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is it normal to feel like a 90 year old at 34? crohn's is it this bad?

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Crohn's Disease
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Posted 4/18/2012 11:59 PM (GMT 0)
DX in 1998 with CD I realy have back pain lower and on upper left side, can barely suport myself or get up my knees hurt so bad and in the morning and can barely get of the bed so much pain and swet like I was beaten like hell in the night, is crohn's realy that bad? sorry but I have so many questions about it now! I was always scared of what people would say, now I feel like I have friends here and I belong somewhere! thank you all.

Gaby

Posted 4/19/2012 6:50 PM (GMT 0)
Yes, all of that can be from your untreated Crohn's. I'm sorry you're feeling so poorly.
Posted 4/19/2012 6:55 PM (GMT 0)
gaby,

i feel the same way. I feel horrible all the time. the people on this forum are great to ask questions to and have told me once i get it under control, HOPEFULLY, i will feel better.

Right now i'm sick with a cold i've had for two weeks and its getting worse not better. My immune system is horrible now with fighting off simple colds. I know once my kids get sick with something i will eb sick within the next 2 or 3 days.

Posted 4/19/2012 7:24 PM (GMT 0)
Hello everyone,
i have been diagnosed with Chron's and RA in 2011, was on prednisone which worked great but is supposed to be really bad--was switched to methotrexate which makes me tired and my hair is falling off--my RA doctor corrected me 'it is just thinning' i wanted to kill him on te spot--he himself is bald, what does he care?! Still the met did not work am considering imuran but it seems the side effects are the same. I am wondering if there is anyone on this earth that has dealt successfully with both these issues in a natural way? I still think there should be a reason why the immune system is triggered and if that is addressed, then we don't have to suffer with the side effects of chemotherapy and esp. lowered immunity.
I feel way better when i eat fish, am taking fish oil, there are many antiinflammatory enzymes and supplements including turmeric and ginger, but being unemployed for 2 years i have no money anymore for supplements.
It does feel horible when the condition is not treated, and even when it is treated it does not work well, how do people maintain a job with it? Anyone? I am considering applying for SS disability. Still i believe there mush be a way to deal with it that is beyond the regular doc's office. Has anyone been treated with regular meds for these and is feeling back to their normal self?
Posted 4/19/2012 7:36 PM (GMT 0)

When I was in an active flare, I had the night sweats & the severe joint pain. I did not get any relief from this till I was put on something to suppress my immune response..All this can be caused by uncontrolled crohns in an active state..Mine attacked my glands per my doctor..I was told I could only take tylenol too and did not test positive for RA..I slept w/ heating pads to no avail..The night sweats were awful but I did go into premature menopause early which they say is common for autoimmune suffers--all this came on at about 34 years old..My symptoms were more like bad IBS then the ball dropped..!!

Posted 4/19/2012 9:34 PM (GMT 0)
Hi everybody,
guys, please,please, listen to me! I beg you all to read my post. It is under Ulcerative colitis, under name Lookforcure. Read my story. And, please, for your sake, try to take Terramin or Pascalite clay. Terramin is great for those with anemia and bone issues. Pascalite is absolutely great for the immune system and pain. Both of them are strong anti-inflammatory. You do not have to take both, just choose one. It is not that pricey. I do not sell them or benefit in any way by telling this! It is just these 2 clays really and repeat REALLY HELPED ME!!!
Please, at least research these 2 clays.
Posted 4/19/2012 9:45 PM (GMT 0)
Link to scientific evidence? Thanks in advance.
Posted 4/19/2012 10:45 PM (GMT 0)
Here are just some of the researches about the Terramin clay:
http://www.californiaearthminerals.com/science/ion-min-research.php
http://www.californiaearthminerals.com/science/ion-min-research.php?15
http://www.californiaearthminerals.com/science/ion-min-research.php?10
Posted 4/19/2012 10:53 PM (GMT 0)
Sorry, I asked for scientific evidence, not marketing materials. eyes
Posted 4/19/2012 11:43 PM (GMT 0)
Here it is for your pleasure and education, I am sorry I do not have the phone number for NASA.
http://en.wikipedia.org/wiki/Medicinal_clay#Internal_use
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2413170/?tool=pmcentrez
http://www.ncbi.nlm.nih.gov/pubmed/15709995
And I would REALLY LIKE TO SEE THE SCIENTIFIC EVIDENCE FOR PREscriptION MEDICINES FOR ULCERATIVE COLITIS CURING OR EVEN IMPROVING IT. I WANT TO UNDERSTAND HOW FOR A EXAMPLE COLAZAL, ONE OF THE MEDICINE FOR COLITIS CAN HAVE AS SIDE EFFECTS: ulcerative coliti, diarrhia and abdominal pain! Find me at least one person who has been CURED by taking well scientifically researched prescription medication!!!
Posted 4/19/2012 11:58 PM (GMT 0)
There is no cure, as of yet. And yelling won't change that. There are treatments. Some proven to help; others not. Clay falls into that second category.
Posted 4/20/2012 12:24 AM (GMT 0)
Have you used clay? Many people and I have used it and had amazing results. Clay works. Are you a pharmaceutical rep? You attack everyone who posts anything about alternative treatments. You are very negative and rude. This site is HealingWell.com. I am surprised the moderator has not barred you, yet. There are people who help and others who do not. You fall into the second category.
Posted 4/20/2012 12:40 AM (GMT 0)
How nice.

Because you can't provide the evidence for which I ask, you attempt to make me the bad guy? Is that how it works?

It seems your idea of "helping" people is to suggest, over and over again I might add, a treatment that has never shown any benefit whatsoever.

