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Crohn's Disease
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Posted 1/31/2012 7:03 PM (GMT 0)
Around jan 15th I was doing fine was 115/120lb feeling good and everything. Suddenly the past 5 days I have been in terrible shape, I have lost 20 lb (115->93lb), fatigued constantly and I can't eat enough.

My appetite before was above normal (like 3x greek yogurt+snacking throughout the day, lunch, dinner) to now like a normal lunch, maybe a couple snacks, and dinner.

The crux of this situation is my mother (I am recently 18) is dealing with her last parent (mother) dying and she is at our home as the last place and I am not voicing it because I don't want to seem to be in competition for affection or just (as I just told my mother I am 93lb and said to me) "stop being an a*****e".

I literally do not know what in the hell to do and I am typing this with frustration as to something always is f'd eh?

Any help on how to handle this would be appreciated.
Posted 1/31/2012 7:19 PM (GMT 0)
I'm really sorry to hear that you're in such a tough situation. It sounds like there is just too much going on right now. You are flaring. Your mom is dealing with what's going on with her own mother and you being sick on top of it sounds like it's too much for her to deal with. Oh man, that is so unfair to you, but you sound very mature and able to understand the dynamics of the horrendous situation you are in.

My advice to you is: 1)contact your GI and leave a message with the nurse. You need to tell them what's going on so they can bring you in to see you or adjust your meds, etc.

2)Be patient with your mom. It's not fair how you're being treated, but she is probably at her wits end - she must be if she told you to stop being an "a-hole" just because you expressed your worry over your weight. Is your dad around? Or do you have another sibling you could lean on for support? You need someone to be there for you right now.

It's no wonder that the stress of your situation isn't helping things. I'm really sorry. I hope that helps a little. Hang in there and no matter what is going on with your grandmother - take care of yourself!
Posted 1/31/2012 7:59 PM (GMT 0)
I am only on remicade, no supplemental medicine, siblings all live 2hrs+ away, and my father is....not dependable in my mind/to me, and I don't know what to do at all. I don't have my GI contact information I wish I knew exactly what to do to fix my situation :/
Posted 1/31/2012 8:47 PM (GMT 0)
One thing you can do is find a good friend and hang out with that person for the next few days to destress. Also, see if there are friends of the family who can get some of the load off your mother's back - bring in meals? Stay with your grandmother so your mom can get out of the house?

You should certainly know your DR's name and you can look up contact information on your computer.
Posted 2/1/2012 12:07 AM (GMT 0)
Yeah you definitely need to concentrate on your health issues and let the rest of it go for now. I hope you have a way to destress and make yourself a bit happier. I agree that if you can leave the house for a bit and get a little peace that might help you to get some of your balance back.
Good luck!
Posted 2/1/2012 1:28 AM (GMT 0)
Losing 20lb in five days qualifies as an emergency flare-up to me. If you were in the UK, I'd advise you to go to A&E (equivalent to ER) and let them admit you into hospital for tests and temporarily fixing you up with steroids and antibiotics. Heck, I'll advise you to go to ER anyway, assuming paying for it isn't an insurmountable obstacle.

As far as getting your GI contact info is concerned, just phoning the number of the hospital you go to will be enough. Switchboard can put you through to the gastroenterology department, who can give you a contact number for your GI or at least his secretary.
Posted 2/1/2012 8:06 PM (GMT 0)
I got in contact with my GI and having an appointment this Friday, I now have blood clots on the TP about every time I wipe now (past 2 weeks, didn't think much of it.) I guess I should have. Thanks for the nice comments and helping me a bit even if it was just words.
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