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remicade causing lupus like syndrome??

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Crohn's Disease
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Posted 3/27/2012 1:47 AM (GMT 0)

i have been on remicade for 8 months. i just recently started to have side effects. achy joints and being very tired a couple weeks b4 my next treatment. i believe my symptoms are lupus like. would it be smart to come off of the remicade? and try another method.? has anyone else had this happen? confused

Posted 3/27/2012 2:57 AM (GMT 0)
That is something you really need to discuss with your doctor
Posted 3/27/2012 3:30 AM (GMT 0)
Do your symptoms get better after your infusion? Either way you should check in with your doctor.

I had fatigue and joint pain that got worse after the infusion, and it all went away when we stopped the remicade.
Posted 3/27/2012 12:52 PM (GMT 0)
my symptoms do become better after the infusion. but it just doesnt seem worth the pain and stress b4 the infusions. i will definelty discuss this issue with my doctor. hopefully there is something else to keep my crohns at bay like the remicade has done. i enjoy how well it has worked so far. the the joint pain in unbearable at times and makes me second guess the infusions after all. thanks for the relpys.
Posted 4/13/2012 3:35 PM (GMT 0)
I also seem to get extreme fatigue and joint pain starting after my infusion. But my UC is doing well. My doctor just keeps telling me to tough it out. But it is so hard, I'm a single mom and have a full time job. I try to go to the gym, but in the weeks right after the infusion it is almost impossible.
Posted 4/13/2012 5:26 PM (GMT 0)
My 14 year-old has only had two injections so far and appears to be doing well. He is also taking Colazol 6x per day. The nurse always gives him two meds, benedryl and motrin before his injections. Do you get meds before injections?
Posted 4/16/2012 2:44 PM (GMT 0)
i have made an appointement with my doctor. so hopefully we can talk about another way. i havent had any relief from my sore joints. my hands are puffy and im unable to work because of this. :( as for taking any meds b4 injections no. i was never offered anything. i dont respond well with motrin. it hurts my belly badly.
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