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Crohn's Disease
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Posted 5/4/2012 8:34 PM (GMT 0)
Hi Soph, I am also sorry that you are having a hard time with everything and you are pretty much getting good advice from everyone.

I know that you are fairly young and might not feel comfortable with my suggestion, but as a Mom one of the first things I thought about when I read your post was that I would want to know that my child is feeling this way. So why don't you re-read your post and think about sharing it with your Mom, I think she would really appreciate knowing how you feel.  If you don't, that is okay too.

You are still young and have time for the doctors to figure out the proper medications for you and once they do, you will most likely be able to go out with your friends and enjoy your life.

Good Luck Soph.

Posted 5/6/2012 2:13 AM (GMT 0)
I agree with cleanfreak. I also want to let you know my little brother was very sick for almost a year. He has a severe case of crohns. It came on suddenly and he went from completely "normal" 14 year old (almost 15) to months of in and out of the hospital. He was there at least 3 times and each time he was there, he stayed for many weeks. One stay turned into over 2 months. Hs 15 birthday was in etween all of this. He had an abscess, fistula, resection, steroids, remicade doses, etc. he missed weeks of school at a time and did the work in the hospital and at home. This was a very crazy time but I want to say everything was in less than a year. It was a bad year but like I said he has a severe case.

But after all of this he is doing great right now. He is better than me and they tell me mine is a mild case compared to him. He just had his 16 birthday and he is doing completely fine now and he has been for months now. He doesn't have the stomach pains, bathroom problems, nothing. The only way you would know is by the pills he takes and he has to drive 1hr every 8weeks for remicade infusions. He just jokes around about being a crohns victim and knows he has to take his medicine because he doesn't want any chance of a set back.

So I really believe once they find out what works for you, you will be the normal teenager that you want to be.
Posted 5/18/2012 11:11 AM (GMT 0)
Exam season has started at my school and since about a week and a half before my first exam Ive been really nauseous. Before that I felt absolutely fine and had very minimal pain or sickness. Went for my colonoscopy and the consultant said he did see some redness and inflammation in the terminal ileum but it seemed to have settled from the steroids.

Anyway, my exam was on the Tuesday. The saturday before I felt very sicky and the night before exam I was physically sick. I went and did the exam but since then I have been feeling completely rotten!
On Wednesday I couldn't eat nor drink because I felt like I would be sick. I had hot and cold sweats during the night and only slept a few hours. I woke with severe nausea, really bad pain in my right side, a fast heart beat, difficulty breathing and couldn't literally stand. That day I hardly ate a thing, but sipped at Ribena, to get my sugars back up, and tea. I also had diarrhea.
I stayed off school today aswell. I woke up feeling a little better but still had very unsettled sleep. I have the bad pain in my side still and some nausea. I tried to eat some dry toast with a piece of ham because it has been so long since I last ate, but everytime I lie down, I feel like Im going to vomit or have diarrhea. I haven't drank since this morning either.

My consultant advised me to call him if I was feeling any worse, but I can't afford to be in hospital again, as I have upcoming GCSE exams, including a Chemistry module on Monday.
Can anyone advise me on what I should do?
Thanks a lot, Sophie x

Post Edited (SophNoph96) : 5/18/2012 5:22:37 AM (GMT-6)

Posted 5/18/2012 1:32 PM (GMT 0)
You need to replace fluids first of all. I don't know what Rispena is, but I would suggest you get some pedialyte and some liquid meal replacements like ensure so you can get some calories. Sorry you've had such a rough week.
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