My idea of "helping" people is to stick to science, research, and facts.

We can let the readers decide which is more helpful. rolleyes
Posted 4/20/2012 1:08 AM (GMT 0)
Where are your facts? Where is any helpful information that you have posted? Did you read any of the information on the sites, including information from the NIH? Wouldn't they post facts? Don't they research things before they post them? Your idea of helping people based on science, research and facts? Where are your facts? Where is your information that you have found that will help people. What have you offered? OK. Let the readers decide. I have posted information that is based on fact. It worked for me and many others. Fact. This help that I have offered compared to the nothingness that you have offered.
Posted 4/20/2012 1:13 AM (GMT 0)
The two articles you linked from the NIH were regarding:
1) The use of clay in treating IBS. Not IBD, but IBS.
2) The antibacterial properties of clay. There is a huge leap to go from something having antibacterial properties to that same thing being a treatment for IBD. Neosporin is proven to have antibacterial properties as well. Does that mean we can ingest it and it's an effective treatment for IBD?

As for my posts, I have over 300 on here. You can read them if you like. They cover a number of topics related to IBD. You have about 50 posts and practically every single one is about clay.

I think I've said enough.
Posted 4/20/2012 1:44 AM (GMT 0)
I have read a few of your posts. You either are a drug rep or work within the drug field. You are biased for the use of pharmaceutical medications. How can you offer any objective and helpful information to people who have been hurt, disillusioned or utterly let down by the pharmaceutical industry? Cancer is not a minor side effect. Liver and kidney damage are not minor nor acceptable side effects. Have you studied about the negative charge on the clay particles? Have you studied about the positive charge on bad bacteria? Whether used internally or externally clay has healing properties. For more than 2,000 years around the world on every continent clay has been used successfully to treat and heal.

Do you have Crohn's or colitis? If not, why are you even here? Let the readers decide.
Posted 4/20/2012 1:52 AM (GMT 0)
Your desperation is showing, and it's not becoming of you.

Why am I here? Because I have Crohn's disease and my brother has UC. Is that good enough for you?

And for the record, I have no ties to the pharmaceutical industry in any manner. I don't see what's so offensive about demanding evidence before recommending a treatment. What is so wrong with that?
Posted 4/20/2012 1:57 AM (GMT 0)
I can't believe someone is here asking for help and the whole thread turns into a dispute. Gaby I'm sorry you are not feeling good right now it does get better, this disease has its ups and downs. The main thing is if that med is not working for you talk to your doctor and try a different med. don't take anything without talking to your doctor first. Good luck.
Posted 4/20/2012 7:43 PM (GMT 0)
I also can't believe all this clay talk. The original poster is asking for help with her Crohns.

Gaby - I'm a 36 year old woman and I feel the same way many days. My back hurts, my gut hurts, I shake & have tremors, my hips hurt, and I'm always tired & weak. Everyone always says, "Wait until you get older, it just gets worse." I myself cannot imagine.

Hopefully we can both get some relief in the near future.
Posted 4/20/2012 8:23 PM (GMT 0)
lol @ beave and lookforacure in this thread.

One, says ...sorry I didn't ask for marketing materials, and the other says I don't have the phone number for NASA hahahahha lol
Posted 4/21/2012 12:05 AM (GMT 0)
Gaby, do I feel your pain...

I'm sitting here alternating a heating pad on joints that are killing me.  I've been having night sweats, joint pain, and worse fatigue the last couple weeks, and I hope this is not my new "normal"

Do your doctors help you deal with the pain?  Some GIs (and PCPs) are so against pain meds and I've been thinking about going to pain management because I'm tired of having to justify taking meds when I'm in pain.

I hope things get better for you.  (((gentle hugs)))

Posted 4/25/2012 2:12 AM (GMT 0)
I just read below that someone quit prendisone because "it is bad"?

I Have just recently been diagnosed with Crohns after being in the hospital for 5 days from a severe GI bleed and seizures.  I have since been on prendisone for six days now.

I dont know what to eat, or not eat.  There is so much conflicting and inconsistant info out there.

Im scared of one day having to have my intestines removed and have a colostomy bag.

Im 34 year old single mom of a small child....  Trying not to stress too much but how does one do that?  Ive heard stress is bad for Crohn's, yet have also been told it has nothing to do with it.

Any info/advice would be so helpful and much appreciated as I am feeling very lost and confused :(

Thank you in advance !!

 

Posted 5/7/2012 2:22 PM (GMT 0)
Just read a few posts on this thread and felt the need to reply.I was diagnosed with crohns when I was 19. I am now 41.I thought my life was over(literally).I could not do anything for myself,weighed 80 pounds(I'm 5'7"),slept in 30 minute sessions,ate only liquids.I was a wreck.The Dr.'s told my mother she may want to "make arrangements" and to go sign me up for ss disability to cover all the medical bills(telling this for those of you considering it).I was scheduled for bowel surgery(last resort) on a Monday.One of my nurses brought me a prayer cloth on Friday and by Monday I was well enough to cancel the surgery.I progressively got better.It was a long,slow process.I am not a religious fanatic but I do believe I was helped by a higher power.But this is getting away from my original point.I know it all seems so hopelss right now because you feel so bad but,you will get better.It has to run it's course.I am usually sick about 3 months and take 6 more to get back on my feet.But, I always do and I always feel better.So, keep you spirits up because this too shall pass.If you give up you will feel worse.So,please don't lose hope.I feel better today than I ever have.It will get better just hang in there.

   Be Well smilewinkgrin

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