HealingWell
Search Close Search
☰

A quick imuran question

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/19/2012 10:10 PM (GMT 0)
Or 2...Has any one taking imuran noticed a change in your tolerance to temperatures? I get so cold so easily these days that I sometimes get the violent shivers. I have lost some weight and can still afford to lose plenty more. I have to point out that I no longer wear my wedding ring because it wants to fall off of my finger. The other question with taking imuran is...muscle spasms where I never had before....anyone else?
Posted 1/20/2012 3:33 AM (GMT 0)
I'm sorry that I cant help, but you should keep trying to research that and maybe try some other forums. My doctor wants to put me on imuran after surgery..Now after reading things about imuran I'm scared to take it. Have you called the doctor?
Posted 1/20/2012 8:34 AM (GMT 0)

I was on 100mg imuran for a couple of months before backing my dosage down to 75mg.  I got terrible nausea from it.  Also,the muscle thing...it's like they are really tight! When I stand up its hard and painful to start walking, but then it goes away.  Really weird side-effect. After I walk just a few steps it subsides... 

But the plus side to the imuran for me has been, weight gain, solids (now I can leave my house) before I had no warning time with lots of D, Not much joint pain now like before. And I have more energy.  

I hate all meds for the side effects they give, sometimes they are worse than the condition itself!  but for me, the trade off of symptoms was why I am thinking/hoping imuran will work. 

I hope you have better days ahead.  This disease can be a mind blower!  Maybe ask GI about backing down the dosage?  Those spasms sound painful.  feel better soon.  Kathy

Posted 1/20/2012 10:01 AM (GMT 0)

llama_gal said...
I hate all meds for the side effects they give, sometimes they are worse than the condition itself!


That's definitely the case for me. Crohn's disease has barely affected my quality of life - I have abdominal pain no more than 5-10 minutes a day, I have normal bowel movements and I can still do sports.

Nonetheless, my GI wants to give me azathioprine or MP6 just in case. ***? He wants to give me a drug with severe side effects that will certainly make my life far more miserable than the disease itself... just in case? I've said no, no, no. I've actually said "no" to everything except Entocort and Pentasa. I think one day he'll just knock me out with a baseball bat and give me the azathioprine anyway... turn

But I don't see why I should take medication that will be worse than the disease itself.
Posted 1/20/2012 2:48 PM (GMT 0)
I took Imuran for about 7 years, had a brief hiatus and now I'm back on it for 6 months since my surgery in July. I have virtually no side effects from it, except I get wicked nausea if I don't eat anything when I take it. I've also noticed that I'm slightly more tired when I take it...but I'll live with that over the disease. I am cold all the time too, but I've been like that as long as I can remember.
Posted 1/20/2012 4:12 PM (GMT 0)
Muscle spasms and feeling cold can both be side effects of the weight loss.
Posted 1/23/2012 6:06 AM (GMT 0)
I am only on 50mg a day to keep the risks down I guess.  But the cold chills and muscle tremor in the left did not start until I started the pills.  NOthing bad, just curious about the time coincidence of it.  I should only by on the imuran for 6 months.  The goal to is to only take it in additon to everything else to hopefully get me right back into remission.  I have noticed improvements, but they are taking their sweet time showing up.
Posted 1/23/2012 7:47 PM (GMT 0)
I don't tolerate the cold as well as I used to but I never thought to associate it with the Imuran, hmmmm. Maybe time for some more research:)
✚ New Topic ✚ Reply