Well today we took Kota to get allergy shot. Then went to hospital and had urine test done and Lab was suppose to have standing orders for all the lab work that is suppose to be done weekly. Well they said they couldnt use the one from last week. So we had to wait for the GI doctors office to fax new orders. Well an hour later and 10 minutes before we were suppose to be at GI clinic they got the fax. So we got blood work done and then went to GI.
We got to GI office and doctor came in and asked how Ko was feeling. Ko let him know he feels the same stomach wise. But now he feels tired and achy. He let him know that he was having alot of trouble sleeping. I let the doctor know about the concern of the heart rate, swelling and numbing of the feet. He acted like he didnt know anything about Kota being at the hospital Thursday with the high heart rate and the swelling of the feet. Acted like it wasnt a big deal.
Then I told him he says his knees and shoulders ache all the time. He said he had no idea why that was happening. I said he had been in alot of pain but doesnt see the point in taking tylenol when it doesnt do anything. He said well he can take Motrin. I let him know 
UH no he cant.. He said it wouldn't be effected by his crohn's. Okay well we were told years ago he cant take it becasue of his nose bleeds. He said well one dose want effect that Uh yes it will because the first night I called GI clinic and you were on call before Ko went into the hospital you advised me it was okay for him to take Motrin and guess what we woke up the next morning to nose bleeds. He said well if his pain is so bad that tylenol is not helping then he needs to be in the hospital. Well thats great now Kota will not tell me that he is hurting out of fear of having to go back to the hospital.
He then said we needed to treat Ko like a regular 12 year old boy. Okay we pretty much already do. He has chores, he does homework and etc. I told him he stays so tired but cant sleep. Its been 4 in the morning the last few nights/mornings before he goes to sleep. He will lay there for hours and not be able to sleep. Well I have always been the type of mommy thats not asleep til my kids are sleeping. So I know when he is sleeping. He said well when he was a 12 year old boy his momma would have smacked him if he wasnt asleep at 4 in the morning. (Well your momma is not Kotas momma). He said there is no reason why he isnt sleeping. He asked what time he wakes up in the mornings. I said he gets up at 8:30 takes medicine and eats breakfast and then goes back to sleep until about 9:30-10. He is homeschooled so I have been working his days around him and how he feels. We have been having to do class work when he is laying around but he hasnt felt like doing alot at a time. He said he shouldn't be sleeping during the day or really having to rest. If he didnt rest or sleep during the day he would be tired at night. Which I call bullcrap on that. I know Ko and know his not sleeping at night has nothing to do with the day time. He is so tired. HE said he had no idea what to do to help him sleep. Because he has never had troube sleeping. He said we could try melatinin (sp) we have tried that in the past but caused head aches.
Then he said just like any other 12 year old we have to watch his weight and not let him get over weight. He has gained 5 pounds in 3 weeks. I said yes I understand that can you give me any ideas what he can snack on because he says he is always hungry but your office said he could not have any fruits or veggies. He once again said he really didnt have any ideas on snacks. We just had to watch his weight and he didnt need to be gaining weight or snaking. Okay great now Ko is going to be worrying more about his weight. He already gets so upset because he says he is always hungry. Doc said he needed to get more active. Outside playing, walking running or bike riding. All things Ko loves to do and use to do but says now he doesnt feel like it. Plus I worry him running or being really active with a heart rate thats staying at 115 and up. If he feels like he is running when he is really just sitting still.
We are taking 17 year old son to see this GI doctor on the 2nd on April because he has always had trouble with his stomach and had blood in in stool.
So I got a little discouraged at the doctor today and I know Ko did. Because he was in a horrible mood when we left there. I feel we didnt accomplish anything. He still has high heart rate, still going to be in pain, still cant sleep, and now worry about him gaining weight.
Sorry for the vent