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Posted 10/30/2011 6:03 PM (GMT 0)
Hello!

I know many things have been written about that, so If I am too annoying, do not answer. If not, please answer me. I eat little carbs, I eat vegetables, cooked, some cheese, goat yogurt, white meat, salmon and fish, little red meat, liquid food, some rice and potato, but not much. Some apples, bananas. Drink anti-inflamatory tea and other antiINFlam.

What are your safest food? Are there diferent safe foods if you have ileo-colic or only CD in colon or CD in small bowel only?

I also know that for one something is safe, for another one troubles. I am aware.

So - your safest food? Any thoughts are most appreciated!

Happy Halloween!

Best!

YP9
Posted 10/30/2011 6:21 PM (GMT 0)
Hi YP9,
How have you been feeling? If I am in remission I can eat most things but still avoid popcorn, carbonated beverages and lettuce. I'm not a fan of high fat/fried foods, and I never eat fast food. I think I'm always a little lactose intolerant, so I drink lactose free milk and avoid ice cream. I can eat cheese but not a lot at a time. When I am sick and flaring like right now, it seems like everything is bugging me. I tend to stay on what I call my "white foods" diet....chicken, turkey, white rice, white pasta, potatoes, canned pears, white bread, etc. I'm considering going gluten free but haven't tried it yet. I'm not sure diet helps me that much but I keep trying! I have disease only in my ileum, but I have slow motility in my otherwise healthy colon. I hope this helps.
Posted 10/30/2011 7:34 PM (GMT 0)
Hello Gumby!

Nice to hear from you! Very nice! I sincerely hope that you do not have a lot of problems right now when in flare. And that things will come down to regular life for you!

As far as gluten goes - I am free of that stuff and happy about it, really. For over a half a year haven't tried it. Mybe once or twice a month some small snack of apple pie, and that is all.

Oh ... Gumby no significant changes. Haven't find a doc yet. I have natural antiinflams regular: Boswelia 3x300 mg,
black cumin oil, bee propolis 3x daily, vits B complex, C vit, broccoli in pills, probiotics in pill, a lot of antiinflamatory herbs like yarrow, chamomile, thyme, oregano, ... And diet. Sugar - who needs it? Uhggg! No fat, or little, trying coconut fat instead other, olive oil.


Most stupid change is: my hands used to become very very hot sometimes out of nowhere. Now, couple of months they are freezing cold instead. Out of nowhere! In room there is hot, hot but my hands are freezing! My!

No D, no C, sometimes more liquid or not so formed stoll, lost a little of weight more. Can not get it back.

How are U Gumby? Going to work or is it so hard that you are at home? How is it going?

Yes, it helps - you answer! Definitely! I also have more white diet, but no gluten. You should try it - gluten free I you will get enough cal then.

Gumby, many thanks again! Hope to hear from you more.

Best!

YP9
Posted 10/30/2011 7:53 PM (GMT 0)
I can't say I enjoy it, but beige, colorless is about the safest for me. Sometimes though, even that doesn't
appease the CD gods!!
Posted 10/30/2011 8:33 PM (GMT 0)
Hi YP9,
I wish you could find a doctor that could patiently help you sort through your symptoms. I feel bad you seem to be going it alone. In answer to your questions, I am still working. I don't feel well and it is hard, but it does help to distract me, and resting at home doesn't make me feel any better anyway. I started Entocort (steroid) a few days ago. I think it is supposed to take a couple of weeks to work. So far it's giving me headaches, but I'm hoping for my body to adjust to it. I have plans to go out of town to visit my father next week and I'm worried about whether I'll be well enough to go. My mom died last March, and I know my Dad is lonely. This flare is getting very depressing...hopefully it will get better soon! Thanks for asking!
Posted 10/30/2011 11:42 PM (GMT 0)
This has varied over the years..Post surgery in 2004 I was doing meal replacements, baby food then onto low residue..After predisone, I was eating most things unless it was corn, nuts, popcorn, spicy, greasy, or fresh veggies or fruits except bananas...I have been able to tolerate now more fresh and raw veggies wasn't able to before..Things like msg and nitrates are a big no-no for me..I have been primarily been doing gluten free with an occasional cheat over the last several months..I wanted to give it a try because celiac has many cd symptoms..My body is funny on things it will tolerate sometimes and sometimes not like dairy over the years..I would say my diet depended on the inflammation and location of active disease..With CD gastritis at one point, eating anything seemed touch and go..
Cindy
Posted 10/31/2011 4:44 AM (GMT 0)
mashed potatoes. Good thing too, because I love them!
Posted 10/31/2011 9:59 PM (GMT 0)
Hello!

