Posted 3/12/2012 1:19 AM (GMT 0)
My grandmother had disabling rheumatoid arthritis and died a month before I was born. My mother had ulcerative colitis and was told at the time that if she wanted kids she had to have them right away (for her it was age 26). her first pregnancy actually went pretty well since she was off meds (also told she couldn't be on any while pregnant - I know that seems to have changed). When my mom was pregnant with me - her second child - she had really bad flares and was hospitalized for two months immediately after I was born. She ended up deciding that an ostomy surgery was the best way to go. Obviously that changed her life/lifestyle but she seemed generally okay with it.
She was later diagnosed with a benign brain tumour (the size of a baseball) and had brain surgery to remove it on my first day of grade eight. She had double vision, hearing loss and balance issues. It took months for her to learn how to walk again, and the medication she was on had terrible side effects. But she managed (and so did the family). Then she later found out she had ovarian cancer and needed a hysterectomy and then chemo.
Apparently the chemo stopped the brain tumour from growing again (they didn't quite get it all out the first time) so once off chemo it started back up again. She needed radiation for that...
Then when she started having pain again in the rest of her body - her doc told her she was lactose intolerant - then that she had arthritis...ONLY then, did they check for cancer...and yes, it was cancer again.
My mother died a week after I graduated high school, after I had been taking care of her for 3 years after my dad left. (He left in a brief time of wellness - not when she was sick).
I was grieving of course, but honestly - as my mother's main care provider throughout my high school life, with a constant up and down of her health - I also felt relieved when she died, that I wouldn't have to watch her die anymore and that I wouldn't live with the constant fear of 'what's next'. There was always something next.
Now ten years later - I miss her TERRIBLY. I was too young to process most of what she was going through at the time so I never really understood or know to ask questions. I can't imagine what she went through, although now I am beginning to relate to what she must have been going through.
I was only diagnosed with Crohn's last month - and while I was waiting for results to test after test, the possibilities of cancer or colitis or whatever else...the one that scared me the most was the colitis (I didn't know anything about Crohn's) because it is chronic, it can severely impact your lifestyle, relationship etc etc etc...with cancer you don't have to live with it forever because it either kills you or you get better. Now I didn't go through my mom's hell but I watched it.
I never really thought I wanted kids but as soon as you think it's not an option - all kinds of crazy things happen in your head. And I think my husband might be leaning more towards the idea these days.
Now I can say that as someone who grew up with a sick mother, and someone who's since been diagnosed, that I wouldn't give up my life for anything. I'm glad to be here, I just wish I had more time with mom, especially as an adult. And now, especially knowing I could have had someone who would have helpful advice due to her own experiences with this disease. It definitely isn't her fault. I do not blame her. (the world on the other hand...haha)
She was someone who would never have given up - and I don't think she would ever have said not to have kids. I was told my whole life by doctors that my mother's conditions weren't hereditary and now here I am - hopefully I'll only get one of the many.
So I will definitely get my situation under control before I even think about having kids - but I have a brother who doesn't have Crohn's, or any other major health problems that we know of, and we can't prevent most cancers and accidents and everything so really if it's not this it will be something else. (and i didn't mean that to sound so negative).
Sorry this was so long...sometimes I rant.