New on here

PetiteLady

New Member

Joined : Nov 2011

Posts : 1

Posted 11/23/2011 1:50 AM (GMT 0)

Hello everyone! I am new on here. I have had crohn's since last year. I am taking Pentasa now. Some days are good ones and some days are not . I have been feeling bloated all the time. Holiday's are around the corner and I know I won't eat much. Has anyone been on Pentasa before? Did you like it/hate it?

Tracy

Tommy13

Regular Member

Joined : Jun 2011

Posts : 82

Posted 11/23/2011 2:22 AM (GMT 0)

I'm currently on 3000 Mg Pentasa per day. I'm on it since my DX Marsh 2011. Good so far, I had some problem taking them at first, it was cutting my appetite but I had no problem taking them after the meal.
Even though I see a difference since then, I'm not completly symptomless.. (Still have very little baby cramp in the left) I'm hoping the result we be enough at my next scope to keep it as my only med. Because I really like it.

kazbern

Veteran Member

Joined : May 2010

Posts : 8384

Posted 11/23/2011 3:09 AM (GMT 0)

I took Pentasa for a long time, just recently stopped because of tinnitus. It worked well for me.

Are you able to remember to take it 4x/day? I was not, so my GI had me take it 2x/day. If you find that you are not getting the full dose because you forget to take it midday, talk to your GI about revising the schedule.

big betty

Veteran Member

Joined : Nov 2010

Posts : 588

Posted 11/23/2011 3:25 AM (GMT 0)

Welcome to healingwell PetiteLady! I was on Pentassa for about a year and like Kazbern developed tinnitus so stopped taking it completely. I'm not sure it was doing much for me, but I've gone into remission a few weeks after starting LDN back in August of this year. Hope you will find a treatment that will give you many more good days and I hope you can have something yummy for Thanksgiving.

teddybearweiser

Veteran Member

Joined : Oct 2004

Posts : 3042

Posted 11/23/2011 7:32 AM (GMT 0)

Hi Tracy and Welcome to the HealingWell family. You have found a good place here. people here are very caring and helpful.

conmire

Regular Member

Joined : Jul 2011

Posts : 245

Posted 11/23/2011 1:04 PM (GMT 0)

Hello and welcome to the forum, it's a great place for tips/chat/sharing and caring,lots of folk with good insight and a wealth of information, Slainte

Nanners

Elite Member

Joined : Apr 2005

Posts : 14999

Posted 11/23/2011 2:40 PM (GMT 0)

Hi Petitelady and welcome to Healingwell. I have taken Pentasa in the past and had no issues with it. I now am maintained solely on the sister med Asacol and it works well for me too.

For the bloating you might want to talk to your doc about a possible bacterial overgrowth. Also are you taking any kind of probiotic? If not, you really should look into to them. It may be helpful for the bloating as we crohnies tend to have a bad bacterial imbalance in our intestines and the probiotics help put back in the good bacteria. I take Primadolphilus Fortify by Natures Way, you can find in your local healthfood store in the refrigerated section.

Others use VSL#3, Align or Culterelle to name a few. Hugs!

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