Many thanks to all of you! I know that safe food for someone is unsafe for another one. I am aware of that. As for now I can tolerate everything, but do not eat. Only fat is a big problem and I think that is one more reason to think I have some DD. Mybe I am wrong, who knows.

Gumby: I hope you will be out of flare soon, really hope and wish you would be. Haven't yet have same problems, but who knows how things will be in near by future. Something bad deff. is happening to me, inside me. Can feel that, but as for now docs all said that everything is in my head. OK! Fine.

I have read what you people have been to and I am scared to last bone in me. You are brave and words are not enough to say how much brave you are.

Anyone eating soy? What do you think about it?

Best!

YP9
Posted 11/1/2011 2:19 PM (GMT 0)
I get really BAD cramps anytime I ingest any type of soy product.
Posted 11/1/2011 3:32 PM (GMT 0)
Hello, Nanners!

Do you think when some food starts to bother someone, that is one more reason to think one might have some digestive issue, mybe this DD?

I have only problems with fat. And stay a mile from gluten! Precaution.

Thank you.

Best!

YP9
Posted 11/1/2011 3:46 PM (GMT 0)
Honestly YP9 based on the symptoms you have posted in the past I do not see anything that points to Crohns for you. But...I am also not a doctor. I just know that for me, soy gives me bad cramps, others may be fine with it.

Your problems with fat could be gallbladder related. Good luck!
Posted 11/1/2011 3:52 PM (GMT 0)
Fortisip is my safe 'food' at the moment.

www.nutricia.ie/products/view/fortisip_compact

Pro-tip: Mocha is the best flavour and Forest Fruits is the worst.

Pre my liquid diet I didn't really have any safe foods. I stayed away from very spicy foods and raw/cruncy veggies, and that was about it. Bland, processed foods didn't alleviate my symptoms though; if anything I sometimes think they made them worse.
Posted 11/1/2011 4:56 PM (GMT 0)

Nanners said...
Honestly YP9 based on the symptoms you have posted in the past I do not see anything that points to Crohns for you. But...I am also not a doctor. I just know that for me, soy gives me bad cramps, others may be fine with it.

Your problems with fat could be gallbladder related. Good luck!


Hello, Nanners!

I sincerely hope you are right! :) Gallbladder - haven't thought about it, and nor docs did. Good point, will reconcider. Ultrasound of abdominal organs did not show anything suspecious in any area.

And I am (maybe) to scared to admit that everything is OK with me. Time will tell, if docs will not, I guess. Naners, thank you again.

Soy: it is fine for me. But have read much about its GSO, alergic reactions, etc. Bad things, lets say. It has a lot of proteins and callories
also, thats why I eat some soy - tofu.

Best!

YP9
Posted 11/1/2011 5:00 PM (GMT 0)

NiceCupOfTea said...
Fortisip is my safe 'food' at the moment.

www.nutricia.ie/products/view/fortisip_compact

Pro-tip: Mocha is the best flavour and Forest Fruits is the worst.

Pre my liquid diet I didn't really have any safe foods. I stayed away from very spicy foods and raw/cruncy veggies, and that was about it. Bland, processed foods didn't alleviate my symptoms though; if anything I sometimes think they made them worse.


Hello, NCOT!

How are you and dehydration that was so severe couple of weeks ago? Are you still bad or doing better? Hope you are better!

Thank you for that liquid! I will change mine - Nutricomp to that one if price and ingredients are fine. Haven't consider about Nutricia: you know when you find some food that is good for you, than you do not look elswhere. But now i will! Nutricia, so. OK.

Thank you for your precious time and answer NCOT. Take care.

Best!

YP9
Posted 11/1/2011 5:25 PM (GMT 0)
'Ello :p

I'm doing about the same, thanks for asking! Fevers have stayed away, as has the nausea and vomiting. The bad side is the discomfort (occasionally running into pain, but nothing like pre-hospital) and bloating: I look like I'm 3 months pregnant, always >_>. Mind, I suppose 7-8 Fortisips plus 2-3 cups/bowls of soup a day would do that to most people - it's a lot of liquid. (I have the soup just 'cos I have to have something savoury in between the Fortisips!)

