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How many of you were originally diagnosed with UC?

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Crohn's Disease
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Posted 8/22/2012 11:36 AM (GMT 0)
I'm curious how many you have been told it's ulcerative colitis and later found it's Crohn's?

I don't think I have Crohn's but you never know what the future brings. Sometimes I get the impression it's just one disease anyway, just different progressions. Why is it that in one family there are members with CD and UC?

Just curious.
Posted 8/22/2012 12:23 PM (GMT 0)
My journey started in December of 1999. I first was told that it was IBS so I was treated for that. And had to wait some time before the meds would work but then I was back at the doctor. Then I was told it was UC so they started me on meds for that. And again I had to wait "for the meds to work". Then finally in January of 2001 I had the Colonoscopy and the correct diagnosis of Crohns was then given. So it took just over a year to get my correct diagnosis. Not sure why they didn't just start with the colonoscopy. I actually have IBS too and to top that off my last colonoscopy they saw diverticuli pockets forming. So diverticulitis may be in my future as well.....sigh...... Good luck to you!
Posted 8/22/2012 1:53 PM (GMT 0)
My story is like Laurie's. I went to see a GI in March of 2000, 3 months after the birth of my first child, because of rectal bleeding. He told me I had IBS. After a year, no kidding, he did a sigmoidscope and told me I had proctitis. He treated me with a steroidal foam. Then I got pregnant with my 2nd child. I had a great pregnancy with no rectal bleeding, but after that birth I flared again and went to see another GI.

We worked on upper GI issues and he waited until my baby was 30 months old to do a full scope. So that was 2004. At that point he noted that I had inflammation at the rectum & cecum. A few months later I switched meds from Asacol to Pentasa and felt a lot better.
Posted 8/22/2012 3:28 PM (GMT 0)
I was diagnosed with UC in September 2010. It wasn't until this year when I got a perianal abscess that turned into a rectovaginal fistula that they changed the diagnosis to CD.
Posted 8/23/2012 11:49 PM (GMT 0)
I was first diagnosed with Crohns Colitis and it has since been labeled Crohns. I had my worst internal issues when I was first diagnosed and with medicine, the ulcers seemed to disappear. Good luck to you!
Posted 8/24/2012 5:52 AM (GMT 0)
I was diagnosed with UC in 2009 after suffering from rectal pain and bleeding for a very long time.  A CT scan finally detected disease in my colon and a colonoscopy showed one heck of a mess in there. I was hospitalized for 5 days and given strong antibiotics and prednisone, along with Asacol, which stopped the bleeding and helped me feel better for awhile.  A couple of years later, I developed a rectal stricture and the diagnosis was changed to Crohn's Colitis. Apparently Crohn's causes deeper tissue damage than UC, which results in scarring and stricturing. The stricture narrowed my rectum and it has been very difficult to have any kind of a normal bowel movement. The stools are pencil like and I have to strain, which cause pain and bleeding.  I have had 3 dilations to help me pass stool and to hopefully prevent or at least hold off the need for a proctocolectomy.  I am now on biweekly Humira injections and nine mesalamine tablets per day to hopefully reduce inflammation and more damage.  I also pray everyday and keep my fingers crossed now.
Posted 8/24/2012 5:48 PM (GMT 0)
I was diagnosed with proctitis in October 2010. My scope this week found ulcers on my ileum so my diagnosis is now a "possibly Crohns" diagnosis.
Posted 8/25/2012 9:53 PM (GMT 0)
Diagnosed with UC in June of this year. Follow up colonoscopy in August, diagnosed with Crohn's instead. But my understanding is that I was so inflammed in June that they couldn't get very far, so that might have had something to do with it.
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