Interesting study at UMass, shows SCD works

 

Being 100% honest and not being sensitive to others feeling, I believe that this diet can help everyone. If the above makes anyone upset, I apologize. I do not want to make folks upset, that is true also.

Some do SCD low carb, others vegatarian, others dairy free. They do it cause that's how their body works, or for religious reasons. But at the end of the day we all eat and it is my belief eliminating 100% of all food coloring, preservatives, processed foods, HFCS, flour, and all that other bad stuff and replacing it with broths, veg, fruit and other good stuff has to be better for you. 

My doc says "If everyone ate SCD, docs would be out of business" and that is my honest belief.
I think those that the diet "does not work" are eating illegals (they may not
know it) or they have not figured out the tweaks they need for them. Doing SCD is not easy, but being sick is harder.

BTW - I am in San Jose Ca, right now. Yesterday I did a ride on a rental bicycle
that included one climb that was almost 1/2 mile of elevation. That is sort of
like using the bike to climb up a 200 story building. Like I could do that
without SCD...sure.

I have never gone on a rant about this before, and I never will again. Sorry again if I have made anyone mad, but someone how I needed to get this off my chest

Be well

Dave

http://crohnsdad.wordpress.com/author/crohnsdad/

The blog writer states it has a 100% success rate—but it doesn't.

The study said that the 11 patients or 100% had "reduced symptoms", not remission, and they all continued with various medical medications.

You can find the study results here:
escholarship.umassmed.edu/cgi/viewcontent.cgi?article=1025&context=cts_retreat

Thanks for sharing, Dave! I personally love to hear success stories with diet. I posted the link from the blog to the actual study because I feel it's important for us CDers to have all the facts and weigh carefully the evidence.

When I hear results like these, I am always curious about what the study participants were eating before starting the special diet. Because if they were living on a diet of soft drink and McDonalds, almost any diet that involves more fresh and natural food would probably improve their symptoms!

It is promising, though. It's nice to know that studies are being done on diet, as well as drugs.

Ivy

Beesting, I love your sig! And so true

I did SCD for 8 months before I got results. I was taking an illegal melatonin that I quite and I also went low carb. I introduced bone broths and I went back to the into diet. I realized that I had to make tweaks for my body for it to work. I was sick for years and I did not expect (although I wanted) to be healed in weeks. If I quite after 4 months I would still be sick.
I know you do not agree and please do not be upset, but I believe 100% that eating garbage makes us sicker than if we eat 100% healthy. And honestly it is so clear to me, that I con not understand at any level how you could argue. Since geting my Dx I have read tens of books and many articles and research papers.
You say you did SCD. Doing SCD you have to be fanatically compliant. I wonder if you were taking some illegal that you did not know. about. I know I was taking illegals duing my first 8 months.

One more thing, I started diet as soon as I was diagnosed. I asked my doc on a scale out of 10 how bad was my CD. I had a 6 out of 10. I had ulcers throught my small bowel and I was sick month after month.

Good health to all. You have to take control of your health. No one else will. Don't give up.

Hope to run into you on the top of the mountain where I was this afternoon.


Good bye
Dave

Dave, nososicklygirl said she's only sharing her opinions.

When doing SCD, some ppl see results sooner than others. I've heard of people doing it for months and months before seeing results, others see results within days/weeks, some say it didn't help enough after the length of time they tried it, so they gave it up. Things aren't going to turn out the same for everyone, and we just have to allow people to make up their own minds about it.

Peace.

 

I am always interested when people talk about 'alternative' or 'self help'

When people's  bodies have spent many years getting into the state they are in it is only reasonable that

it will take some time to 'fix' them.

There are so many success stories either by taking this supplement or that one, or by doing this diet or eliminating a certain food etc etc.

But, it someone has tried self help/alternative and it hasn't worked for them, more often than not whatever they tried is 'rubbished' Have seen it time and time again.

However if someone is put onto prescribed medication and it doesn't work, that drug isn't rubbished it is usually just written off as not strong enough/not the right one for that person.

What people should accept is that however you choose to control your illness,  what works for one will not absolutely work for another there has to be some trial and error, after all each and everyone is unique.

I have looked at various diets and omg they look so hard and I take my hat off to anyone that follows them, I don't think it is an easy choice by any means(much less effort to pop a few pills) and by that I am not knocking anyone that takes prescriptive drugs. I would put myself whole heartedly into the category of pill popping, but by that I choose vitamins/supplements etc rather than put the time and effort into a whole diet change which imho would be preferable.

Right I will get off my soap box :D

Dave, why on earth would you believe you're entitled to post your opinions (even if they hurt other people's feelings), yet NSS isn't? Is it because she's a moderator? Are mods not allowed to share personal experiences and opinions now? Or is it simply because she didn't entirely agree with your point of view? If so, that seems a bit hypocritical. Check your motivation, my friend.

As for diets, I know they do help a lot of people. Others not at all. In my initial six-year flare I tried them all. Believe me, when I was in the bathroom every hour day and night I followed every diet I tried religiously for at least four months. I would have done anything to get better, and in fact was seriously considering surgery.

So it didn't work for me, yet I don't question that it's working for you. I respect your experience and opinion, I just wish you could show others on the forum the same respect. Think about it.

I will explain my position once. I am not going to get into a fight with anyone.