I don't mean to discourage you, but - being a medical supplement - Fortisip costs a freaking fortune :-/ ... It's £10 for a pack of 4. Also, it's gluten-free but not lactose-free. Here's a list of ingredients for the vanilla flavour.

Water, glucose syrup, milk proteins, vegetable oils, tri potassium citrate, emulsifier (soy lecithin), flavour (vanilla), magnesium hydrogen phosphate, choline chloride, potassium chloride, acidity regulator (citric acid), tri sodium citrate, sodium L-ascorbate, ferrous lactate, zinc sulphate, nicotinamide, DL-a-tocopheryl acetate, colouring (curcumin), retinyl acetate, copper gluconate, sodium selenite, manganese sulphate, chromium chloride, calcium D-pantothenate, D-biotin, cholecalciferol, pteroylmonoglutamic acid, thiamin hydrochloride, pyridoxine hydrochloride, sodium molybdate, sodium fluoride, riboflavin, phytomenadione, potassium iodide, cyanocobalamin.

According to my dietician, 5 Fortisips a day give you everything you need nutritionally. My intake of them was upped to 8, though, 'cos I hadn't put on any weight. (I probably have now..)

Hope that helps! Personally speaking, however, I suspect that Fortisip would be overkill for anybody who can eat solid foods, even if only a limited range of them. An OTC supplement drink would probably suffice you: there's quite a few different brands of soup and shakes and all of them are nutritionally fortified.
Posted 11/1/2011 5:57 PM (GMT 0)
Hello NCOT!

I am glad you are little better! Uh - symptoms and that are awful for you, so you are brave person you can handle all that. Sincerely speaking, NCOT.

Yea, this food is fortune. Did not know Fortisip is so expensive. Well I gave for Nutricomp, one 500 ml/500 kcl about 3.3 EUR so if I would drink 4x500ml it would be 13.2 EUR or some 11 pounds, I guess. I drink, usually two of them per day. Do not know if this is good.

Chemicals in those drinks are awful for intestines, I guess. But if there is no other chance, as in your case and if it suits you, than you do not think about that, don't you.

Here are ingredients for Nutricomp Standard Neutral: it has no gluten, bot has soy and milk proteins.


http://www.nutrition-partner.com/doc/doc_request.cfm?A6A1D7F1E7054F098D43AFDC99BCD7B6

It has:

Nutricomp Standard: Liquid, protein (caseinates, soy protein) 3.75g, carbohydrate (maltodextrin) 13.75g, fat (rapeseed oil, soya bean oil, MCT, fish oil) 3,33g, vitamins, minerals, trace elements per 100mL, gluten- and lactose-free. 100kcal/100mL. Nutricomp Fibre: Liquid, as for standard with addition of dietary fibre (soy polysaccharides) 1.5g per 100mL. Gluten- and lactose- free. 100kcal/100mL

You know - that is funny - I used to be quite a eater, enjoy food very, very much. All sorts of. Now, funny, I drink one bottle and that is it. Have not had to worry about what to eat, just drink and I am fine for one meal. Funny, isn't it? I have more time for other stuff to do.

Thank you again!

Best wishes to you NCOT and hope you will improve even more in your general feelings!

Best!

YP9
Posted 11/1/2011 6:28 PM (GMT 0)
It's 'cos it's a prescription supplement: anything nutritional which is prescribed costs a fortune. I didn't mention it in my last post, but a juice version - Fortijuice - of Fortisip is also available. Unfortunately it isn't any cheaper. I've only had the Forest Fruits flavour, which wasn't too bad: less rank than the Forest Fruits Fortisip, certainly.

I see for patients with IBD and impaired immune systems, there is a version of Nutricomp called Nutricomp Immun. No ingredients list, so not sure what the differences are. I got to say, I think I would struggle with Nutricomp - those 500ml bottles look daunting, plus they don't sound like they would have a good taste.

I loved my grub :p ... I'm somebody who lived to eat, rather than eat to live. But weirdly enough, I'm not really missing solid food all that much. I have my moments where I get down over the liquid diet, but it's mostly easy to follow. It undoubtedly helps that a) it's temporary and b) I can make soups. I've improved my chicken stock making skills, if nothing else :p

But yeah, 2 bottles of Fortisips do me for one meal. I don't have to think about it. I know what you mean on that.

