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I might need my pred again

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Crohn's Disease
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Posted 3/21/2012 11:19 PM (GMT 0)
Never thought in my wildest dreams, but i think i need to go back on the pred, ugh! My joint pain is getting worse, despite asacol, Vit D, b12, and folic acid, oh and MTX, can i add y and z while I'm at it?!
I thought i was doing fine without that love/hate relationship with pred:(
Does anyone else feel the same way?
Posted 3/22/2012 8:57 PM (GMT 0)
Sorry that you are suffering. Why don't you call your doc and ask him about his opinion? If you could get rid of the "evil pred why would you get back to it? Based on a lot of posts at this forum, asacol won't treat joint pain. You need Sulfasalzine. Exhaust all available options before returning to pred.
Hope you feel better soon:)
Posted 3/22/2012 10:59 PM (GMT 0)
Yeah, i don't want to go back on that evil drug...i called the doc yesterday and told me to hold off on taking the pred. He wants to see me tomorrow for f/u. The pain is so bad in both arms and everywhere else, i guess the whole body feels like i ran a marathon, ugh.
My rhuemy prescribed plaquinil last year, and didn't agree with me.
I'm guessing he may give me b12 injections?
Ill keep you posted...

Thanks for listening:)
Posted 3/22/2012 11:06 PM (GMT 0)
I'm currently on MTX and humira and my joint pain and swelling haven't gotten better since re starting  mtx but pred actually makes it worse!!!!! I was actually disgnosed with RA while I was on a 3 month dose of pred.
I got off of MTX for 3 months to try and have a baby but with in 5 weeks of stopping it the arhtritis got out of control i went crippled basically. So I gave up and went back on it but this time around it just isn't doing it :(
 

But if it helps you I'd say do it... worth the side effects.... I'd do anything right now for some relief like I had last year
good luck and let us know what the doc says!!

Posted 3/22/2012 11:48 PM (GMT 0)
Oh, i forgot to mention, my doc said not to stop the MTX or my pain will only get worse. He told me that while still on the pred. I used to take 6 pills, then he lowered down to 5 cause i felt very tired or just spacey the next day. maybe he'll put me back on 6pills again.
I wish i didn't have this disease, and i know you feel the same. Maybe, just maybe, someone will find a magic pill for us crohnnies :/
Posted 3/24/2012 9:37 PM (GMT 0)
Okay, this is what my doc prescribed yesterday...
MTX 6 pills instead of 5. Pred 5mg. and wants to see me in 2 months. I feel a lot better now, but i know how damaging the pred.can to your bones:(
I know there must be an alternative, Entocort maybe? I've tried the gluten free diet, and didn't work for me. One month later, while on gluten free diet,i had a really bad flare that i ended up in ICU with severe bleeding. Maybe i had the flare bc i ate a triple berry pie that my neighbor gave me for xmas?
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