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Malabsorption/Supplements with crohn's in TI/upper GI?

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Crohn's Disease
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Posted 3/21/2012 3:00 AM (GMT 0)
I've always wandered this but I always forget to ask my GI(he gives me ample time to talk it's just some things are on my mind more).

When you have Crohn's affecting your upper intestines/TI and you have malabsorption issues while flaring, do you still have malabsoprtion when in remission due to damage in the TI/Upper intestines?

Do you take supplements even when you aren't flaring? Why?

I'm pretty sure I'll stay on my vitamins & supplements when I'm flare free(I need to store it for "ranier days" ya know?) but I have had VERY bad malabsorption issues & it still seem to kind of be a problem, though not as bad. I'm just wondering if it's possible to have malabsorption while flare free. My GI did mention I had some thickening in that cecum/TI area.

Posted 3/21/2012 5:25 AM (GMT 0)
I take vitamins continually, regardless of flares, and they have made a very big difference in my Crohn's symptoms, mood, and energy levels.

My favorites:

Niacin (which is also excellent for depression, insomnia, and cholestrol. It works as well to lower cholestrol as any prescription pharmacuetical and is often the first medicine prescribed for such. But do NOT buy the "no flush" kind - it has been shown not to work as well).

B12, obviously. I do IM injections twice monthly and take sublingual tablets twice daily.

Calcium

Folic Acid

Others that I take daily that help but not as dramatically:
Thiamine
D3

I do not take vitamin C because I am female and it has a propensity to promote UTIs since it changes the urinary pH.
Posted 3/21/2012 11:42 AM (GMT 0)
Yepp. I have scar tissue their as well as througout the colon. My last colonoscopy showed inflammation of scar tissue. It was diagnosed, and as you can see, is being treated. I was just wondering about if some people have found a way to get off the supplements when they've been flare ree.

Thanks ya'll!
Posted 3/21/2012 5:28 PM (GMT 0)
I take a multi-vitamin and Florastor probiotics along with fiber pills in remission along with my prescribed maintenance meds of Pentasa and omeprazole for reflux. I'm thinking of adding fish oil. I hope this helps!
Posted 3/22/2012 11:28 AM (GMT 0)
I get b-12 injections. and have blood work done monthly to track everything. My GP has actually been on top of this more than my GI. In fact she has explained things better. She says that the malasorption issue is not just the inflmation, it is also changed forever when you have surgery, like many of us have, to remove the TI and damaged small bowel above the TI. each part of the small intestines has specific things it does and processes. so once you remove that, it can no longer function like before. Supplements, injections, change of diet all of these are part of finding the right balance to help you system become healthy. I hope this helps
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