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Crohn's Disease
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Posted 10/22/2011 6:34 AM (GMT 0)
Im 18 year old was diagnosed with crohns feburary 2011 i never had any medical history but out of no where i started having to many bowel movements and started losing weight i went from 160 to i 35 within weeks, i had to quit my job cause i though picking up stuff was hurting my stomach i had to drop every class in college because i was going in and out of the hospital at times i still wanna think that i just had an ulcer and the clonoscopy and endoscopy caused more ulcers in my stomach and they just named it crohns disease im on imurun 50mg twice a day pentasa 3 times a day 500mg and omeparazole once daily. Honestly i though i might have a chance to be cured after depressing 6 monthes finally in august i was feeling better strted having normal bowel movements no pain eating verywell and gaingweight but since the start of october agian the same symptoms my stomach hurts so bad at times i wanna cry even drinking water feels like needels are in my abdominal stomach and lower belly every night i get a high fever and since 10 days my left eye have redness but im just to tired to go the doctor wait for hours and they just send u to another place. Be4 this all happened i use to be so messed up i did so many bad stuff always coming home drunk and high at 4 a.m, always arguing with my parents , getting arrested n now i think probably this is my punishment and at time when im having so much pain i try to tell my self i am gonna end up in hell so get use to it this is just a sample of tht pain and my parents always blame liquor and drugs for my disease so they tell me i deserved it i feel like a burden whos helpless and always regreting about how i messed up my life.

*Had to edit your post a little as this is a family friendly forum*

Post Edited By Moderator (Nanners) : 10/22/2011 8:03:44 AM (GMT-6)

Posted 10/22/2011 8:30 AM (GMT 0)
It´s never to late getting your life on the right track again.
Your disease can´t be explained by your drinking or using of drugs! No one knows the exact cause of this disease yet. there are just severel theories around it. When having this disease you need to go to the doc on an of even if you don´t want to. Many of us get´s really down/depressed when getting a flare. Your not alone. Hang in there , go to the GI and get meds and when you get better yo really hava an opportunity to start all over.

Hang in there!
Posted 10/22/2011 9:08 AM (GMT 0)
 

Hi,

I can hear your pain and desperation but let us get one thing straight, you did not cause this by doing so much 'bad stuff' this isn't payback for anything you have done so get that idea right out of your head!! You could have led a quiet virtuous life (;) and still ended up where you are right now and I don't think your parents are helping you in the slightest!

As for the disease itself, unfortunately there isn't a cure(currently) but that isn't to say that things will not stabilise and allow you to live a near 'normal' life. Sometimes drug combinations are a bit hit and miss and what works for one may not work for another but in time they will find a drug/drug combination that gives you optimum relief and will allow you to get your life back.

My son is 18 and has crohn's and after trial and error the drugs he is on have got him in a good place. Yes there are the odd days when he doesn't feel 100 % but on the whole life is normal-he parties and drinks, plays sport etc

As previous poster said Hang in there :) 

Posted 10/22/2011 11:46 AM (GMT 0)
Hi, I am so sorry you are feeling this way. Please know that this disease can go into remission! Hold on for that day. It's not a punishment, it is just a disease in the lottery that is life. It must be very difficult getting a diagnosis at your age, but that can't be changed. Hang in until you feel better. I was diagnosed with Crohn's at 40 years old, stayed real sick for almost 2 years, then had 8 years (almost) totally pain free!! I too am having real bad days at this time, but I (mostly) keep holding on to the hope that better days are coming. Wishing you healing - body and mind, you definitely did not cause this yourself!! I hope you come to believe that. The stuff you did, many others do - and they don't get crohns.
NDBC
Posted 10/22/2011 12:24 PM (GMT 0)
Hi, I agree with what everyone else says...you did not cause this!! The docs didn't cause it either...you don't get ulcers from having a colonoscopy and the other tests. You are very young with your whole life in front of you. Keep working with your docs to find a good combo of meds and diet. Hopefully you'll go into remission, which means you may one day feel totally normal again. And who know, one day, we might find a cure to this stupid disease. I'm so sorry you feel so sick, but please don't give up. Write to us here whenever you want and well try to support you. Tell your parents to go on the crohn's website at ccfa.org so they can read for themselves that you didn't cause this! Best wishes to you
Posted 10/22/2011 12:48 PM (GMT 0)
As someone who led a quiet virtuous life (I was that kid all throughout hs and college). I've never really drank alcohol much (and don't drink it at all now), I have never used any drugs other than prescribed, I've never broken the law (unless you count the ticket I got once!), graduated with honors, blah blah blah.

Essentially, I did all the so-called "good" things that you're supposed to do, and look at me now. I have Crohns.

It's not what you did. It's just what happens sometimes. Does it suck? Oh yeah. But, I think you need to consider seeing a therapist who specializes in chronic illness. It can help quite a bit sometimes. I've seen a therapist on and off since my diagnosis, and will probably need occasional visits for the rest of my life. It's HARD. It doesn't get any easier, because the fight is constantly changing. People rarely stay on the same meds for more than a few years, we have to deal with colonoscopies (I would rather have a root canal, honestly), and I see more doctors than my 80-something year old grandma! But, you can't let it define your life.

Good luck :)
Posted 10/22/2011 2:09 PM (GMT 0)
Hello and welcome to Healingwell. I am sorry for the reason you have to be here though. First off, nothing you did caused you to become sick. I too was diagnosed when I was 18 years old. It was very traumatic for me too to go from feeling fine to being very sick in no time. I am now 54 yrs old and have had this disease for 36 years now.

There will be better days. Don't lose hope. Once you find the right treatment and diet for "you", you will start feeling better again. And when you are feeling better, do not stop taking your meds. This is a chronic and incurable disease which should be treated at all times. I made that mistake once and wound up having to have emergency surgery. And I don't want that to happen to you too.

Stay with us, and ask any and all questions you have. Someone is sure to have an experience to share. Hugs!
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