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Other Doctors other than GI talking about Crohn's

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Crohn's Disease
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Posted 6/26/2012 1:24 AM (GMT 0)
Crohn's seems to follow me wherever I go. I just can't escape it. I go to an endocrinologist today to talk about PCOS. And the doctor opens up my chart online and talks about my PCOS for about a minute. Then she goes on a rant about Crohn's. She starts telling me that Crohn's affects your bones and asked if I drink milk and eat cheese everyday. She then tells me how the colon works and how it supposed absorb vitamin D. So I should eat lots and lots of calcium so my colon can absorb it better. Because if not the vitamin D goes in my stool. And giving me tips on what I should eat to control it.

I was like why the heck is an endocrinologist lecturing me about Crohn's? Seriously I just saw my GI last month. My Crohn's is under control and I'm doing fine. Well not only does she spend the whole appointment with me talking about Crohn's I just looked on my account and under Diagnosis she put Inflammatory Bowel Diseases aside from Crohn's along with a ton of other diagnoses that don't make sense like Hairiness(IS that even a real diagnosis?). mad
Sorry for ranting. I was just so upset that everything has to be about Crohn's. Is every doctor supposed to lecture about Crohn's? Has this happened to you? I'd much prefer that to be mostly a GI thing. confused
Posted 6/26/2012 2:39 AM (GMT 0)
She probably checked the IBD box so she could charge you for that! Oh, who knows. The hairiness (hirsute?) goes along with PCOS. My old GP used to be very inquisitive about my Crohn's, but she was my GP and was really looking out for me as the patient. And my rheumatologist always asks me about my Crohn's, too. I went to see him because of joint pain as a result of the Crohn's, so he helps me with that. I think endocrinologists end up being a lot like GPs because the endocrine system is involved in almost every bodily function, including digestion. So I'm sorry that you felt you didn't get the right kind of visit, but maybe it will all make sense the next time you meet with this DR. Do you have PCOS?

I'm glad to hear that you have your Crohn's under control. That is great news!
Posted 6/26/2012 6:01 AM (GMT 0)
My short answer to this is yes. I could go into a long long rant myself about a GP that found out about my fistula and thought it was infected when it wasn't, sent me to the hospital and put me on iv antibiotics that says online should not be used for ppl with Crohns. GI wouldnt even see me in the hospital because they told another doc my crohns is under control, which is only somewhat true since Im on high levels of predisone. They threw three different antibiotics at me only to conclude nothing was wrong even though Im still having weird aches and fevers. The gave me iv iron too which messed me up. By my third day there I had shaking fits and random twitching in my face and arms. They said they didn't know what was wrong it was probably anxiety. I felt like i was in a war zone. All because the doc should have left this matter to my GI doc. and since then I still twitch
Posted 6/26/2012 6:33 AM (GMT 0)
LOL, maybe she thought she was helping you with info...guess there can be pros and cons to everything eh....I can just picture her going on and on (likely about stuff you already knew) you should have finished her sentences for her, then she'd have known you were likely on the ball when it comes to crohn's...especially since you have it.
Posted 6/26/2012 10:26 AM (GMT 0)
I would have politely stopped her and said that while it was nice she was taking your overall health into consideration I was there to discusss PCOS. I've had the same issue with a couple of rhuemys and at a corporate health clinic we have available for urgent issues at work. I went in for a nasty sinus infection and the doc wanted my whole CD history!
Posted 6/26/2012 9:26 PM (GMT 0)
I've found this as well, most often than not, everything gets blamed on Crohn's or prednisone. The buck often stops at that and nothing more is looked into.
Posted 6/28/2012 2:53 PM (GMT 0)
I woulg go further, in my case other doctors do not just give lecture about crohn and etc, apparently everything I have or might have comes from Crohn's... yeah, well it is easier to blame crohn for everything bad that happens to me...
Posted 6/28/2012 10:53 PM (GMT 0)
I've found that doctors either 1-blame everything on CD, or 2-don't consider CD as an influence to other illness at all. I've had doctors dismiss symptoms and say it's something I have to deal with because I have Crohn's, and I've also had to stop doctors and remind them that I have Crohn's and can't take meds (like NSAIDS).

Seems like there isn't much of a middle ground.

While I do excuse doctors who don't consider Crohn's (because it isn't their specialty and they don't know a great deal about it) I can't stand when I'm expected to deal with symptoms because it's "part of having Crohn's"
Posted 6/30/2012 1:42 PM (GMT 0)
I had a similar experience with a non GI dr who thought he knew all about IBD. This happened with a dermatologist(yeah, I know, why would they even touch this one..). I have some IBD related skin issues and since my dx is in flux between UC and CD, the dermatologist thought it would be beneficial to lecture me on how my GI is wrong about changing my dx and gave me a list of reasons why. I mean honestly, just look at my skin, tell me if you think its IBD related and let my GI deal with the rest.
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