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Hysterectomy scheduled

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Crohn's Disease
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Posted 11/1/2011 5:21 PM (GMT 0)
I have had so many female issues most my life and recently have been getting steadily worse.  I finally decided to talk to a doctor about how bad it is and how much it affects my CD and makes life even more miserable during "that time".  So we are going to get the plumbing out.  It is scheduled for December 1 and I am really scared but also very much looking forward to the long term relief in hopes that by removing one part of the feel like crap equation that the other part will feel better too.  Any advice out there as to what I can expect?  My ovaries will be kept so just the uterus and cervex will be gone.
Posted 11/1/2011 6:04 PM (GMT 0)
Your not alone!!!

I have CD... then a year and half ago I felt i might have endometriosis... I finely found a doc who would do surgery to find out... last June we did the surgery to find out in fact I did have it... He cleaned me up but then with in a month I started getting cyst's on my ovary. So Oct 21st I went in for surgery to remove the cyst but he also had to take my ovary. The only reason he hasn't taken everything yet is because I'm 27 and we want a baby... but I'm still suffering and it's making the CD worse!!!
I've just gotten off of MTX to de tox to start trying for a baby but now my arthritis is back in full swing, swelling my fingers ankels, ect...

YOUR NOT ALONE!! I really hope this surgery helps you lead a healthier and happier life... I know what a horrible period can do to us. Being nevous is definitely a normal part of this surgery and don't forget you can get hormones pills to help balance everything out.

GOOD LUCK!!!!!!!! Keep us posted!

Posted 11/1/2011 6:26 PM (GMT 0)
When I was 36 I had a complete hysterectomy myself.  I was miserable for about 3 weeks out of every month.  At the time, I had had Crohns for a longtime but was in a long remission and didn't realize that the Crohns was the cause of most of my misery.  I had already had my children, so I finally said get it out of me.

I will tell you I had a complete hysterectomy and I am really glad that I did.  I take my little synthetic estrogen pill everynight and no more problems for me.  If you keep your ovaries you will still have the PMS type symptoms.  That was one big reason I did the complete vs the type you are having, is becuz I wanted those PMS symptoms gone too.  I had gone to a class about having hysterectomies and thats where I learned that if you keep the ovaries you still have the PMS symptoms becuz you still produce the progesterin which is the hormone that causes PMS.  Also, my Mom had a hysterectomy at about the same age and kept her ovaries and still went thru a painful menopause.  So I didn't want all that so I told them to take it all out.  I had no menopause issues at all.

Honestly, to me at least, it was the best decision I ever made.  All that misery was over for me.  Good luck with your surgery, I am sure you will be glad its done after you recover.  Hugs!

Posted 11/1/2011 8:39 PM (GMT 0)
Hi Mojowo

Have had a hysterectomi and later also taken away my ovaries bacause of cysts. I agree with Nanners without your ovaries you get hormones either by pills or plasters and it´s in a steady level. Of course I´m in my 40´s and have had my kids but I´ve been told many women mourns haven lost their uterus. Not me, It´s the best no bleedings no ups and downs no pain because of the menstrualcykles. In my case I didn´t have anyting to say on the matter it was nessesary to do these operations but i don´t regrett it. But have had these operations done one after another i´ve sldo had developed a lot of adherenses wich isn´t so good. So if you have anything to say in the matter I would also take the ovaries.

Good luck!
Posted 11/1/2011 9:15 PM (GMT 0)
I had my baby (she's 9 now OMG) and do not plan anymore.  Already had my tubes tied years ago.  I have been fearing the consequences of ovaries/no ovaries.  I have my pre op next week and will discuss that further with my doc.  I thank you for the replies and really am hopefull that having this done will improve my daily life.  As my good friend put it, this time the surgery is my choice in making an improvement and not an emergency or required (yet).  I think eventually at the rate I am going if I let this go it would eventually end up as emergant so better make the first move.  I think there would be a mourning period for me in a sence but not because of no more kids, I was already on that page, just kindof a loss of womanhood if you know what I mean.  I know rationally that I would still be all woman but a uterus is the very basic of being woman.  I just hope this can also make me a better wife too.  Feeling so poorly all the time is not been helpful in that department.  Has anyone had any adverse problems with sex afterwards?  Or did it make things better because the pain wasn't there anymore?  I am really worried about that changing even more to the negative than it already is.  Sorry I am rambling.  Just need to de-stress a little.
Posted 11/1/2011 10:43 PM (GMT 0)
Check out the hystersisters website. You can read about the positive and negative aspects. It's a great site full of information that may help you make your decision. hystersisters.com
Posted 11/1/2011 11:14 PM (GMT 0)
I had a hysterectomy and a resection together earlier this year. I had to stop having kids anyway because of all my health issues, which made pregnancy too high of a risk.
I had horrible painful periods with flooding. Boy, am I glad that's all over.
It turned out my uterus and fallopian tubes were very inflamed, which is also common in women with CD.
Let us know how you're doing afterward.

