Hi again :<)
This thread is *very* interesting to me as I went through this IGG testing and elimination diet back in 2005, before anyone was talking about it on forums. It was controversial then and I guess it still is. I no longer even mention it to my traditional docs anymore. I was feeling really crummy in 2005 with joint pain, RLQ pain for years, and a horrendous mouth ulcer problem. They were non-stop. as one was clearing up, another would appear, in all areas of my mouth. My tongue was constantly sore. I had read (and had a friend confirm) that you can have celiac disease without gi symptoms and since mouth ulcers were often a sign of celiac disease I decided to explore this. I thought crohns was already ruled out (turns out it wasn't). I went gluten free on my own (by this time I was sick of doctors) and noticed the mouth problem improved about 75%. My chiropractor who also does what is called "functional medicine" did the IGG allergy testing on me (I had gone to a hypnotherapist to try to find an escape from this never ending craziness and she said this testing had solved her problems) My insurance only paid parts of it (it was not cheap, done by a lab in the state of Washington) It showed I had very high IGG antibody levels to wheat, casein (milk protein), egg white and to a lesser degree, egg yolk, corn syrup and ginger. The rest of the foods I ate were in the normal range. Yes, this is controversial but I figured I had nothing to lose. I didn't eliminate all grains, just wheat. (a little easier than gluten) Drank enriched rice drink instead of milk, eliminated eggs and corn syrup. Ginger wasn't a problem LOL. The first thing I noticed was that my mouth cleared up completely. What a wonderful feeling that was.
My RLQ pain and feelings of malaise did not change. I went to a gi doc I had heard had a special interest in celiac disease. He went right to the TTGA (something like that) test which was negative. He did an EGD with duodenal biopsy( I had to eat gluten for 8 weeks) which was negative. He also did the prometheus testing which showed a slightly elevated pANCA which he dismissed. Then a colonoscopy after which he declared I had a rheumatological problem, end of him.
I stayed on this diet for almost 4 years, even after starting pentasa. When I went on humira I decided to go back to regular diet and the mouth problem has NOT RETURNED. YEAH! If I do get a canker it is small and clears up in about 2 days. Before it was a 10 day siege.
I blame my mouth problem mostly on milk protein because if I do overendulge I usually do get some mouth problem. I continue to drink Rice Drink when I need a large quantity of milk (like in cereal). I still eat wheat free waffles because I like them. That's about it.
I know I blabber on but I hope some of this is useful to someone. I agree that this concept of food sensitivities diagnosed by IGG antibodies is very controversial. In order to prove to me it is useless I would have to find someone with problems, had the tests done, did the elimination diet based on these tests, and had no improvement at all. It may be that it is not the same in everyone. There is this issue of leaky gut syndrome and that is being accepted by mainstream medicine. I think IGG Food sensitivity as part of this leaky gut syndrome will be accepted in the future.
I agree with the poster who said that time spent with her kids and not in the bathroom was more important to her than eating pizza. It became a way of life for me. I also have to admit that my other systemic problems did not improve, just the mouth ulcers (which was my purpose for doing the experiment) I lost weight (which is a plus for some) and eventually too much weight. After going on humira (which was about the same time I went back to a regular diet so questionable which was the solution) I gained 25 lbs. Feeling better had to be due to humira because I was on this diet for 4 years before that and did not feel better except for the mouth ulcers problem.