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my experience with LDN

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Crohn's Disease
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Posted 11/19/2011 7:55 PM (GMT 0)
I have been taking LDN (low dose naltrexone) since the end of June 2011. it has not been an easy ride. Some of the filler used did not agree with me. One of the filler, Avicel, was the worst of all. Finally, the pharmacy filled the capsules with acidophilus. So far, it is working. at the last blood test taken the inflammation rate was 28!. a big change from the previous one of 70. I have been able to eat food that I have not eaten in years!!! such as apples, broccoli, and other vegetables. Most important the bowel movements are down to one or two. No pain, no blood !!!! The GI is very skeptical about this results, she did not want to prescribe this med. for me, my GP did. I will have a colonoscopy in Jan, 2012, and hope to have good results.

I hope that this posting could help someone else.

 

Posted 11/19/2011 8:27 PM (GMT 0)
Wow, great news! I'm wondering how much is the acidophilus vs the LDN. Either way, it appears to be a good combination.
I hope you have continued success, and thanks for sharing.
Posted 11/19/2011 8:27 PM (GMT 0)
I'm glad you're getting good results from LDN. My daughter and I wanted to try her on it, but her GI wouldn't prescribe it.
Posted 11/19/2011 8:28 PM (GMT 0)
so very pleased for you and good luck with the colonoscopy

I was very keen to give it a go myself but my specialists won't prescribe it in NZ.
Posted 11/19/2011 10:40 PM (GMT 0)
the prescription for LDN if for 4.5 mg, I am not aware of how much acidophilus there is in each capsule. I will ask the pharmacist. Many GI  are not willing to prescribe this medication, because is still experimental  for Crohn's disease. As matter of fact I have to pay for the med., the insurance does not cover it.

Dr. Jill Smith from Penn State Medical center in PA is conducting the study. There are information on line where anyone can find out more about LDN.

Crohn's disease for 25+ yrs.  Problem with Remicade, Humira stopped working after 1 1/2 yr. used Entocort, Prednisone, have an intolerance for mesalamine. tried just about all medications, no help or made my symptoms worse. GI keeps on telling me that my case is hard to take care of. Thank God my primary care doctor prescribed LDN for me !!

Posted 11/20/2011 9:29 AM (GMT 0)
As I'm sure you all know by now I have used LDN for more than 4 years. My inflammation is very low most of the time. Sometimes it increases it's activity, for those occations I take prednisone. And I just need prednisone for a few weeks, starts at 40.0 mg and reduces in a few days to 20.0 and down to a level at 10.0 mg within the first week. This is enough for me. The last weeks I reduce the dose gradually to zero. I flare once or twice a year, and I think that my triggers are stress related. I visit my GI once a year. He told me that I would get a surgery 4 years ago, he decided to put away his knives a few years ago. LDN is my only medicine, but I think that most Crohns patients may need LDN and a mild traditional Crohns med in addition, just for maintanance.

A site owned by LDN dr. Explains all about LDN for you and your doc
www.ldnscience.org
A info site
www.ldninfo.org (the original ldn site, owned by a doctor)

Post Edited (BeeSting) : 11/20/2011 10:50:42 AM (GMT-7)

Posted 11/22/2011 1:41 AM (GMT 0)
Love to here no operation. smhair
Posted 11/26/2011 11:19 AM (GMT 0)
Been on LDN since August 2011 and so far so good for me. I'm also not on any other meds at this moment. Very grateful that it's helped so far!
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