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Just got back from CCFA Nutrition Class!

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Crohn's Disease
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Posted 3/11/2012 11:44 PM (GMT 0)
I just got back from the CCFA Nutrition class & everyone there was in remission so I was really jealous & happy that people have had success!

 First off, I honestly didn't want to go because I was sick and didn't feel like getting nagged about my eating habits(I eat one meal a day..)but the RD/RN conducting the class was very sweet and had a daughter, who like me, refused to listen to someones nagging about their foos choices when they feel like crud. The nice lady offered me great ways to try to add calories to my meal & told my mom a list of snacks I could eat that would be soothing & healing.

  While there, I got to meet two nice families who both have sons my age with Crohn's & they invited my family to join their new support group for people & families with IBD & my mother was almost in tears! It just goes to show IBD affects families too! I'm excited to go!

 I'm very excited to go to the walk-a-thon this June in my state that's CCFA sponsored too! It also happens to be right next to my GI's office & he's apart of the cause too & will also do the walk-a-thon! I have a friend who went to it last year & she said it was HUGE & FUN! So get involved with your CCFA Chapter!

  Call me a 'kid' but I'm most excited to meet two guys, my age, with CROHN'S! turn Social & dating life here I come!

 

Posted 3/12/2012 12:10 AM (GMT 0)
That's great you received some good info and are able to meet other people your age with Crohn's. That should help out a lot... I know I would have liked to had somebody I could have talked to that knew what I was dealing with when I was first diagnosed.

Good luck with getting to remission and hope you have fun at the walk-a-thon
Posted 3/12/2012 12:18 AM (GMT 0)
Great news! Hope you click well with your new friends.
Posted 3/12/2012 1:36 PM (GMT 0)
Sounds like you had a thoroughly good and productive day,i'm so glad for you and it's great to hear the positively upbeat attitude you have, "All good things come to those who wait" pretty soon you'll be fightin those guys off LOL Slainte
Posted 3/13/2012 12:22 AM (GMT 0)
@DT19&99: It was great meeting other Crohnies! Especially the ones who have found success with medication/diet! I'm very fortunate to have a great supportive family who encourage me to go to these events.

@Tdawg: Actually, one of the moms told me her son goes to the summer camp every year so since we live in the same area we'll be camp counselors together at the camp ;) Hahahha I'm excited about getting more involved in the CCFA! I'm planning on majoring in Gatsroenterology(Pediatrics) or working with kids with special needs so this camp would be a great opportunity to get some practice!

@Conmire: Hahaha oh yeah! Guess we'll see this Summer what happens :) Too bad I look too good for most guys and my standards are high....I'm kidding! ;)
Posted 3/13/2012 12:34 AM (GMT 0)
I'll second the comfort that is found when you meet someone else with Crohn's. I learned a valuable lesson during this last flare that might help others. I like to hide my illness as much as possible and while I won't hide the fact that I have Crohn's, I don't announce it either. about a month ago, I got to the point where I felt I had to start being upfront and open with my coworkers and other people about what I was going through. I talked to each of my coworkers, apologized for missing work and not being myself and asked them to have patience with me during this time. It took so much stress off of me! I had done all I could and if they wanted to be mad about my sick time...that was their own problem (I don't think anyone was). Then I talked to one of my fellow dog rescue volunteers and explained that I didn't want to foster dogs right now b/c of this. She has IBS and was completely supportive and I haven't had to deal with the guilt of saying no to requests to foster dogs. Finally, I fessed up to the volunteers with my alumni group and not only were they completely supportive but one of them (who I have known for 5 years) also has Crohn's. All of this allowed me to just focus on myself and healing instead of worrying about missing work or volunteer events. I wish I'd done this a long time ago. Just wanted to share in case it helps anyone else.
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