Thank you. I hope things get better for you, too!
Posted 11/2/2011 9:47 AM (GMT 0)
Everyday I have cream of wheat cereal (farina) with honey and a little milk for breakfast. My other safe foods are tofu (I scramble it with lots of turmeric and add some sea salt and black pepper. Lots of organic yogurts plain or with honey or maple syrup no fruits in it. White bread that has barely any fiber, Well made Italian pasta (like DeCecco) overcooked, all natural ices, apple sauce... bananas give me the worst stomach aches since I was DX, almond butter and no seed jams,

I know I am leaving a few things out.. but I seriously don't know what I would have done w/o bread and cheese these past 2 years before my operation - and even now.
NY VEGGIE
Posted 11/2/2011 9:13 PM (GMT 0)
Hello!

Thank you all for your answers! NCOT and NY Veggie, thanks! I hope that this post will do some good for others that have more serious issue, as I have - well I am pretty OK now, just thin and so. Have write before.

NCOT: yes, Nutricomp is like soy milk. It has no taste, but you can get vanilla, chocolate, ... And you get used to, it is fast meal if you do not have any problems and reactions. It is good for bowel rest - liquids. But villi in small intestine can get damaged if i am correct if you drink only liquids. So it is good to eat at least some solid food.

NYV: Good recep.!!! Thank you very much! Soy and tumeric - antiinflam.And peper has thing to beter digest and absorb tumeric in blood from SI - small intest. Fine one! Will try. So you have a little left to eat. Sigh! Are you underweight? How are you doing with your DD now? In real life, every day? Working? Just want to know what might wait for me or not.

Thank you all again!

Best!

YP9

Soy is good, but have read it is allergenic product. So I am confused. :[ I do eat tofu, yes.

I see that some of you eat bread - gluten free? I am standing out of gluten.
Posted 11/4/2011 8:59 AM (GMT 0)
YP9 - Only some people are allergic to soy. Thankfully I am not one of them and neither are you it would seem

I am starting to eat overcooked vegetables and some fruit but I am still mostly on a low residue diet
I am so glad you noticed the healthiness of my tofu recipe. Sometimes I also put garlic powder or some hot sauce in it. Most of the time I steam white flour tortilla over the saute pan just as the tofu is about to be done and then wrap them around to make a burrito. I put organic plain yogurt on the side and it is a very nutritious meal. Very anti-inflammatory and probiotic. The burritos also microwave fine the next day so I make several at a time and keep them in the fridge. I also enjoy vanilla soymilk.

I had lost some weight (it was fun being the same weight as I was when I was in my 20's) but I've gained it all back. A real shame since I was convinced that I was going to stay that skinny and I bought a bunch of new jeans and other clothing that don't fit now. Eating mostly white food makes you gain weight if you don't have diarrhea. I find lots of things to keep me from losing the weight again. I should lose about 15 pounds. Hopefully soon I will have the nerve to try beans, more fresh veggies, and other salad items . If I can start to eat those things and they don't bother me I will be very happy.
NY VEGGIE
Posted 11/5/2011 7:32 PM (GMT 0)
Hello, NY Veggie!

Thank you for your post!

Neither am I allergic to soy, but have read that soy very bad for organism, espec. an ill one. So I do not know. I eat tofu and have tried it already with curcuma! :) It was delicious. And, as you say antiinflam. We have own garlic, so I eat this also. Cooked, of course.

Aha - so you eat gluten, don't you? I keep away from it. Strange thing is I am having more and more semi formed stool. Much more than used to be, lets say a week ago. Too much fat? I eat some cheese every day, some yogurt, curd. Too little fiber ahd thats why? I do not know.

Yea, would need to put some weight, but can not! I work on a farm and have job. So guess I do not eat enough. Lucky you!

How are you keeping your DD in bay? What is Solgar V-75? And where is your DD located? You do have a lot of health issues to deal with. My! I respect your positive attitude. I do not have such abilities. Some times those things make me very depressive. not knowing what is wrong - if anything is. Eh!

I know beans and salads are not good. You got cramps if eat those?

Hope to hear from you, NYV!

BEST!

