Ileostomy update

Monday morning bright and early i was taken down for surgery. During the surgery along with the two microperferorations they found another, bigger perforation in my colon also. So i got very, very lucky. I also remember absolutely nothing from leaving my room until the day after my surgery. I think ativan took care of that. Today they're going to make me walk, im hoping it goes well...

Hi Andi,
It is so nice to hear from you and I'm so glad you are doing ok. I hope your recovery goes well! Congrats for getting the surgery over with!!!!

So good to hear from you, wishing you an amazing recovery.

Yikes! Close call, good thing you went ahead with the surgery.
Thanks for the update. Please keep us posted..
And..

<<<<<<HUG>>>>>>

Sincerely,
Matthew

I finally saw the bag yesterday... Still havent touched it. One thing at a time with this. I had a bunch of problems yesterday though, one side of my picc got clogged and it was the side with my pain meds.y nurse was freaking out so much and stressing me outy stomach was spasming no matter how hard i tried to relax. I ended up getting ativan which helped but knocks me out. I at least go out and sat in a chair for awhile. Today is a walking day. Kind of anxious to see how stiff i am...

Thank you so very much for bringing us up to date!!! Walk, Walk, Walk. It really does help recovery immensely. Wishing you a fast and uneventful recovery!

Hi Andi, sorry have only just seen the thread about your ileo as have had computer problems. I had my ileo done at 20yo (that was 20 years ago) and although initially it was done as a loopileo so I could have it reversed I never did. My colon was so badly damaged that it was never going to be an option. When they first mentioned sugery it scared hell out of me and like you the thought of having a bag at 20 yo just didn't seem right. But, the day after surgery I woke up and for first time in 2 years was not running hell for leather to the bathroom and apart from the incision pain had no pain in bowel. It was absolute bliss and best thing I could eat anything I wanted and not have to worry about being close to a bathroom.

Contary to my belief that it would curtail my social life and who the hell would want someone my age with a bag stuck on their stomach it actually gave me my social life back. The previous 2 years I couldn't go out with my mates as was either in too much pain or couldn't be anywhere without access to toilet without having to queue. Then after the op, and obviously recovering which was about 6 weeks as was really ill before it was done, I was out and making up for those lost years.

I have never regretted having my ileo done and in fact wish I had had it done sooner and saved myself all the pain and suffering I went through. It can take people a while to get there head round the idea of having a bag, whether temp or permanent, but see it as a means to an end. You want to be able to eat, live and enjoy yourself without running to the bathroom and being in pain. Hopefully this will allow you to do this and once you start to feel stronger it becomes easier.

Have a look over on the ostomy forum as there is loads of good advice for us that have gone through it and most, not all, have had it dine for either CD or UC. Honestly, even it if seems like it, having a bag isn't the end of your life as you know it but the start of being able to actually live your life as you want to. Take things easy, walk loads and fingers croosed you'll be feeling much better soon.