and there's nothing that can be done for that...I feel like at least if there was something that I could try, meds to take, or options of treatment, it would make it easier mentally.

Many many hugs to you. I know you're so over this and I wish there were answers or help to get you feeling better.
Posted 10/10/2011 3:07 AM (GMT 0)
I am so sorry that you are having a really rough go. I truly hope that things will get figured out and you will be on the road to recovery. Many hugs to you!

Vicki
Posted 10/10/2011 1:47 PM (GMT 0)
Thanks guys, it really does help when people know how you're feeling!
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