Could I have Crohns...unusual presentatio???

I have been ill for 4 years with no definitive diagnosis and I have had many CT scans, MRIs, 5 colonoscopies,etc. I had 2 colonoscopies that showed focal active enteritis with pyloric gland metaplasia and an egd that showed duodenal mucosa with focal gastric foveolar metaplasia. Looks like Crohns but symptoms don't really match.
I don't really have stomach aches; I do have 1-3 bowel movements/day sometimes loose, sometimes not...I have swallowing problems and swelling of throat and tongue with sore thorats, reflux, mild esophageal dysmotility, severe pelvic pressure when I sit, mild facial flushing at times, etc.
I have gained weight in last 4 years, but have little appetite.
I am so confused. I am wondering if it is Crohns, Carcinoid Cancer (no tumor found and markers normal except one non specific marker), some other cancer, or what else could it be. The docs are stumped. I am also anemic on and off with Normocytic Anemia and have a high sed rate on and off, as well as pre-diabetes out of nowhere.....nothing really found on CT or MRI.
Any thoughts....does anyone have Crohns with atypical symptoms like this? I will probably go to Cleveland Clinic for another colonoscopy/egd....thanks so much. Debbie

What about swallowing a pill cam to be sure? Or how about using some of the safer meds used for Crohns', like Pentasa, to see if you feel better?

I am wondering if anyone has had unusual presentations of Crohns?
I will go to Cleveland Clinic and try to get more answers but so far they are not sure if I have it as my symptoms are different eventhough the colonoscopy shows regional enteritis with pyloric gland metaplasia and duodental metalplasia.
Has anyone had Normocytic Anemia, or throat symptoms...or any unusual symptoms.
Thanks so much for any help here. DEbbie