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The Nurse told me to go to ER....... I would like to have your opinions..

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Crohn's Disease
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Posted 12/12/2011 9:46 PM (GMT 0)
Lately, I have problems with Crohns...

1. my own foods.. such as less grease ( just olive oil ) got me cramps
2. throbbing pains under my armpit, sides of my breasts, stomach colon area..
3. feeling numb where the main colon area is.
4. flares feeling numb as well... but i can feel it..
5. simple meals makes me sick..


I limited on foods such as.. rice, salad, turkey burgers, and eggs lately.. no milk or any alternative substitutes.
Cramping from my stomach acting up lately..

stools constantly watery...

i take ibuprofen, wellbutrin... woman 1 day pill.. and vitamins.

and i have no medications... :( to solve the problems.

oh well.. see if that stupid crohns crap goes away tmw..

Post Edited By Moderator (FamilyGuy) : 12/13/2011 9:19:03 AM (GMT-7)

Posted 12/12/2011 9:48 PM (GMT 0)
Honestly, i rather wait til my Doctor comes back from his Vacation..... I'm not going to spend hundred hundreds of dollars for NOTHING if they said... there isnt anything wrong..
Posted 12/12/2011 10:02 PM (GMT 0)
If your nurse said to go to the ER, there's probably good reason for it. From what you shared, it doesn't sound emergent to me, but I would recommend taking the nurse's advice over someone on a forum.
Posted 12/13/2011 1:53 AM (GMT 0)
rrtac,

Ibuprofen is a big no-no for us CDers. It can actually induce a flare-up, because it damages the intestinal lining. Please talk to your GI about that.

On top of taking ibuprofen, leaving crohn's untreated is a double whammy for trouble. Please see your GI about treatment, and take Tylenol instead of the Advil/Ibuprofen.

If you're suffering too much, then go to hospital, otherwise, you can call your GI in the morning. I hope you get better soon.

Take care!
Posted 12/13/2011 2:45 PM (GMT 0)
oh really? Ibuprofen... hmm.. I didnt know that.. oh yikes. I am going to call doctor today.. and see what they say. If Doctor demands me to go to the Hospital then I will. Thanks tho.
Posted 12/13/2011 3:58 PM (GMT 0)
Anyone with Crohns should never take ibuprofen. It can cause a lot of stomach issues and bleeding. I know because I was using it for migraines i get from Humira, I complained of a lot of blood in my stool and severe stomach cramps. Had an endoscopy and colonoscopy it showed irritation. As soon as I stopped taking it I felt better.
Posted 12/13/2011 5:50 PM (GMT 0)
It isn't just Ibuprofen that is bad, but all NSAID drugs.  I would think that if you are taking the ibuprofen on a regular basis then that in combination with no CD meds is what is causing your problems (this is just an opinion).  Definetly talk to your GI and if he doesn't want to give you meds for your CD, then you need to change doctors.

Feel better and let us know you are.

Posted 12/13/2011 11:40 PM (GMT 0)
My daughter's old GI's nurse actually told my daughter over the phone to take Ibuprofen for her pain. My daughter had to tell her Crohn's patients shouldn't take it.

Appointments had to be made months in advance so if you had a problem in between your scheduled appointments, the nurses were notorious for telling you to go to the ER which sometimes seemed drastic. I just wonder if it somehow protected them from any liability. I guess you have to use your own best judgment which isn't always easy when you are sick.
Posted 12/14/2011 2:26 PM (GMT 0)
Here I am now.. UPDATE.. They said keep on avoiding foods that cause achy etc. I have been avoiding it.. same talk as before.. its all normal. well we will put you on entocort.

went to family doctor about the achy boobs etc. they said they dont find anything and everything is normal.

grr.. I hate it... now on... I guess deal with it and shut up. I knew it.. every visit I go in.. ITS ALL NORMAL, since i knew feeling different.. and they kept saying Normal.. know what fine... I will stop going to the doctor appointments. I am just tired of it....