Best wishes for relief and a speedy recovery!
Posted 11/2/2011 8:40 AM (GMT 0)
I had a total abdominal hysterectomy (TAH) 6 years ago at the same time that I had a proctocolectomy w/permanent ileostomy surgery. My monthly cycles just exasperated all the Crohn's symptoms and I had many fistulas that were healed, but open and constantly draining. The plan was for me to go on HRT/hormone replacement therapy (I was 45 and no signs of menopause at all) for a time and then gradually taper off the hormones to try to ease into a natural menopause. Unfortunately, I developed a DVT (blood clot in leg) which led to 3 pulmonary emboli - which in turn led to my being diagnosed with a blood clotting disorder (lupus anticoagulant). I had no idea about the lupus anticoagulant prior the surgery/DVT/PE's. Because HRT carries a risk of blood clots, I was unable to even try it. I went into full menopause while I was still in hospital - it was truly awful, especially while trying to adjust to having an ileostomy and the butt wound that took 7 months to heal. My OB/GYN that did the hysterectomy told me it takes just 4 or 5 days for the body to be completely depleted of estrogen after a TAH without hormone replacement.

I relay this story as a caution that not everyone can take HRT after a TAH and to be prepared that immediate, full blown menopause is the result.
Posted 11/2/2011 10:31 AM (GMT 0)
Oh if only I could talk them into that for me. Good luck with your surgery. Do you mind if I ask if they will have to do an open incision? That's one of the reasons the gyn won't even consider one right now for me. With all my scare tissue it would have to be on open incision.
Posted 11/2/2011 2:18 PM (GMT 0)
Having the hysterectomny improved things for me in the sex department. I was so miserable all the time, plus you have 100% assurance no more pregnancies. Good luck!
Posted 11/2/2011 4:40 PM (GMT 0)
Lots to think about. They will be trying to do the daVinci method for my surgery which will be 5 small incisions with a "robotic" device controlled by the doctor but if my scar tissue becomes a problem then the plan b is full filet. I am hoping for the first one as it is less pain, less chance of infection, less bleeding, less healing time etc. Thank you all so much for all the replies. I do feel better and just need to decide on the ovaries now. I pray for a great outcome almost more for my loved ones so they can have mommy and wife back!! I will keep you all updated. Again THANK YOU!
Posted 11/2/2011 8:33 PM (GMT 0)
Even though some say you loose "the deep feeling" having sex. I haven´t notised any difference in that part but It´s lovely being able at any time without needing to think about any bleedings or pregnancy thoughts. So for me it´s been terrific.
Posted 11/2/2011 9:42 PM (GMT 0)
Oh my!
Posted 11/3/2011 7:10 PM (GMT 0)
blush

Roni Were I to frank? In that case I can take it away? Being a midwife I´m used to talk about this.
So I´m sorry if I make anyone embarressed.

rolleyes
Posted 11/3/2011 7:58 PM (GMT 0)
No, no, I was just kidding around. turn
You are a midwife? Wow—you go girl!
Posted 11/4/2011 5:39 PM (GMT 0)
I just want to be pain free or at least less pain. Honestly if this procedure lessens half my pain I would be estatic. And if it makes it easier in the bedroom even if reduced sensation I would be happy. Thanks for the info!
Posted 11/4/2011 5:41 PM (GMT 0)
BTW, did to to hystersisters.com and found wonderful information and a wonderful group of women in my same boat. Definitely feel much more confident.
Posted 11/4/2011 6:26 PM (GMT 0)
:-)
That´s good to hear. Wishing you good luck! Keep us posted how it went.
Posted 11/4/2011 7:43 PM (GMT 0)
Thank You!
Posted 10/31/2017 6:21 AM (GMT 0)
I had a hysterectomy done back in 2010 for crohns and it was the WORST decision I could have ever made. It really upsets me that so many woman are on here acting like it's a permanent "fix" and that it is no big deal, when it is a HUGE deal. In my case I had fibroids that were causing me pain during my monthly cycle and it was also causing my crohns to flare up. I had my uterus and cervix removed, this was done by the doctor without giving me other treatment options for my fibroids such as a mammectomy where they go in and just safely remove the fibroids while leaving your uterus intact. I wish I could turn back time and have had that done instead. The doctor never warned me about the long term affects of such a altering surgery. Our uterus is our mid-section support structure and seperates the bladder and bowel, when this is removed it has devastating affects to the skeletal structure. I feel like I have traded one problem for a host of others. My rib cage has dropped down towards my hips, and I am now an inch shorter! I no longer have a waste and gained 20-25 pounds because of this "butcher" surgery. I have chronic neck and back pain and my spine feels very compressed. I also have experienced bladder problems as well. Please do not look at this surgery as something as simple as taking out a tooth, this is a huge deal as it has to do with the removal of very important organ/organs that woman need for life to give them hormones and support for their skeletal structure and other organs.
Posted 10/31/2017 5:24 PM (GMT 0)
I had the robot method in 2013, removed everything besides 1 ovary. Had mild endometriosis, thought the hysterectomy was going to solve my severe pain but as I await crohns testing now, I suffer from the exact pain I had prior to my surgery. Its better to not deal with the cycles and don't have those periods that were sucking the life out of me, but it did not solve my initial problem. Wishing you a speedy recovery, and hystersisters was a excellent site when I was facing surgery and afterwards.
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