Staying positive?

24 years old, suffering from ulcerative colitis. I was diagnosed with ulcerative colitis two years ago. At the time, we were told there were no support groups for some one with such a 'mild' case as mine. Now two years, three colonoscopys, a plethora of meds and two doctors along, my disease is worse then ever, to the point where I've become a near recluse save for the hospital visits. My boyfriend tries to understand, but he doesn't seem to realize I'm as sick as I am. Some times it seems like I have nothing left to live for, only to be shuttled from doctor visit to hospital and visa versa. Can anyone give me any tips on staying positive through my ordeal? It would mean a great deal.

I think you need to remember and be greatful for the areas in life where you are able to contribute. Focus on the positive, and the tiny positive things count! You might keep a gratitude journal and keep track of things like calling a friend to check on them, you were able to clean the bathroom today, you had a meaningful conversation with your boyfriend, etc. Also, do you have any hobbies? I recently taught myself how to crochet and as hokey and old fashioned as it sounds, it's been a life saver to me! I make dishcloths and pass them out to friends who offer support to me as a token of my gratitude. It keeps my hands and my mind occupied and I can do it easily when I am not feeling well. I also see that I've accomplished something, all be it something small.

I've also struggled with friendships, since this disease is so alienating. Try to tell your friends what is going on and allow them to be there for you if they are able. They can't help if they don't understand. The hard part is knowing that you may have some friendships that will dry up as those people are not in a place in life where they are able to give to others in the way you need them. It's difficult but puts life in perspective and for me, has made me all the more thankful for my growing faith, family and a few dear friends.

If you have UC, I personally would recommend giving surgery serious thought. You mention a 'plethora' of meds, so I presume you have tried most or all of the conventional drugs going, in which case medication is probably not the solution for you. There are essentially two, quite different, other paths you can take: surgery or alternative therapies - such therapies include diet, supplements, faecal transplant (don't ask), LDN, etc. On the UC board, they're very fond of their natural diets and alternative therapies, and you will get plenty of info and support there.

If the alternative route does not appeal or does not work, that leaves surgery. Honestly? It would be my first option if I had UC. Surgery basically cures UC, plus you have the option of having a j-pouch instead of an external bag. If you go to the Ostomy forum, there is nobody there who regrets having surgery; most say it gave them their life back. Anyway, I would at least consider it!

I hope this helps to give at least a little hope that things can change.