Posted Today 2:26 AM (GMT 0)
Hi all- I posted about a year ago when I was pregnant with my son and was having issues getting my iron levels up. I ended up going on prednisone for the duration of the pregnancy and did iron infusions to get my levels up. Once I had my son, I weaned off pred and started remicade in February. I have been in complete remission since I started prednisone in September 2010. During my last remicade infusion, I broke out in hives and also had bad leg pain for 48 hours after the infusion. I had a colonoscopy this morning and my gastroentologist confirmed what I already was guessing- my latest labs showed I had built up antibodies to remicade. Fortunately my colonoscopy went well and everything looked great.
The issue now is what medicine to take. Can't take asacol anymore, missing an enzyme to handle 6mp, want to have another baby so that eliminates Methotrexate. My GI said we can try pushing remicade through at higher levels with more pre meds and steroids, or I can switch to humira. I'm glad that I am feeling well, but I'm nervous that I am running out of options for the future. I would love any feedback anyone has!