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Remicade and weight gain

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Crohn's Disease
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Posted 5/23/2011 8:25 PM (GMT 0)
This post has really hit home. I've always been an over weight crohnie and I struggle to lose weight. I work out, count calories and I can barely get 5 lbs off. I've been on remicade for almost 5 years. I've gained 40 lbs in that time. I just had my last infusion as it doesn't seem to be as effective and I'll be switching to Humira and now I'm even more worried about weight issues. I have been so depressed because I can not get this weight off. I want to be able to run and play with my kids but I struggle. I'm in a flare.. tired and achy from the entocort. It's been a rough few weeks for me physically and emotionally. I am going to try even harder to get this weight off. UGH!!!!!!
Posted 9/13/2012 9:38 PM (GMT 0)
I've been on Remicaide for just over a year. I've wondered if it could be the cause of my weight gain. I've put on close to 12 pounds despite increasing my exercise, watching my diet closer than ever. Glad to hear I'm not the only one. I decided today was my last infusion. I will try something else. I'm switching docs too because my current doctor won't even consider anything else. Now I'm wondering how long it will take to get rid of th weight.
Posted 10/20/2012 3:27 AM (GMT 0)
Wow I wasn't looking for this thread but it is really interesting. Been on Remicade for 7 years I am much heavier than when I started. I've found it very hard to lose weight even when I feel like exercising. I chalked it up to being 38 and metabolism lower. Who knows? But it is very depressing. I haven't been able to eat fiber salads or whole grains in 2 years because strictures. That complicates everything.
Posted 9/12/2013 2:35 AM (GMT 0)
I also have been on Remicade for 3 years, I was diagnosed with Crohn's in 5th grade when, after keeping it a secret for almost a month, I told my mom I couldn't sit correctly on my butt. Turns out I had a fistula and i had been actively fighting Crohn's for almost a year and a half. I had all the text book symptoms, joint pain and swelling, inablility to absorb nutrition, stomach cramps, bloody poo, and all that jazz. On August 11, 2010 I had a colonoscopy and an endonoscopy and had the fistula drained. I was diagnosed with Crohn's and was put on about 12 different medicines including 3 kinds of steroids that I forgot the names of. Then in November I was put on Remicade and instantly, I gained about 1/4 of my body weight (I was 10, 5ft tall, and 85 lbs) in fat. And ever since it seems every year i gain another 15 lbs. I am only 13 and I weigh 170 at 5'3". This past spring my mother and I started an intense cardio workout at our local gym. Weight lifting, >40 min on a stair stepper, an hour on an eliptical, etc. And I did this while only eating about 1,250 calories a day and only lost about 4 lbs. FOUR POUNDS!!!!!!!! So I definitely feel your pain, physically and metaphorically. Literally, once i had a flare that lasted almost 2 weeks and lost 10 lbs, had all the bloody diarrhea, vomiting, ulcers, the lot. DX>
Posted 9/12/2013 2:29 PM (GMT 0)
Lolo, welcome to the forum. You posted to a really old thread!

Lolo, your weight gain coincides with the remi probably because your gastrointestinal tract healed well and now you are absorbing all the nutrients (and calories!) from your food. I understand your frustration at the big changes your body has undergone in the past 3 years. Can I ask if you are menstruating yet (assuming your are a girl)? You should start a new thread and introduce yourself to the forum.
Posted 8/9/2014 6:18 AM (GMT 0)
So I am new on here, but I wanted to post on here because this topics hits close to home. I was diagnosed with Crohns 2 years ago now. I was hospitalized right after that because of it.

But when that was all said and done I was put on remicade to help maintain to symptoms and stop the terrible pain. In the last 2 years I have put on 25 lbs. Which for me is a lot. I am 5'1" and two years ago I weighed 105 lbs. I am now at 130 lbs. And all of it is in my thighs and stomach. Which in turn makes none of my clothes fit and for me to hate looking at myself in a mirror.

The struggle to get rid of the excess weight is real. And I wish all of you the best of luck in trying to get yourselves back.
Posted 1/9/2017 9:20 PM (GMT 0)
Hopefully someone responds. I see a lot of old threads. My son, 18, was 125lbs on Christmas eve last year. Started remicade day before. He lost a lot of weight since last March due to crohns and ulcerative colities. Today, he weighs 142 lbs. Does not eat junk, dairy, sweets, bad carbs, juices, sodas, caffeine, nuts, pork, or grains. All gluten free, non gmo, organic foods. I'm so grateful he gained weight but I'm wondering if it's Remicade causing this. He does need to gain some more, he's 5'11". He's on cbd oil as well but that didn't cause weight gain. He's been on that since August. Should he stop remicade later on, once his GI says he's in clinical remission (If there is such a thing), has anyone gone into a flare right away? If so, did you go back to remicade and get better again?
Posted 1/11/2017 5:47 PM (GMT 0)
Interesting...I assumed that the weight gain (about 25 lbs) I experienced when I went on Remicade was due to the fact that I was finally eating and absorbing again
Posted 1/11/2017 5:59 PM (GMT 0)
Mary, it sounds like the Remicade is doing its job for your son. As far as weight gain goes now that he is healthier is a plus. I was on Remicade for 3 1/2 yrs & did not gain weight. It should be up to his GI if he needs to come off of Remicade. Not being on any preventative can be really bad. Lots of folks go right back into a flare when going off their meds.

Take care.
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