I am just frustrated.. I cant trust my body no more.. they playing tricks on me.


do you ever go to the doctor ... the different pain.. and later on they said. well, i check your chart and seems everything is normal. and since you have achy stomach.. so we will put you on entocort.. the throbbing pains and such.. go to family doctor.. ( went in next day) they say.. bp. and all that check up.. all normal nothing odd about.. pisses me off..


annoyed.. I told my husband that.. I am done I am not going back to Dr again.... They always say.. NORMAL... so worthless.. He said at least you are on entocort.. He said then dont complain about it..

I told him if bleeding butt.... or vomitin blood then I will.....
Posted 12/14/2011 2:33 PM (GMT 0)
With everyone telling you that everything is normal...are they also doing blood work? If you go and they tell you right away that everything is normal, I tend to think they aren't checking your bloodwork. Just looking at someone and taking vitals can't tell you everything. A lot of our problems don't show up by looking at us...it shows in the blood work though. Just looking at me you would think I am in great health...but the blood work tells otherwise. My inflammation markers are always high as well as my liver enzymes (thank you meds for doing that to me).

You should ask you dr for a full blood workup. If something is wrong, it will show up in the bloodwork. Don't give up. It took me many years to find a good doctor that could help me. I hope you feel better soon.
Posted 12/14/2011 2:44 PM (GMT 0)
yeah.. I will call them again and ask for that....
Posted 12/14/2011 3:13 PM (GMT 0)
Bloodwork is not always indicative of CD either. Mine is almost normal for years, even though I had to have a resection for obstructions. Still the same too.

You may need to have a colonscopy for the doc to go inside and take a look. But if you've been taking ibuprofen for a while, that could also be the culprit.

I wouldn't give up on your docs. They can't tell what's going on inside unless they do diagnostic imaging or scopes. If you're having ongoing problems, they'll have to do more investigating.
Posted 12/14/2011 3:27 PM (GMT 0)
true..
Posted 12/14/2011 4:53 PM (GMT 0)
I've found the only thing the gastro is good for are the scopes. I"ve had better luck during a flare going to my family doctor for treatment. Of course, I have been fortunate (knock, Knock, KNOCK) to NOT need the biologics. Imuran and Pentasa do t for me (so far) and he and I can adjust those dosages w/o the need for the gastro. Far too many gastros are so busy doing scopes 3-4 days a week they don't have time to see their sick patients the one day a week they are in the office in any kind of a timely manner.

Its ironic, they are so busy practicing preventative medicine doing those scopes to find polyps, etc. they don't have the time to actually treat their sick patients in a timely manner.

I"m really just NOT enamoured of specialists in any field. I prefer and get better more timely treatment from my family doctor. Hales bells my family doctor delivereld all 4 of my kids! I never saw an ob/gyn until my 60s when I developed an ovarian cyst.

Posted 12/14/2011 11:10 PM (GMT 0)
Our favorite GI at the gastro group my daughter went to told me that their practice really wasn't set up to doctor out patients. They were too busy with the hospital patients, scheduled procedures and appointments, and most taught classes at the local university. At least he was honest about it.
Posted 12/16/2011 12:01 AM (GMT 0)
My GI is fantastic and when he can't get me in for an appointment, he talks to me on the phone. I guess they are all different, but I consider myself very lucky! I think a a GI needs to put you on some meds if you have Crohn's. And I agree with the other posters--no ibuprofin
Posted 12/16/2011 12:10 AM (GMT 0)
Yeah, after my first Full colonoscopy, my GI rxd Ibuprofen for my discomfort.
Like C2, I find GPs much more sympathetic towards our CD issues. Also GIs just DON'T seem to get it that CD is a full body disease. It can effect EVERYTHING, not just your bowels.
I did have one great GI when I was living in Florida, back in my bad old CD days. He'd call if I had a question or concern. I've never had another. They just seem too busy to bother with a patient not in surgery or undergoing tests.

Sincerely,
Matthew
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