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remicade and tingling hands and feet?

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Posted 3/8/2012 3:02 AM (GMT 0)
I have been on remicade over a year now -and it has worked well!
Over the last couple of weeks I have been getting some slight tingling in my hands and feet.
It is not too bothersome - off and on, gets worse with movement (eg typing, walking).
Has anyone else on remicade experienced this?
I have remicade booked for Friday and I am wondering if I should delay it and see the doc instead...
Posted 3/8/2012 3:06 AM (GMT 0)
Yes, BUT never on Remicade (never been on it) when I was experiancing tingling in my fingers, blood test showed is was low B12, tingling was first signs of permanant damage to my nerves if I didn't get my B12 in check. You should get yours checked if you haven't yet....it's very common for CDers due to absorbtion issues.
Posted 3/8/2012 4:30 AM (GMT 0)
those are some good ideas - I will ask my doctor - do you think it is still safe to go ahead with my remicade on Friday?
Posted 3/8/2012 4:23 PM (GMT 0)
I don't see why you can't go ahead with your infusion. Like PB4 the tingling I had was because of low B12 levels, as soon as I started shots & it was at a normal level the tingling went away. But check with you doctor just to be sure.
Posted 3/10/2012 1:05 AM (GMT 0)
I had numbness in my big toe and tingling in one arm when I was on remicade. My GI sent me for a nerve conduction test and I was told this is a side effect of the Remicade. I got three good years on remicade before I got remicade induced lupus.

I think you should mention your symptoms to your GI, and I wounlnt be surprised if the nurse administering the remicade has heard thias from other patients as well.

Julia
Posted 3/10/2012 5:03 AM (GMT 0)
Thanks everyone - I got my infusion today and feel fine. The nurse hadn't heard of it - but I will mention it next time I see my GP - unfortunately (and fortunately) I don't see my GI until the end of the year!
Posted 3/10/2012 5:28 AM (GMT 0)
I hope you'll be seeing your GP soon? Like I mentioned, the tingling is the onset of permanant nerve damage due to lack of B12 (which is quite common for CDers) if that happens to be what is causing your tingling issues....it's a blood test for them to check your B levels that your GP can send you to have done.

Feel better soon!
Posted 3/12/2012 4:50 AM (GMT 0)
Thanks pb4 - I will ask my GP next time I am there.
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