Dirty tricky Crohn's disease...

This is how dirty and tricky this disease is, how it likes to toy with us...

So I make supper for us for basically 5:00 sharp, for a while I found that as soon as we sat down to eat supper, after a few bits or half my plate being gone or close to being done eating, I would get the "urge" and would have to leave the table to "take care of business".  Naturally thinking it was the food going in and digesting and therefore causing the urge.

Well, low and behold, I decided to change our supper hour to 6:00 and what did I discover, that even not eating at 5pm I would get the potty urge, here it was so easy to put the connection together thinking that by the act of eating/digesting was "triggering" the need to "go" and then learning that no, not at all, it was simply the time of day that brought on the urge, had nothing to do with the act of eating.

Stupid disease, how it toys with us, leading us to believe we know what's going on and why, only to find out one thing really had nothing necessarily to do with the other (act of eating triggering the urge at that specific time).

However, I do find that after eating (and not just supper, but snacks too) I still have to give myself some time before going anywhere since it seems that often at some point (sometimes within an hour or so) after eating I will have a BM.

I found it kinda mind blowing (dirty sneaky disease) and I've been meaning to share this with you all.

Oh yeah it is a sneaky little bugger, isn't it!!! I am the same way as you, I have to give myself about an hour after I eat, then the urge hits me.

I usually only eat a couple of times a day. about 6:30 am and then again about 11 am. And its the same all the time, about one hour later, and hurry to the bathroom.

Yesterday one of my guys at work was talking to me when the urge hit, and he kept talking and I was thinking (screaming in my head:) okay, okay I got to go NOW!! I barely made it to the bathroom, and thank goodness no one was in there. Hugs!

I think Questran has given me a false sense of security. To me, it's a "wonder" drug. With it, I feel like I have some control over this "dirty tricky crohn's disease." When I don't take it, crohn's controls. The only time I don't take Questran is the day before and the day of a colonoscopy (every two years).

Yes, the DD is tricky! Just when you think everything is calming down, BLAM! Something happens!
A cure can't come soon enough!

mine is smarter than Iam, it's got me figured out

AG

Ah. So true, Sniper. You speak words of wisdom about our bosses.

Back to the gut and timing tho. PB4, don't be so sure that YOU didn't have the gut trained to the 5 o'clock PM schedule and eventually you are gonna be re-training it to the 6 o'clock schedule.

As we say, Crohn's is tricky and sneaky.

after that car crash, I flared in migrating arthritis, and it started migrating in my left shoulder, worked down my left elbow to left fingers and wrist(I'm right handed) so the day it was in my left wrist and first two fingers, I told wife, thankgod it's not in my right hand and arm, at least I can work, the next D day I woke up and arthritis was in right shoulder right hand and wrist. did it hear me talk? can it hear me think? I'm now expecting either sigorney weaver to jump out of my gut or the alien

AG

Hey Matthew, long time no see!!