YP9
Posted 11/6/2011 9:07 AM (GMT 0)
Hello again YP9
My Crohn's was mostly in my Terminal Ileum and adjoining tissues. I recently had the bad strictured and scarred/inflamed parts taken out but before that I had to avoid anything that could possibly get stuck in the stricture. The oddest things would start the horrible pain of partial obstruction - even bananas. I don't know if my body didn't like them because they were a raw fruit or if they got stuck in me. I only had diarrhea on rare occasions (when I had ulcers in my colon) and most of the time I was mostly constipated. Before I knew what was wrong with me I used to eat beans, and lots of vegetables like broccoli, brussels sprouts, and other very high fiber foods. I have never had a problem with gluten, dairy or soy which is very good because they were the main things that helped pull me through until now. I don't eat any meat, and beans used to be one of my protein foods.. after finding out how bad my stricture was, I was told to avoid anything with skins on them so no more beans. I am not afraid of the gas but there is still something about them that scares me. I will have to take that step soon, as I need to get off of this white diet I am on soon.

Solgar is a vitamin company here in the US. I'm not sure where else they sell but I know they have a website so you can check. Solgar V-75 is a special formula they have for vegetarians that has 75mg of all the B vitamins along with the other nutrients in a once a day multivitamin/mineral. What I really like about this line is that they also put many plant substances like bioflavonoids necessary for good health that are not officially recognized by the FDA also in these pills.

I had some salad yesterday and today that resulted in a little bloating but nothing that would prevent me from trying it again. I did not get cramps, just some gas but there wasn't any pain. A fresh raw cherry tomato for the first time in years!!

Believe me, I do not have a good attitude at all. I just like studying all the diseases I have been diagnosed with in the last 2 years - including Crohn's. I haven't had to live with most of the awful effects that most on here have had to deal with. I was very careful these last 2 years to not stray from my strict diet of mostly white food and so I was mostly pain free up until the time came for my operation. If I had to run to the bathroom many times a day and have the constant inflammation others have I would be in a much worse disposition. As it is, I have been through a lot just in the last year (3 hospitalizations and 2 surgeries and lots of other painful tests)

Wishing you much luck with finding all the foods that will work well for you.
NY VEGGIE
Posted 11/7/2011 8:20 AM (GMT 0)
Hello, NY Veggie!


First I am grateful for your long and descriptive post that you wrote. Thank you very much!

This DD (I do know little about, have some personal experiences that are strong possibility, but unproven facts remain) is
never easy, never good. But I think, as you said, not having loose stool many times per day, is a plus toward easy way of
disease flow.

I can imagine your pain, even little - had cramps twice so far - know - not much, but have felt and it was horrible!

I think your attitude toward vegetarian food is right, is good choice. I do eat white meat, you do not. I try to avoid gluten and all processed food, well almost all. And def. all sugar, just some fruits, maybe honey. Think that is good choice even for healthy peoples, not just for ill one.

Thank you for Solgar information. Currently I am not on any multivits. Was on months before. I will remember this company If needed. Thank you!

Yes, I know what you mean with running to bath all day long. My ... this is horrible! Have just experienced few times - also am more constipated, or in last moths having good defecation. Well, mostly unformed stool in last week or so.

It is a lot, as you said to be three times in hosp in one year. I agree. It would be enough once or neither once.

Will keep in mind soy - but have read a lot about its allergic reactions on body.

What do you think: If we can tolerate one food that is proven to be allergic to be harmful, and we do not have reactions - is that food still good for us? Sugar is one of them, or soy, milk products, fresh vegetables? I am confused, really!

NY Veggie thank you again!

We hopeful hear more and wish you best in your situation!


BEST!

YP9
Posted 11/19/2011 3:10 AM (GMT 0)
Graham Crackers/steamed rice/salmon/Chex mix/Chicken fingers seem to be my SAFEST foods. I tend to do my best with carbs. Some days though, like a lot of people, it doesn't matter what I eat & nothing is safe!
Posted 11/19/2011 8:09 PM (GMT 0)
Hello keepingfaith!

Thank you very much for your answer!

So you do not avoid gluten? And carbs - what did you wanted to say? I eat carbs, but tried to eat small amounts. I know it would be fine to eat less or special carbs on SCD. Well I am still undiagnosed. Had loose stools in past weeks to present, might be due to too much fat - cheese and curd, yogurt or to small amounts of fiber. I do not know.

So I avoid gluten as many of others here said. I think this is good choice for many more seriously ill than me. I still look like skeleton,
cant get weight back.

I currently am not having other problems, but think it will arise soon. Well some times cold hands, some times warm, some times slight fever.

Take care!

Best!

YP9
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