"I did SCD for 4 months and I didn't see even a slight improvement of my condition. I believe it helps some and not others. " You quite after 4 months. I kept at it for 8 before I figured it out. And, you did not provide any alternatives. Newbies take away is, there are none. If you said, SCD is not for me, but Fodmap makes sense, or some alternative, then there is action and hope.

"Did these people in the study have a mild case or a moderate/severe case? I haven't seen too many people with moderate+ symptoms get into remission with diet. I can't think of a single one. " FIrst sentence is what I would expect from a doc with no training in how food impacts health. There is always an excuse not to do something and your response is one I have heard over and over again from docs and folks who are not willing to do what it takes to get healthy. There are tons of studies corelating what we eat with health. Then you add that you do not know anyone who has healled this way. Again, no hope, nothing to do, poor us, and oh by the way the only way you can not know anyone is if you have done no research.

"The ones who I know who say they did are also on Rx medication. It's hard to prove it is the diet and not the medication in my opinion." No one said anything about drugs. This is just more fear uncerntainty and doubt that you throw out there. Your "opinion" is just that and opinion. There are tons of studies where two groups of people were on simlilar meds and one arte healthy and the other did not, and the ones eating healthy had better health than those eating poorly. All you have to do is look


The ony way to interpret your post is. Diet did not work, I am a mod and I do not know of one person where it has worked, There is no eveidence it works and even if you can found someone, it probabbly was the drugs. SO we are doomed , poor us, lets all sit around and feel sorry for ourselves.

It is my 100% opinion that posts like yours are posion to people that are trying to figure it out. My position is not an opinion. I base all my decisions on medical research. What we eat impacts our health. Saying I know no one that it has helped and it might have been the drugs, is your experience and opinion (it might have been the drugs) and I would expect more from mods, I would expect other mods or peter to correct a mod who puts a post like this.

When I was first Dxed this site gave me info and support. It was someone here how told me diet impacts. After 8 months of still being sick but on SCD, it was someone here (Sniper and Holly) who encouraged me and gave me advice that turned my life around. So I feel I owe back. But I am not going to waste my time arguing with mods about diet.

Judy2 I am not posting an opinion I am posting fact. Diet impacts health and more importantly the health of folks with CD. I have never said SCD is the way. I always recognize that there is not one answer. If you have ever read my posts I always encourage to look at FodMap,Gap, Low Carb and all the others. I am not a SCD bigot, But to say "eliminating 100% of all food coloring, preservatives, processed foods, HFCS, flour, and all that other bad stuff and replacing it with broths, veg, fruit and other good stuff has to be better for you." is an opinion again is just silly and can not be supported by any research any where in the world.

But again, no one corrected you. So the position of this board is what I said is an opinion. And the opinion that there there is nothing we can do is equally as valid.

Nebies, do not believe these silly people. You can do something. You are not doomed. No I do not have the answer as there is not a single one for everyone. However, if you keep reading, and trying you will improve. This is a fact not an opinion. Do not let people who spread negativity get in your way. Go with the medical research. What we eat impacts our health. As I said in my first post "eliminating 100% of all food coloring, preservatives, processed foods, HFCS, flour, and all that other bad stuff and replacing it with broths, veg, fruit and other good stuff has to be better for you." The facts supported by reseach is, if you did what I said you would be healthier than you are now. This may provide healing or you might have to more. It took a lot of time for me to figure out what else I had to do, but with the support of positive people, who actually pointed me to medical research, I continue to make progress.

Debb - Thanks for you good thoughts. I really am not sure what I am going to do next. You can always email me. I am pleased to have open conversations where we are sharing positve and negative experiences as we progress on the journey to optimize our health.
Dave

Java - fodd is either legal or illegal on SCD. You would not know that unless you read SCD stuff. So the melatonin I took was from a top end supplimnet manufacturer, but it is "illegalL in SCD speak.

But are you still thinking that what I said which was "eliminating 100% of all food coloring, preservatives, processed foods, HFCS, flour, and all that other bad stuff and replacing it with broths, veg, fruit and other good stuff has to be better for you." is not fact?

You are unhappy and so am I.
We, both you and I, do come here for that.
I may return or not, but I will not contribute to you being unhappy any more
Take care all
Dave

Dfdave thanks for all your positive help and advice over the years - found you to be extremely positive, generous, open minded and respectful.

I am a little amazed at moderators from other groups posting so rudely. This used to be such a pleasant place to visit and it quite frankly lately it has gone decidely down hill.

I have held my tongue over all the unpleasantness but this person having a go at you is the last straw for me.

I know moderators are volunteers but the attitude of some of them is just NOT helpful to a healing forum. People like nanners and Ivy were uplifting and unfailing positive.

All the best Dave - thrilled and impressed with your latest cycling - inspirational !

Stay well

hugs
Lesley in NZ

We all have differing levels of I.B.D. Some also have food intolerances which others do not.
There is no absolute clarity at this point in time, despite what people may believe to be a universal truth, or claim as absolute knowledge. That is why we have disagreement amongst intelligent and well meaning people, which all are on this thread.
Saying 'this is fact not opinion' on issues of diet and I.B.D. is wishful.
People get well very quickly on the right cocktail of drugs. Some people also recover through dietary changes. Good luck to all!