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About to start Humira, how have you been doing on it? My first Post!

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Crohn's Disease
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Posted 6/28/2012 6:53 PM (GMT 0)

I'm really excited, but trying to temper that excitement as I start my first round of Humira tomorrow.

I've been flaring now for about the past year after being in almost complete remission since my last resection in April of 2007. This past year has brought on a lot of challenging, yet positive changes in my life. I just turned 30 and after having this disease for 25 years, I'm determined to win. My diet has changed to all natural foods (as much as within my control). I've been constitent with my meds, and adopted a New Year's resolution to be Positive. It doesn't always work, as I like many, have my downer moments. But we will win!

If you took the time to read this, I'd like to hear some of your Humira stories if you want to share.

I'm hoping Humira, along with my improved lifestyle, does the trick to get me back to, well, ME! I'm not worried about the needle. I feel no pain from B12 injections and have developed a pretty high tolerance for pain over the years. I've read the drug itself stings when injected... heck, that means its working right?! smilewinkgrin Overall I am being very positive about this process. I hope yours were as well.

Thank you for all your time!

Posted 6/28/2012 7:20 PM (GMT 0)
Good luck! I started taking Humira last March as I was weaning off prednisone. Then also had a bowel resection in June of last year. Humira is my one and only maintenance med at the moment.

Are you using the epi-pen or the pre-filled syringes? I use the pen. I inject in my abdomen...I tried my leg for a while during the time I was recovering from surgery, and found that the thigh hurt me a lot more than the abdomen, so I stick with a stick to the belly.
Posted 6/28/2012 7:45 PM (GMT 0)
I'll be using the epi-pen. Watched the video and tried the pracitce pen. Since I'll be getting the 4 injections tomorrow, I'm going to ask the nurse if trying a couple sites to start would be ok to test the pain threshold.

Thank you Clonehead!
Posted 6/28/2012 10:38 PM (GMT 0)
I have done very well on Humira, and have been on it for at least 3 years (I think...not sure when I went on it). I do have sinus infections far more and take longer to heal than in the past, but it sure beats having more obstructions during the year.

I hope it works as well for you as it has for me!
Posted 6/28/2012 11:19 PM (GMT 0)
My friend was on Remicade for 4 years, and then had an allergic reaction.

He was then prescribed Humira.

He had one injection and had such a severe reaction that he ended up losing all his hair and it hasn't grown back.

You have to know the risks and hope for the best, even if it doesnt always turn out that way.

Posted 6/29/2012 6:59 PM (GMT 0)
I have been on Humira for 4 years - have done great on it..... I inject 40mg once a week and it has kept me going. I also have RA and the Humira keeps symptoms of both Crohn's and RA at bay. You will have more energy and feel better than you ever thought you could. Gook Luck!! I hope you will be MUCH better! I know that I have been.. ;)
Posted 6/29/2012 9:34 PM (GMT 0)
I was on Humira for 3 years and was in full remission until suffering from a postpartum flare, it then seemed I lose it's effectiveness. Those 3 years if remission, however, were the best I felt since setting diagnosed - it was like I never had CD! I hope this is the same for you!
Posted 6/30/2012 4:56 PM (GMT 0)
I have been on humira since march break of this year. Before going onto humira I was having an awful time. Lots of pain and the really annoying urgency. When i started taking humira I found a little bit of relief but honestly not too much. I was still pretty uncomfortable and was not completely better as I had been anticipating. My GI then made me try taking one dose once a week, and if that didn't work then starting remicade. BUT, humira has been wonderful for me ! I am almost in remission! :) I get to go three months until I have to see my GI, which is the longest time since I've been diagnosed that I've gone without seeing my GI. :D
I hope your experience goes well as well! :)
Posted 7/1/2012 1:31 AM (GMT 0)
Hi, I started Humira 2 years ago and it has put me into remission :) I have most of my life back. The Humira took about 9 months for me to be somewhat healthy. Some people put ice on the area prior to injection. Also make sure when you use the alcohol wipe on your skin that you wait for it to dry, less stinging. I have the pen and inject in the stomach/abdominal areas. Having issues with fatigue. I am just so happy not to be in pain.

Please let us know how you make out. I know you will be just fine, hugs!

Vicki
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