LDN or bacteria transplant

WOW! You have a doc that will actually do a fecal transplant! I have not heard of any willing to do that. I've only read about people giving one to themselves. Where is your doc located? I would love to have his name just in case I ever get brave enough to do that. I don't know if I could, but if I got desperate enough, I might try anything. :)

The doc is in Tampa, Dr. David Shepard. Like I said I don't know if I am willing to do the fecal transplant, I just heard of it today. He said most people obviously use family members and it is tested for an array of things. It is given back to you so to speak via a colonoscopy. If I guess desperate enough...never say never. I think I am going to seriously look at LDN.

Not so far out an idea. The fecal transplant. Israel is working on an autologous vaccine, a similar idea. Except they use your own intestinal "ingredients" to make a vaccine that they then give you.

This has fascinated me since I first read about it.

Years ago whilst my hubby was still in the Corps he broke out w/huge painful boils all over his body. He couldn't sit or lay down except on his elbows and kneed. VA hospital first suspected diabetis, then when they couldn't find any cause or treatment they ushered him into a quarantine unit. Finally VA gave up and brought down some doctors from Mass General.

These doctors said they'd kill him trying to drain every one of his boils. They did draw serum, flood, etc. and took it back to Boston w/them where they developed an autogenous vaccine, came back and injected him with it and whatever caused all those miserable boils plus the boils healed and disappeared - and he has never had another boil.

Farmers have used autogenous vaccines for years for their dairy herds for mastitis, etc.

I saw this and had to reply.

I have CD, have had 2 resections, last one in April of 2010.(went badly too)

I have had reactions to all meds taken so far (some bad).

I started taking LDN this past November as well as gluten free and have been doing ok so far.

Absolutely try the LDN first, you have nothing to lose as there are virtually no side affects.
You will need to alter diet as well (mostly gluten and dairy) for best result.
Google LDN and crohns there are several active boards on it.


Also I had chronic D after second resection. Stopped after I started taking S. boulardii. amazing probiotic IMO.

Best luck to you!

MC
also taking krill oil, tumeric, Vit D, Vit B12

moldycheese, I soo echo your choices, I have done great too after replacing bread and pasta with gluten free bread and pastas.

I first thought that these choices would give me a tasteless impression and unpleasant meals, but the breads that I make myself once a week are easy to make and are tasting absolutely terrific. I am not making the pastas myself, because the brands that I'm buying are tasty.

Vitamins and medicine may contain gluten. Sauces and soups also. So one have to read all labels.

Krill oil is now found to be the best of the omega 3's to reduce inflammation. Also turmeric are doing a good job. Now we also know that a lack of vitamin D may lead to inflammation, so the D's are good for our health. Saccaromyces Boulardii is a yeast that is reducing diarrhea and balancing the microbiotic life in our intestines.

LDN has been my only medical choice for 5 years. I am not allowed to use any traditional Crohns medication, because all of them may lead to a weaker immune system, and I really need a strong immune system because I have a rcc diagnose.

Low Dose Naltrexone may lead to remission. The remission rate is the same as by using Remicade or Humira. LDN gives only mild side effects the first weeks on it. When the body is adjusted to LDN, the side effects are gone.

A professor in pharmacy said; taking LDN is a no brainer, it's as dangerous as a vitamin pill, and may help reducing the inflammation.

If you go to yahoo and register there, you'll find LDN groups for MS, LDN and IBD, (Crohns/UC and other gut issues) ldn and fibro, LDN and depression, ldN and arthritis, psoriasis....

LDN is helping hundreds of diseases by increasing the beta endorphin levels in the immune system. The body will start to fight the enemies and do the job it was meant to do. Why wait?

My daughter has been on 4.5 mg LDN for years and we know that it works, but only up to a point - she added Pentasa last year, and not only do her labs look better, but no more need for B12 shots.

The LDN by itself eliminated symptoms but the labs were not as good as when the Pentasa was added. Also, while on LDN by itself she had trouble absorbing B12 so needed monthly shots.

Since taking LDN she have never been healthier in terms of non-Crohn's issues, like being able to fight off viruses.  

Just another opinion but I think the fecal bacteriotherapy is an awesome opportunity to really correct your intestinal flora. My advice is to seize the moment! I would love to go see your doctor (live in NY). Is this him?

http://tampaendocenter.com/physicians/r-david-shepard-md

Where is your crohn's located if you don't mind me asking.

Steve,

Thanks for the update.

Are you planning to do the FT with Dr. Shephard?

Do you know how much he charges? And his protocol?